Long Island Chapter

Click here to download our summer 2010 newsletter.

Participate in Our Chapter.

Did you know our chapter covers all of Suffolk County, Nassau County and Queens? We are now known as the Long Island Chapter. Please bear with us as we change our name. Our e-mail address is now longislandchapter@pkdcure.org. We invite you to come meet us and join the fun! Please e-mail us if you wish to be included on our local chapter e-mail list aned we'll see to it that you receive all the necessary details and meeting minutes so you are best informed. In the event that you would like to be removed from future PKD Foundation e-mails or mailings, please let us know and we'll make that change.

Clinical Trials
Clinical Trials need participants. We have quite a few members currently involved in clinical studies to help understand treatments for PKD. The Temp 3/4 (Tolvaptan) Study is still recruiting patients for participation. If you are interested, find out more about the qualifications and details in our area by using the resources below:

Tempo 3/4 Study:
U.S. Information Line: 866-712-5837

Informational Webinars

Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.

Click here to visit our NEW learning center and to view our FREE educational webinars!

Come join us! At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awareness program. In order to best meet the needs of our members who hail from Suffolk, Nassau and Queens, we alternate where our meetings are held between an eastern and western location. Please reference the schedule below: 

Our meetings take place on the third Thursday of every month at 7:00 p.m.

Big Apple Chorus Festival
September 24 (Friday) - 7:00 PM Norman Thomas High School, 111 East 33rd St, NY, NY 10016

Don't Forget to Register for the 2010 Long Island Walk for PKD!   Join thousands from across the country to step out and say: “PKD stops with me” by registering and fundraising for the Long Island Walk for PKD at 10 a.m. on Sunday, Sep. 19. Don’t let PKD affect another generation of your family. You will be raising money and awareness vital to ending this disease. Together, we can find treatments and a cure.   Register today!