ARPKD advocate and mother Julia Roberts hosts this webinar to help guide you through some key things you need to be aware of when raising an ARPKD child. Julia has two children with ARPKD/CHF, both of whom have received kidney transplants. She is co-founder www.SupportforSpecialNeeds.com, and she blogs her family’s story at www.KidneysandEyes.com.
Julia provided a list of resources on this topic during the webinar. That list is available for download here.
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