News and Information
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at email@example.com and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
Sunday, November 2, 2014
Are you a runner? Is someone you know a runner? Do you want a chance to race in a premier marathon?
We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race.
Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
Questions? Contact us at firstname.lastname@example.org or 816.268.8469.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Education Seminar - Managing Your Life with PKD
Saturday, Dec. 6, 2014
11:00 a.m. - 3:30 p.m.
Mount Sinai - Philips Ambulatory Care Center
10 Union Square E.
New York, NY 10012
Irina Barash, MD
Jennifer Egert, PhD
Dennis Finkielstein, MD
Kim Valenza, RE, CDE, CDN
Ariella Tomback, LMSW
Cardiovascular Health in Polycystic and Chronic Kidney Disease
Nutrition Recommendations for Patients with Polycystic and Chronic Kidney Disease
PKD Clinical Research Updates
Navigating Dialysis and Transplant
Managing Stress and Chronic Disease
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email email@example.com.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email firstname.lastname@example.org for more information.
The Hudson Valley Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinators, please email us at HudsonValleyChapter@pkdcure.org.
Hudson Valley Walk for PKD
The Hudson Valley Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Next Free Webinar
Tuesday, Nov. 11, 2014, 7:00 - 8:00 p.m. CDT
Presented by: Jacob Taylor, Clinical Dietician at Children's Mercy Hospital
The holiday season is fast approaching, which means lots of family get-togethers, dinners and company parties. With food being a primary focus during these social gatherings, it can be a challenge for people with kidney disease to stick with their kidney-friendly diet. Join us for this webinar to learn how to maintain your kidney diet, while still enjoying the most delicious time of the year. Jacob Taylor will also discuss his PKD Diet Study.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.