Chapter Info
Welcome to the PKD Foundation’s Hudson Valley Chapter Website!
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Outstanding Chapter Award
Presented to the Chapter that has consistently met objectives related to the Chapter mission areas of Education, Fundraising and Support.
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10th Annual Hudson Valley Walk for PKD – September 21st, 2013!
Thank you to everyone who helped to make the 9th Annual Hudson Valley Walk for PKD so successful in 2012! Last year we raised over $57,000 at the Walk!
The 10th Annual Hudson Valley Walk for PKD will be held on September 21, 2013 at the Bedford Hills Memorial Park in Bedford Hills, NY. The Walk for PKD is a fun event for adults and children, with lunch, entertainment, and fun activities for kids. Online registration for the Walk begins May 1.
The PKD Foundation is leading the fight to bring a treatment and a cure to patients all over the world. Never before have we been closer to getting a treatment into the hands of those who need it most. With your help, we can put a treatment within reach.
The Walk for PKD is the PKD Foundation’s signature fundraising event - and you’ll play a vital role in advancing necessary treatments to patients. You can also start a Walk Team and get your friends and family to walk with you and help raise funds to find a cure for PKD! This year’s Walk for PKD will be here before we know it, so start building your team today.
A Cure is Our Finish Line – but we need your help to get there! Let’s come together to end PKD. For more information, visit www.walkforpkd.org/hudsonvalley or email hudsonvalleywalk@pkdcure.org.
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD?
Would you like to see more events happening in your local county or community?
Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email hudsonvalleychapter@pkdcure.org.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email hudsonvalleychapter@pkdcure.org for more information.
Chapter Resources
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at sgrossman4@gmail.com and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
Learn More about PKD. Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
Recent News
Chapter Member News
Chapter members Jeanne Tobin and Bob Sayah have just taken part in a kidney transplant chain... Jeanne received a kidney from a donor all the way in California and then her husband Bob (who was not a match for Jeanne) donated his left kidney to a recipient in NY. Bob has blogged about the whole process and it is fascinating. Check out www.teamteddybear.blogspot.com to read all about it.
Click here to visit our NEW learning center and to view our FREE educational webinars!
Meetings
Hudson Valley Chapter Committee Meeting
Tuesday, April 30, 2013
7:30 pm - 9:30pm
Everyone is welcome to join this conference call where we will discuss final preparations for our upcoming Cocktails for a Cure, discuss the planning for the 2013 Walk for PKD, and general PKDF updates.
Conference Call Information:
Conference Dial-In Number: (641).715.3200
Participant Access Code: 395781#
For additional questions, please email hudsonvalleychapter@pkdcure.org.
Local Events
Join us for the Walk for PKD on 9/21/2013. Registration is now open at walkforpkd.org/hudsonvalley. There are also many great ways to help support the event as a volunteer including: day-of-event support, securing an in-kind donation, connecting us with a potential sponsor, communicating with participants, distributing promotional materials, serving on the planning committee and more. If you would like to volunteer please email us at hudsonvalleywalk@pkdcure.org.
Media
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 Understanding Your Lab Results
April 10, 2013
Presented by
Terry Watnick, M.D.
Find out what lab tests are important to kidney patients, what constitutes normal and when your health team needs to take action.
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