• Walk for PKD

    Registration is open for fall Walks!
    Come out and Walk with us this fall! Register today and start fundraising to earn your 2015 Walk for PKD commemorative
    t-shirt. Find your Walk and register today!

  • What is PKD?

    What is PKD?
    PKD affects thousands in the United States and millions worldwide — and yet, many people have never heard of it. Play Watch this short video and learn more about this little-known disease.

  • Save the date: PKD National Convention 2016

    Save the date: PKD National Convention 2016
    Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.
    Check out what to expect

  • PKD patient handbook

    Introducing the new PKD patient handbook
    The newly updated PKD patient handbook is here! Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more. Request your copy today.

PKD News

Jinarc® (tolvaptan) has been approved in England and Wales as a treatment for ADPKD.

Breaking news: JINARC® (tolvaptan) has been approved in England and Wales as a treatment for autosomal dominant polycystic kidney disease (ADPKD).

We are very excited for these ADPKD patients to have access to a treatment that slows the progression of kidney enlargement. For patients in the U.S., we are hopeful this is within reach as well.

Read the full press release here.


Friday, September 04, 2015 3:06:00 PM

Valen Keefer helps raise awareness on #PKDAwarenessDay

As Valen was driving through Las Vegas with her car decorated to celebrate #PKDAwarenessDay, she was spotted and interviewed by Las Vegas Now. Read the full story and check out Valen's car below.


Friday, September 04, 2015 10:59:00 AM


Voices of PKD

Do You Know PKD?

New Orleans Saintsations Kriste Lewis, along with others impacted by PKD, helps create awareness in this promotional video. Please help spread the word to people who may not know about this disease by sharing this video.

Do You Know PKD?