Read the San Antonio Chapters Winter 2012 newsletter here!
Read the San Antonio Chapter's Summer newsletter here!
Click here to see pictures from the San Antonio Walk for PKD!
An Open Letter from the PKD Foundation's Chief Scientific Officer
Dear PKD Family,
To find treatments and a cure for PKD, people diagnosed with PKD need to consider participation in human clinical trials of experimental therapies. Participating in a clinical trial is an important way for people to help find a cure for PKD and its complications. That's particularly true today, when the Foundation’s nearly 30 years of research leadership has brought us to the point where scientific advances made in the laboratory are being tested in people.
In order to ensure you have the information you need to consider clinical trial participation, the PKD Foundation has created a new communications program, Accelerating Clinical Trials Alert or ACT Alert. This program is designed to help people with PKD better understand what is involved in participating in a clinical trial, and to simplify the process of finding trials that may be of interest to them or their family members. The goal of this program is to serve as a resource on the latest research advances, new research studies, and information about opportunities to participate in clinical trials.
We will be providing information and resources concerning the clinical trial process and about specific FDA-approved clinical trials in PKD, through email communications, Chapter education and communications and on the PKD Foundation website.
Currently, there is a clinical trial for PKD seeking volunteer patients in your area. Please click on the link below to obtain contact information directly from the trial’s pharmaceutical sponsor for the study center near you, go to:
https://trialinfoemail.pfizer.com/pages/landing.aspx?StudyID=B1871019&StudyName=Bosutinib%20For%20Autosomal%20Dominant%20Polycystic%20Kidney%20Disease
Click on the link below to the National Institute of Health’s (NIH) Clinical Trials information website for specific information about this clinical trial, being sponsored by Pfizer:
http://www.clinicaltrials.gov/ct2/show/NCT01233869?term=polycystic+kidney+disease&rank=7
The NIH clinical trials website provides comprehensive information about the clinical trial process, with answers to many frequently asked questions, located at:
http://www.clinicaltrials.gov/ct2/info/understand
If you have PKD, we encourage you to consider participating in the clinical trial process by speaking with your medical team. If you care about someone else who has PKD, we encourage you to forward this ACT Alert to them for their consideration.
Please note that although FDA-approved clinical trials may be of scientific and medical value, the PKD Foundation does not review these studies and therefore cannot endorse participation in them. The PKD Foundation does not take responsibility for the trial conduct; liability lies within the trial’s sponsor and participating university/hospital/clinic. Inquiries regarding trials should be directed to the trials contact person or institution -- not the PKD Foundation. The PKD Foundation does not take responsibility for accuracy of clinical trial information provided.
Thank you for joining in the fight against PKD!
Jill A. Panetta, Ph.D.
Chief Scientific Officer
PKD Foundation
Don't Miss Out on a Simple Way to Raise Money for PKD Research and Education!
Kroger 2010- 2011 Neighbor to Neighbor Donation Program
Kroger Grocery Store’s Neighbor to Neighbor Program allows us to allocate a percentage of what we spend to the PKD Foundation. Everyone who participates in the program in Texas and Louisiana helps support PKD research and education just by doing their shopping! This year’s program goes until April 30, 2011 so if you haven’t signed up, do it today! All you have to do is present the attached letter to your cashier upon checkout at Kroger. The cashier will scan the barcode with the Kroger Plus Card. Once a card is scanned with our Organization's barcode, it will be active for the remainder of the program year of July 1, 2011 - April 30, 2012
Click here to get your letter and start shopping!
Learn More about PKD.
Informational Webinars
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
Make a difference in the lives of 12.5 million people.
Would you like to help 12.5 million people world-wide using your organizational, communication and computer skills? In just a few hours a month you can make a big impact. No travel required, can be done from your own home. On-line training and ready made forms are avaiable. If you are interested in being this person email Maria at SanAntonioChapter@pkdcure.org.