Kansas City Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. There are jobs for everyone, big and small. Just contact us at kansascitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

PKD FoundationKansas City Chapter



Chapter Info Chapter Info

Recent News Recent News

Meetings Meetings

Local Events Local Events

Media Media


Chapter Info Chapter Info

Welcome to the PKD Foundation’s Kansas City Chapter Website!


Outstanding Fundraising Award

Presented to the Chapter that supports an
outstanding local fundraising program, including
hosting a successful non-Walk fundraising event.






Connect with the Kansas City Chapter on Social Media!

Find us on Facebook Follow us on Twitter


What can we do for you?

The Kansas City Chapter is here for YOU!  Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation.  It is very important to us to know how we can be of service to you and your family.  Please connect with us if there is anything we can do for you.  YOU are always welcome! 

Let us know what interests you the most!  We are always looking for topics for our support and education meetings!  Take our brief survey.

Interested in volunteeringLet us know how you would like to be involved. 

Or, email Chapter Coordinator, Nicole Harr,  at KansasCityChapter@pkdcure.org!



Recent News Recent News


Better Together at the PKD National ConventionPKD National Convention: Better Together

 June 20–22, 2014

Kansas City, Mo.

This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.

 Visit pkdcure.org/convention to register and learn more.


Transplant Games of America


Transplant Games of America

Houston, Texas
July 11 - 15, 2014

The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries.  The games are more than an athletic event!  They highlight the importance of organ donation and celebrate the lives of organ donors and recipients.  For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.

The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families.  If you plan to participate, please take our brief survey! 

Take Our Survey



Meetings Meetings


Chapter Support Meetings

Chapter Support Meetings are usually held at a Panera Bread location around the metro area.  Check back for exact locations!  These meetings are planned with YOU in mind.  We welcome you to bring questions and concerns and we will do our best to provide you with answers or direct you to someone that can assist you.  Everyone is welcome!  Hope to see you next time!

Check back for updates!


Wednesday, July 23, 2014
6:00 - 8:00 PM

Panera Bread
1811 Village Parkway @ The Legends
Kansas City, KS 66111


Wednesday, October 22, 2014
6:00 - 8:00 PM

Panera Bread
11022 Metcalf
Overland Park, KS 66210


If you have a topic that you would like to discuss, email us at KansasCityChapter@pkdcure.org 


Chapter Education Meetings

Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 pm to 8 pm. Our goal is to provide up to date information for PKD patients.  Guest speaker information will be updated once confirmed.   We hope you will join us.

Please email our Chapter if you have any questions at KansasCityChapter@pkdcure.org.


Local Events Local Events   

The Kansas City Chapter is planning our annual fundraising events for 2014!  Please let us know if you are interested in joining our planning committees.  Click here to tell us how you would like to be involved with our Chapter. 

Save the Date!

Driving Home a Cure for PKD Golf Tournament will be held on June 2, 2014 at Falcon Lakes Golf Club - click here for more information


Cocktails for a Cure will be held in the fall - check back for details! 



Media Media

Latest Webinar


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WebinarStraight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation

March 27, 2014
Presented by PKD Patients

Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinar will help you be your best advocate as you enter the conversation about renal replacement with your health care team.


Featured Video


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Latest Photos


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Latest Tweets


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Nicole Harr
Volunteer Chapter Coordinator



For General Information
Call 800.PKD.CURE (753.2873)

PKD Foundation Staff

Cindy LeBlanc
Chapter Relations Manager

Nicole Harr
Education Manager

Sara Brown
Fundraising Events Manager

Sue Full
Walk for PKD Manager

Vehicle Donation

Donate Your Car In Support of the PKD Foundation

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end polycystic kidney disease. Save the time and hassle of selling your vehicle yourself and support the Foundation’s mission by calling 855.9PKD.CAR (855.9753.227). For more information, visit pkdcure.org/vehicle-donation.

You Shop, Amazon Gives 
Amazon.com just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company’s website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation’s mission to find treatments and a cure for PKD. Learn more at smile.amazon.com > 

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.

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