Online Resources

• Clinical Trials.gov: Your source for comprehensive information for current clinical trials being conducted nationwide.
• DaVita.com: Kidney disease and dialysis information.
• GeneClinics: Online publication of the University of Washington, provides a disease profile on ARPKD.
• GeneSage: Provides up-to-date human genetic information and resources for consumers and healthcare professionals.
• GeneTests: Promotes the appropriate use of genetic counseling and genetic testing in patient care. Also provides reliable, easy-to-use and current genetic testing information for the benefit of families and their healthcare providers.
• HALT PKD—Polycystic Kidney Disease Treatment Network
• Health 4 Care
• Healthfinder
• Hopeline
• MedicineNet.com: Online healthcare destination for 100 percent doctor produced medical information.
• MEDLINEplus: The National Library of Medicine's MEDLINEplus information pages are designed to direct you to resources containing information that will help you research your health questions.
• NephrologyLinx: A free and easy tool designed to keep nephrology professions and others interested in kidney disease up-to-date with the latest medical developments.
• RxList: The Internet Drug Index
• Transplant Living: Your prescription for Transplant Information
• University of Colorado Health Sciences Center PKD Research Group
• WebMD: A full-service Internet healthcare portal
• Your Genes, Your Health: An easy-to-understand, visual orientation to the genetics of PKD.

• American Heart Association's Delicious Decisions
• Cleveland Clinic Renal Diet Cookbooks
• Creating a Healthy Menu: A Computer Program Especially for Kidney Patients and for Everyone Else
• Protein Index
• The Renal Family Cookbook

• Davita Patient Citizens: A not-for-profit organization dedicated to improving the quality of life for people with chronic kidney disease and those on dialysis.
• DaVita.com
• DialysisFinder
• Dialysis Outcomes Quality Initiative (DOQI)
• Forum of End-Stage Renal Disease Networks
• Global Dialysis
• Life Options Rehabilitation Program: Resources for professionals and patients with kidney failure
• RenalWEB

• Donate Life America
• The Gift of Life Foundation
• TransWeb
• Transplant Recipients International Organization
• United Network for Organ Sharing (UNOS)
• National Foundation for Transplants

United States

• Genetic Alliance
• American Association of Kidney Patients
• American Kidney Fund
• Kidney and Urology Foundation
• National Kidney Foundation
• National Foundation for Transplants

International

• The Australian Kidney Foundation
• The Kidney Foundation of Canada
• Kidney Research UK
• Mutation Database Autosomal Recessive Polycystic Kidney Disease

• National Institutes of Health (NIH)
• National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
• Division of Kidney, Urologic, and Hematologic Diseases (DKUHD)
• U.S. National Library of Medicine
• Congressional Kidney Caucus

United States

• American Medical Association (AMA)
• American Nephrology Nurses Association (ANNA)
• American Society of Nephrology (ASN)
• American Society of Pediatric Nephrology (ASPN)
• American Society of Transplantation (AST)
• American Society of Transplant Surgeons (ASTS)
• The Renal Physicians Association (RPA)

International

• The Australian and New Zealand Society of Nephrology
• Brazilian Society of Nephrology
• International Society of Nephrology (ISN)
• International Society for Peritoneal Dialysis (ISPD)
• The Renal Association (United Kingdom)

United States

• Hypertension Dialysis Clinical Nephrology (HDCN): Renal Diseases Electronic Journal
• Journal of Renal Nutrition

International

• Kidney International
• MEDWORLD: Listing of biomedical and clinical journals on-line

• PubMed (Medline)
• Community of Science Funding Opportunities