News and Information
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at email@example.com and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
Education Seminar - Managing Your Life with PKD
Thank you to the following speakers for joining us at the New York City Education Seminar!
Irina Barash, MD
Jennifer Egert, PhD
Dennis Finkielstein, MD
Kim Valenza, RE, CDE, CDN
Ariella Tomback, LMSW
Chapter support meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Hudson Valley Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Darien and Josephine, at firstname.lastname@example.org.
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email email@example.com.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email firstname.lastname@example.org for more information.
The Hudson Valley Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinators, please email us at HudsonValleyChapter@pkdcure.org.
Handbell Choir Concert
Sunday, December 21st
Katonah Presbyterian Church31 Bedford RoadKatonah, New York
Join us for the annual handbell choir concert at Katonah Presbyterian Church. Admission is free and an offering will be collected for the PKD Foundation.
Hudson Valley Walk for PKD
The Hudson Valley Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.