Join us in educating your elected officials about how they can help fight PKD. Your voice is a vital piece of the puzzle for helping increase PKD research dollars, bring forward new treatments and therapies to patients, and someday a cure.

PKD Advocacy Action Center

Now more than ever, it is critical for patients to advocate on behalf of themselves, families, friends and loved ones with PKD. Share your voice and contact your elected officials about how they can help fight PKD.


Getting Started




What is Advocacy?
Advocacy is the foundation of democracy. It is an attempt to influence public policy, by a person or a group, in a way that brings about legislative action or change.

Members of Congress look to their constituents to bring important information to their attention. As someone with PKD, or a loved one or parent, you know more about PKD than anyone else.

Why is it important?
We encourage people with PKD and their families to meet with their local congressional representatives because just one personal story and one relationship can make a significant difference. Additionally, members of Congress want and need to hear from you.

"As a senator, I was always happy to hear from people from my home state. I received many requests for consideration, and hearing from people helped me set priorities. They informed me about what mattered to Utah – the state that I represented. It's critical for people in the PKD community to vocalize why PKD-related legislation is important in their states. The efforts people put into advocacy truly does have an impact."

– Former Sen. Robert Bennett (R-Utah) and PKD Foundation Board of Trustees member

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.

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