Kansas City ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at kansascitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.



News and Information News and Information

What can we do for you?

The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!

Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.

Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!

 Denver Rock n Roll Half Marathon Logo 


Join Team PKD for the Denver Rock 'n' Roll Half Marathon

October 19, 2014


Celebrate good times at the 5th Annual Denver Rock 'n' Roll Half Marathon! Live music every mile makes the heart and soul of this event.  Join Team PKD in bringing hope to those affected by polycystic kidney disease. You will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.





Transplant Games of AmericaTransplant Games of America


We had an amazing time at the Transplant Games of America!  Thank you to everyone that stopped by our booth and shared your transplant story with us.  Congratulations to everyone that participated in the games!


View Slideshow!



↑ Top

Calendar Local Events and Meetings

Meeting Chapter Support Meetings

Chapter Support Meetings are usually held at a Panera Bread location around the metro area. Check back for exact locations! These meetings are planned with YOU in mind. We welcome you to bring questions and concerns and we will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! Hope to see you next time!

The Kansas City Chapter does not have a support meeting planned at this time however, we do want to hear from you. If you have a topic that you would like to discuss, email us at KansasCityChapter@pkdcure.org.

Meeting Chapter Educational Meetings

Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 p.m. to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed.  We hope you will join us.

Thursday, October 23, 2014
4-6 p.m.
Please meet in the hospital lobby at 3:45!

University of Kansas Medical Center - Kidney Institute
3901 Rainbow Blvd.
Kansas City, KS 66160

Join the Kansas City Chapter for a tour of the University of Kansas Medical Center Kidney Institute and hear poster presentations from researchers that are conducting PKD research right here in Kansas City.  Please meet in the hospital lobby at 3:45, we will walk to the Kidney Institute together.

Through the Research Grant Program, the PKD Foundation awarded research grants to 15 PKD researchers.  Several of these researchers are from the University of Kansas Medical Center!  Meet these researchers and hear directly from them about their research projects.  Summaries of all of the projects grant recipients are available here

RSVP Today!

Please email our Chapter if you have any questions at KansasCityChapter@pkdcure.org.

Gift of Life Foundation presents:

Exploring the Science of Organ and Tissue Donation

Thursday, Oct. 30, 2014
6:30 p.m.

Plaza Library - Truman Forum
4801 Main St.
Kansas City, MO 64112

The Kansas City Chapter has been invited to attend a presentation and panel discussion of the ethics and impact of regenerative organ development and therapies featuring Joan Schanck from The Wake Forest Institute for Regenerative Medicine.

If you plan to attend, please RSVP by emailing giftdonor@giftdonor.org or call 913.851.1947.

Kansas City Walk for PKD

The Kansas City Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.

Donate Today

The Kansas City Chapter is planning our annual fundraising events for 2014! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.

CocktailsCocktails for a Cure

Saturday, November 1, 2014
7 - 9 p.m.

Belvoir Winery
1325 Odd Fellows Road
Liberty, MO 64068

Cocktails for a cure isn't just an exciting party. Your support will fund critical research to discover treatments and a cure for polycystic kidney disease. Join those committed to supporting this important cause for an evening of drinks, hors h'oeuvres, and music by June Bug and the Porch Lights.

Register Today

↑ Top

Resources Resources

Next Free Webinar

Holiday EatingHoliday Eating

Tuesday, Nov. 11, 2014, 7:00 - 8:00 p.m. CDT

Presented by: Jacob Taylor, Clinical Dietician at Children's Mercy Hospital

The holiday season is fast approaching, which means lots of family get-togethers, dinners and company parties. With food being a primary focus during these social gatherings, it can be a challenge for people with kidney disease to stick with their kidney-friendly diet. Join us for this webinar to learn how to maintain your kidney diet, while still enjoying the most delicious time of the year. Jacob Taylor will also discuss his PKD Diet Study.

Register Today!


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

↑ Top

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.