News and Information
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at email@example.com and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
Benefit for the PKD Foundation:
The Fourth Annual Broadway Sings for PKD will be THIS Friday, August 15th at 9:30pm at Joe's Pub. Tickets are $15 in advance and $20 at the door. There is a $12 food or two drink minimum. Tickets are available online at www.joespub.com by phone (212) 967-7555 or in person at The Public Theater Box Office (425 Lafayette St.)
The concert will feature new musical theatre songs by emerging writers, including Hali Alspach, Will Aronson, James K. Ballard, Christina Capatides, Ty Defoe, Benny Gammerman, and more.
Performers will include Ali Ewoldt, Andrew Boetcher, Same Heldt, Beth Kirkpatrick, Patty Nieman, Emily Skiggs, Jason Sweettooth Williams, Remy Zaken, and more. Joanna Parson hosts.
Proceeds will benefit the PKD Foundation.
Sunday, November 2, 2014
Are you a runner? Is someone you know a runner? Do you want a chance to race in a premier marathon?
We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race.
Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
Questions? Contact us at firstname.lastname@example.org or 816.268.8469.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email email@example.com.
PKD Awareness Day Meet & Greet
Thursday, Sept. 4
6 - 8 p.m.
Vintage Restaurant & Lounge
171 Main Street
White Plains, NY 10601
Join us as we bring awareness to PKD, meet other people affected by PKD in the Hudson Valley community and share your experiences and stories. Appetizers will be served. Please RSVP to Darien and Josephine DaCosta by emailing firstname.lastname@example.org.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email email@example.com for more information.
Meeting topics will include the planning of upcoming events such as an Educational Meeting, Cocktails for a Cure, and the 11th Annual Hudson Valley Walk for PKD. General discussions about PKD and Support are always welcome to anyone interested.
The Hudson Valley Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinators, please email us at HudsonValleyChapter@pkdcure.org.
Check back for meeting updates!
Hudson Valley Walk for PKD
Saturday, September 20
Bedford Hills Memorial Park
For more information, click here!
Hudson Valley Cocktails for a Cure
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.