News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at email@example.com!
Local Events and Meetings
Chapter Education Meetings
Chapter meetings provide an opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Check back for our next scheduled education meeting time and location. You can contact the Kansas City Volunteer Chapter Coordinator at firstname.lastname@example.org.
Chapter Support Meetings
Support meetings are planned quarterly and provide a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions!
If you have any questions about the Kansas City Chapter, please email our Volunteer Chapter Coordinator Nicole at email@example.com.
Mark your calendar and plan to join us for our next support meeting on Wednesday, May 18. Check back for updates.
University of Kansas Hospital Transplant Clinic Support Group
A support group meets at KUMED in the transplant clinic on the 1st Thursday each month from 6:30 - 8 p.m. Pre and post transplant patients are welcome to attend. Topics will be posted as they are available. For more information, please email Jill Riester at firstname.lastname@example.org.
Kansas City Walk for PKD
Thank you for joining us for the Kansas City Walk for PKD!
We had a great time connecting with everyone at the Walk! Check out some of our favorite memories from the Walk here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.