Multimedia  Webinars

Understanding Your Lab Results

April 10, 2013

Presented by Terry Watnick, M.D., Division of Nephrology, The University of Maryland School of Medicine

Find out what lab tests are important to kidney patients, what constitutes normal and when your health team needs to take action.

Watch

PKD/CHF & Other Cystic Diseases: From Diagnosis to Daily Living
A Conference for Parents and Caregivers

April 5-7, 2013

Sponsored by the PKD Foundation and Mount Sinai Hospital

Two-day conference for parents and caregivers of children dealing with ARPKD, advanced complications of ADPKD in young children, other cystic kidney diseases or congenital hepatic fibrosis (CHF). Topics covered include: daily living with cystic kidney disease, nutrition, dialysis, transplantation and treatment options.

What's New in PKD 2013: A Day of PKD Learning

March 9, 2013

December 13, 2012

Presented by Natalie Torentinos, Associate, Axela Government Relations, Washington, D.C.

The Affordable Care Act will change health care for millions of Americans – including PKD patients and their families. This webinar outlines the key aspects of the act which will be the focus for Congress and the Administration during this next term.

October 16, 2012

Presented by Dr. Thomas Pearson Associate Director of the Emory Transplant Center and Director of the Kidney Transplant Program at Emory University Hospital in Atlanta.

The kidney transplant process in children poses some unique aspects as opposed to an adult transplant. This webinar focuses on the transplant process in children including pre and post issues including living donation and immunosuppressants.

Dr. Pearson provided answers to the most frequently asked questions during the webinar available for download here.

Quick Notes on PKD: Pediatric Transplantation NEW!

June 26, 2012

Presented by Valen Keefer

When faced with a chronic condition, it’s easy to get down. So how do you stay positive? In this webinar, PKD advocate Valen Keefer talks about her experience with PKD and how she keeps a positive attitude. From perseverance to a grateful heart, there are things all of us can do to make sure we stay on the up side. As Valen says, “PKD will not beat me!” Find out how she lives that in her daily life.

April 24, 2012

Presented by Ron Perrone, MD, Professor of Medicine at Tufts University of School of Medicine.

PKD clinical trials are an important part of the PKD Foundation's "Accelerating Treatments to Patients" initiative. There are currently many ongoing clinical trials for polycystic kidney disease patients - each providing help and hope to the 12.5 million people worldwide affected by PKD. In this webinar, Dr. Ron Perrone provides updates on ongoing PKD clinical trials, shares information from trials which have completed and explains the importance of getting involved in a clinical trial.

January 24, 2012

Presented by Benjamin Cowley, MD, Professor of Medicine and the Chief of Nephrology and Hypertension at the University of Oklahoma Health Sciences Center

We have made great strides in important PKD research, getting us closer to a treatment than ever before. In this webinar, Dr. Benjamin Cowley, Jr. will share the latest on what is happening in the field of PKD research.

October 11, 2011

Presented by Julia Roberts

Many parents don’t know what the future holds when they have a child diagnosed with ARPKD (Autosomal Recessive Polycystic Kidney Disease) or other cystic kidney diseases. ARPKD advocate and mother Julia Roberts hosts this webinar to help guide you through some key things to be aware of when raising an ARPKD child.

June 8, 2011

Presented by Robert Weiss, MD, Professor of Medicine at UC Davis and Chief of Nephrology at Sacramento VAMC

Cardiovascular issues are among the biggest problems associated with ADPKD. However, a heart condition's effect on the kidneys and the rest of the body is often relatively unknown to PKD patients and can be overlooked and underestimated. This webinar will help address some of what causes cardiovascular issues in people with PKD.

March 7, 2011

Presented by Kelly Welsh, Renal Dietician

There's been a lot of buzz lately about certain foods and nutritional supplements which should be used to promote a healthy diet. Sea Salt, Probiotics, Vitamin D are just a few. But are these items truly good for people with kidney issues? Do they really help or are they potentially doing more harm than good? In our webinar "Hot Topics in Kidney Nutrition", Renal Dietitian, Kelly Welsh looks at some of the latest foods and nutritional trends and tell you what you need to know.

December 7, 2010

Presented by Howard Winokuer, MD

Loss comes in many forms in our lives. How you manage loss, however, can have a great impact on your life. As part of our journey through life, we will eventually also experience loss of life of someone we know, love or care about. While natural, this loss can be one some people have difficulty managing. In this webinar, Dr. Howard Winokuer, co-founder of TO LIFE, a not-for-profit educational and counseling organization that specialized in issues dealing with grief and loss and head of The Winokuer Center in Charlotte, NC covers various aspects of loss and how you can manage some of the accompanying emotions.

July 13, 2010

Presented by Marie Hogan MD, PhD

So what’s the story with polycystic liver disease or PLD? How does it happen and what can be done about it? In this free webinar we’ll help you better understand what causes PKD, its effects on the body and how to best manage the disease. Marie Hogan, MD, PhD is an Assistant Professor of Medicine in the Nephrology Department at the Mayo Clinic in Rochester, MN. Dr. Hogan has done extensive research and published numerous papers on polycystic liver disease making her one of the foremost authorities on the subject in the world.

March 16, 2010

Presented by York Pei, MD

In a free webinar presented by the PKD Foundation, we’ll help you better understand some of the complications related to ADPKD and how they can be recognized and managed. Some are relatively easy to distinguish and keep an eye on. Others require a more specific diagnosis and care, but the benefits can be life saving.

January 12, 2010

Presented by Theodore Steinman, MD

In a free webinar January 12, Dr. Steinman walked participants through some of the main causes of pain associated with PKD, as well as some of the “associated symptoms” the kidney issues can cause.  During the one-hour webinar, hosted by the PKD Foundation, Dr. Steinman also shared thoughts on techniques used to reduce pain.

October 27, 2009

Presented by Lisa Guay Woodford, MD

For families faced with an Autosomal Recessive Polycystic Kidney Disease (ARPKD) diagnosis, gathering as much information as possible is key to dealing with the disease. In this webinar, Dr. Guay Woodford guides participants through the basics of the disease as well as outlining advances on the horizon.

June 9, 2009

Presented by Benjamin Cowley, Jr.

As part of the PKD Foundation's new patient education program, you can learn all the ins and outs of dialysis in a free webinar! The webinar features general information about dialysis, discussion of the different types of dialysis available and tips for maintaining a healthy lifestyle while on dialysis.

March 17, 2009

Presented by Dr. Robert Montgomery

On Valentine's Day 2009, this man accomplished a modern-day miracle. Dr. Robert Montgomery's team at Johns Hopkins University performed a 12-person Kidney transplantation. And on March 17th, he hosted a FREE online webinar to cover the ins and outs of kidney transplantation.

January 2009

Presented by Kelly Welsh

The second in our series of free webinars featured Renal Dietitian, PKD patient, wife and mother, Kelly Welsh, who explained what foods are good and those to avoid for someone with compromised kidney function.

October 2008

Presented by Dr. Ron Perrone

Nearly 1,000 people from across the US and more than 25 countries around the world took part in our first educational webinar. Dr. Ron Perrone of Tufts University Medical Center guided participants through a wide range of PKD topics.