Living with ARPKD

Children with ARPKD still have a life to live – despite their diagnosis. Keeping the quality of life high is a top priority. This section deals with issues such as exercise, nutrition and emotional affects – to help keep your child healthy and happy.


Day to Day Living with ARPKDJulia Roberts

Many parents don't know what the future holds when they have a child diagnosed with ARPKD (Autosomal Recessive Polycystic Kidney Disease) or other cystic kidney diseases. ARPKD advocate and mother Julia Roberts hosts this webinar to help guide you through some key things to be aware of when raising an ARPKD child.


What Every Family Needs to Know About ARPKDLisa Guay Woodford

For families faced with an Autosomal Recessive Polycystic Kidney Disease (ARPKD) diagnosis, gathering as much information as possible is key to dealing with the disease.

In this webinar, Dr. Guay Woodford guides participants through the basics of the disease as well as outlining advances on the horizon.


Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.