Hudson Valley Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. There are jobs for everyone, big and small. Just contact us at hudsonvalleychapter@pkdcure.org to find out how you can make a difference in the lives of 12.5 million people!

 
 

Chapter News

Download our 2009 Summer Chapter Newsletter.

 

Chapter Resources 

Are  you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at sandyg48@verizon.net and let her know what you need!

 

Are  you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Sue Wang is available to serve as a resource to help you get your opinions heard and get involved in important "Action and advocacy initiatives." Contact Sue at pkd_advocacyhudson@yahoo.com.

 

Learn More About PKD.

Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.

 

Click here to visit our NEW learning center and to view our FREE educational webinars!

 

 

Make a difference in the lives of 12.5 million people.
The Hudson Valley Chapter is currently looking for the following volunteers:

Fundraising Leader: Take the lead as serve as a resource to help our Chapter plan some new fundraisers throughout the year! Perhaps a book wrap, wine tasting, tag sale, or golf outing would interest you.

Education Leader: Help us line up guest speakers for Chapter meetings and participate in the planning for our annual Educational Seminar.

Volunteer Leader: Help support, cultivate and recruit volunteers for a variety of events!

 

If you have one hour or 10, we would love to have you join in our mission! Contact Heidi Cambareri at 914-953-1163 or by email at hudsonvalleychapter@pkdcure.org to find out more about volunteering!

 

Chapter Meetings

Tuesday, April 6, 2010 - Chapter Meeting
7:30 pm to 9 pm

 

Bedford Hills Community House
74 Main Street
Bedford Hills, NY 10507

 

Our guest speaker will be Anthony J. Enae, Esq, DELA on Estate and Elder Law Planning (including Medicare and Medicaid) for PKD families. Click here to register today! 

Tuesday, May 4, 2010 - Chapter Meeting
7:30 pm to 9 pm

 

Bedford Hills Community House
74 Main Street
Bedford Hills, NY 10507

 

Our guest speaker will be Dr. Neera Dahl. Topic: TBD. Pleae check back for updates! Click here to register today!

Chapter Events

Thursday, March 11, 2010 - "PKD Day” Reception: An Awareness and Recognition Event
6:30 pm to 8:30 pm


Smilow Multi-Purpose Room, NYU Langone Medical Center
550 First Avenue between 30th & 33rd Streets in Manhattan

Please invite your family, friends and fellow PKD constituents to this memorable event when March 11th is proclaimed “PKD Day” in New York City the City of New York and the State of New York. There will also be an Awards Ceremony to honor the Top Individual and Team Fundraisers from the 2009 TriState Walk for PKD AND...

 

*Coach Kevin Gilbride, Offensive Coordinator of the NY Giants and Honorary Chairman of the 2009 TriState Walk for PKD, and a few of his NY Giants players will stop by for a visit!


*Dr. Edward Skolnik of NYU’s PKD Clinic will give a brief presentation on the latest developments in PKD research.


Cost to Attend:  FREE, but due to capacity restrictions, registrations will be accepted on a first-come, first-served basis. The “PKD Day” Reception will include hors d’ouevres, dinner, dessert and beverages, including beer & wine.


Registration: CLICK HERE to register online. Please register by Monday, March 8th. All registrants will receive a confirmation e-mail in early March with any last minute details. For more information, please e-mail TriStateWalk@pkdcure.org  or call 877-PKD-WALK (753-9255). We look forward to seeing you on March 11th!

 

 

Saturday, March 13, 2010 - NYC Metropolitan ADPKD/ARPKD Educational Seminar
10:00 am to 3:00 pm
Check-In Begins at 9:30 am

 

NYU/Langone Medical Center - Schwartz Lecture Hall F (please note the room change)
550 First Avenue (between 33rd and 34th streets)
New York City, NY

 

Cost: $15/person which includes a light lunch and beverages
Click here to register online today!

 

Program will include:

ARPKD: Beatrice Goilav, MD, FAAP, Attending, Pediatric Nephrology, The Children’s Hospital at Montefiore, Assistant Professor of Pediatrics, Albert Einstein College of Medicine, Bronx, NY.

 

Transplant Nephrologist: Alexander Gilbert, MD, Clinical Assistant Professor of Medicine, Division of Nephrology, NYU School of Medicine and NYU Langone Medical Center, NY,NY.

 

A to Z Nutrition: Zari B. Ginsburg, MS, RD, CDN, A-Z Nutrition, Manhasset, NY.

 

Personal Experiences: Marvin McMillen, MD, Chief of Surgical Critical Care and Acute Care Surgery at Beth Israel Medical Center in Manhattan, Board Certified in General Surgery, Surgical Critical Care and Internal Medicine.

 

Insurance Issues: Charles J. Newman, Life, Disability, Health Insurance, Employee Benefits, The Charles J. Newman Co, LLC.

 

Please RSVP by 5pm on Wednesday, March 10. To RSVP, please email us at NewYorkCityChapter@pkdcure.org or call Susan at 212-794-1258.

 

 

The Walk for PKD was a great success! Over 250 walkers raised over $60,000!  Thank you to all who participated or supported this cause!

To view photos of our wonderful Walk day please click here!

 

Contact Us

Chapter Coordinator

Heidi Cambareri

HudsonValleyChapter@pkdcure.org

 

Call 1-800-PKD-CURE

 
©2009, PKD Foundation  · The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.