Walk for PKD Final Totals.

The 2008 Northeast Walks had a wonderful year. Check back for updates on our final totals!

Connect with other PKD patients and families in your area.
Wednesday, November 12, 2008 - Chapter Meeting
6:00 p.m. to 9:00 p.m.
Wellesley Public Library
530 Washington Street
Wellesley, MA 02482

Please join us for our next chapter meeting. We will have an educational program and a Walk for PKD debrief along with time to socialize and network with others. For more information about the meeting, contact us at newenglandchapter@pkdcure.org.

Local PKD Support Groups continue to meet monthly in Manchester, NH and Johnston, RI. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting. There are also new support groups being established by teleconference for you to attend in the convenience of your own home.

If you have questions or concerns, please join us at these meetings.  Friends and family are also encouraged to attend.

Johnston, Rhode Island - St. Robert Bellarmine Church - Third Wednesday of each month - 6:30 p.m. to 7:30 p.m.
Contact Information: John Barattini (401) 231-1337 or train246@earthlink.net

Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m.
Contact Information: Cindy Boucher (603) 634-0074 or pkdnhsg@hotmail.com

Teleconference Support Group for Parents of children with ADPKD: We are pleased to inform you that a teleconference support group for Parents is now beginning! If you would like to participate in a support group for parents of children with ADPKD, we would like to hear from you. Sometimes it is beneficial to connect with other parents who share the same concerns regarding their children.   Please contact Kim Conway, (978) 475-8549 or kim.conway@comcast.net.

Support Calling:We invite members of the Northeast Chapter to join in a monthly ADPKD Support Group- held BY TELEPHONE (thanks to the generosity of Genesys Telecom)! No more battling traffic, weather, late nights at the office or health issues to connect, in a comfortable and supportive environment, with others affected by ADPKD.  If you are interested in exploring this innovative concept and becoming part of this special teleconference support group, please email or call Judy Ehrlich at rublich@aol.com or (781)784-2167.

Learn more about PKD research, medical advances and nutrition information.

Educational Webinar on PKD

The PKD Foundation will host its first webinar Tuesday, October 14 at 8pm (ET).  This free webinar “Basics of PKD” is open to everyone.  The presentation will be conducted by Dr. Ron Perrone, Associate Chief, Division of Nephrology of Tufts Medical Center (Boston) and Chair of the PKD Foundation Scientific Advisory Committee. A question and answer period is also included.  This will be the first in a series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease. To register for this webinar, please click here.

We recently hosted our annual educational seminar. This year we focused a lot of the diet of PKD patients. If you couldn't attend the seminar, click here for information on reading food labels, the DASH eating plan recomendations, and information on eating out and how to spice up your food.

Join in a variety of fun events.

Make a difference in the lives of 12.5 million people.

There are jobs for everyone, big and small. Just contact us at NewEnglandChapter@pkdcure.org to find out how you can make a difference in the lives of 12.5 million people!