News and Information
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
Chapter Support Meetings
Chapter Support Meetings are usually held at a Panera Bread location around the metro area. Check back for exact locations! These meetings are planned with YOU in mind. We welcome you to bring questions and concerns and we will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! Hope to see you next time!
The Kansas City Chapter does not have a support meeting planned at this time however, we do want to hear from you. If you have a topic that you would like to discuss, email us at KansasCityChapter@pkdcure.org.
Chapter Educational Meetings
Thank you to all of the researchers at the KU Kidney Institute for sharing such wonderful information with us at our last Chapter meeting! Below are pictures from our visit to the Kidney Institute on October 23!
Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 p.m. to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed.
The Kasnas City Chapter does not have an educational meeting planned at this time. Please email our Chapter Coordinator if you wish to connect for questions or comments at KansasCityChapter@pkdcure.org
Kansas City Walk for PKD
The Kansas City Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
The Kansas City Chapter is planning our annual fundraising events for 2014! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.