Welcome to the PKD Foundation’s Kansas City Chapter Website!
Connect with the Kansas City Chapter on Social Media!
Keep up to date and follow the Kansas City Chapter on Facebook and Twitter! Find us on Facebook here at www.facebook.com/kansascitychapter. Find us on Twitter at www.twitter.com/pkdkcchapter.
Learn More about PKD.
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
Chapter Support Meetings
Chapter Support Meetings are usually held at a Panera Bread location around the metro area. Check back for exact locations! These meetings are planned with YOU in mind. We welcome you to bring questions and concerns and we wil do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! Hope to see you next time!
If you have a topic that you would like to discuss, email us at KansasCityChapter@pkdcure.org.
We do not have a support meeting scheduled at this time. Check back for updates!
Chapter Educational Meetings
Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 pm to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed. We hope you will join us.
Transplantation, Chronic Illness and The Affordable Care Act (ACA)
December 2, 2013
3:00 - 4:30 PM or 6:00 - 7:30 PM
Note: Please register for the time that works best for you. 6:00 - 7:30 is a repeat of the 3:00 - 4:30 presentation.
Plaza Library, Large Conference Room
4801 Main Street
Kansas City, MO 64112
- Do you have questions about how the Affordable Care Act (ACA), also known as Obamacare, will impact families dealing with chronic illness, such as PKD, and transplantation?
- Gift of Life is partnering with Missouri Kidney Program to provide a one hour presentation, followed by Q & A, for public education on this topic.
- Learn how to navigate the new Marketplace, compare insurance plans to fit your budget and health care needs. Missouri Kidney Program Certified Navigators will present this program and answer your questions. A Kansas Navigator will also be available.
Space is limited.
Note: Online registration is closed. If you are interested in attending, please call Gift of Life directly to see if seats are still available at 913-851-1947.
Please email our Chapter if you have any questions at KansasCityChapter@pkdcure.org.
Thank you to everyone that made the Kansas City Walk for PKD a success. While the event is over, fundraising is still going strong with donations being accepted until December 31st. Let’s all continue to unite to fight PKD! Your involvement has made a difference for PKD patients and their families everywhere.
Kansas City Cocktails for a Cure
Saturday, November 2, 2013
Our thanks to everyone for supporting this event! We had a great evening and want to thank Peggy Robinson for all of her work organizing this event!
The Empowered PKD Patient: Proactive Strategies to Secure Your Best Life Possible
October 23, 2013
Presented by Risa Simon, CMC
If you've been told to "Do Nothing" until you "Get Sicker" — or simply sense yourself floating in a sea of uncertainty, then join this enlightening session and learn from author, mentor and preemptive transplant recipient, Risa Simon, as she reveals life-changing insights doctors rarely share with their patients. If you (or a loved one) are looking to avoid the need for dialysis, or fear the long wait for a kidney might squelch transplant opportunities, look no further.