Click here to download our summer 2010 newsletter.
Participate in Our Chapter.
Did you know our chapter covers all of Suffolk County, Nassau County and Queens? We are now known as the Long Island Chapter. Please bear with us as we change our name. Our e-mail address is now longislandchapter@pkdcure.org. We invite you to come meet us and join the fun! Please e-mail us if you wish to be included on our local chapter e-mail list aned we'll see to it that you receive all the necessary details and meeting minutes so you are best informed. In the event that you would like to be removed from future PKD Foundation e-mails or mailings, please let us know and we'll make that change.
Clinical Trials
Clinical Trials need participants. We have quite a few members currently involved in clinical studies to help understand treatments for PKD. The Temp 3/4 (Tolvaptan) Study is still recruiting patients for participation. If you are interested, find out more about the qualifications and details in our area by using the resources below:
Tempo 3/4 Study:
U.S. Information Line: 866-712-5837
Informational Webinars
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!