In tiny Knox City, a sick boy and his robot sidekick keep beating the odds.
May 16, 2013
Lyndon was born with polycystic kidney disease (PKD), a genetic condition that results in cysts on the kidneys. It's the most common life-threatening genetic disease in the world, but because Lyndon is Lyndon he was born with the rarer form of the disease, autosomal recessive polycystic kidney disease, the kind that appears in children. Louis and Sheri are both carriers for the mutated gene, which gave Lyndon a 50/50 chance of inheriting the disease. About 70 percent of babies born with recessive PKD survive their first year. But back when Lyndon was born — six weeks early, with two pounds of fluid in his chest and cyst-covered kidneys that couldn't filter — his doctors gave him two years to live. Most newborns in his condition don't live two weeks.
Read Lyndon's story in the Dallas Observer News
May 16, 2013
In this issue:
- Message from the CEO: tolvaptan and drug repurposing momentum
- Research: Core research grants program promotes PKD research by supporting core labs
- Education: Providing compassion, connections and education for parents of children with PKD
- Advocacy: United on the Hill and how you can make a difference locally year-round
- Support: Unite to fight and Walk for PKD
- Awareness: Updated Progress and homepage improvements
Read the full issue
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May 16, 2013
Polycystic kidney disease (PKD) is one of the most common, life threatening genetic diseases affecting thousands in America and millions worldwide. PKD causes fluid-filled cysts to grow in the kidneys, eventually leading to kidney failure. Parents have a 50 percent chance of passing it to their children meaning PKD often affects many people in one family.
The PKD Foundation is dedicated to finding treatments and a cure for PKD to improve the lives of all those it affects. Our goal is that one day no one will suffer the full effects of PKD. Learn more about this disease and how we're working to end PKD.
In 1997, she received a phone call that would change her life. Transplant doctors discovered that a perfectly matched kidney had been found and Jean received her gift of life that same day. For our family, which includes her husband, Harry, three children, two daughters-inlaw and four grandchildren, that day brought a huge sigh of relief, but our family's transplant journey was just beginning.
Read the rest of the Bost Family's story