Genetic Information Non-Discrimination Act Takes Effect Nov. 21
An article in the New York Times discusses GINA, the landmark legislation the PKD Foundation helped pass and sign into law in 2008. Click here to read the NY Times article. Click here to learn more about the PKD Foundation's advocacy efforts.
UTC Chief Executive Richard Nelson Joins PKD Foundation Board
“I’m enthused to serve on the Board of this visionary yet results-oriented organization that is expanding the frontiers of research, diagnosis and treatment for this life-threatening genetic disease,” said Mr. Nelson. “It is a genuine honor to contribute to the mission of extending and improving the lives of the patients and family members impacted by PKD.” Click here to learn more from a November 10 news release.
ARPKD Webinar Still Available
If you weren’t able to attend the live ARPKD webinar – don’t worry. We have a recorded version available for viewing at your convenience! Learn more.
PKD Docs Weigh In: H1N1, the Flu and the Kidneys
Medical experts recommend kidney patients, including those with PKD, get doctor’s okay before getting any flu shot, including the H1N1 vaccine, set to come out this fall. Those same experts agree those who have had a kidney transplant and are on immune-suppressant medication may be more prone to the effects of any flu virus. Read more.