Lainie E.

Lainie E.

I represent the third generation of ADPKD in my family—I was diagnosed in my early 20s. Those in my family who are no longer with us, passed away due to complications of the disease, but my father received the first transplant in our family four years ago. He’s doing...
Paulette Meaney

Paulette Meaney

My husband was diagnosed with PKD in 2008. His kidney function declined significantly over the years, and in June 2020 he was referred for a transplant. Thank God I was a great kidney match. I was able to donate my kidney to him on November 11, 2020, before he ever...
Dina Barnard

Dina Barnard

My maternal grandmother died at the age of 50 from PKD. My mother lost function and went on dialysis at age 45 and had a cadaver transplant at age 50. Dialysis was so horrible for her that when her transplanted kidney failed at age 70, she decided not to do it again,...

Kate Williams

My name’s Kate. I have PKD, and my son, Owen, has PKD. So, finding out that first day, everything was really kind of a blur. Our doctor explained what PKD was and then said please don’t go home and Google this, because there’s a lot of information, and most of...

John Ventresca

Several years after I was diagnosed was when I started to feel the effects of PKD. The first issue I noticed was fatigue, and also over time, I noticed more and more back pain. In the afternoon I would notice getting a little drowsy and I would attribute feeling a...