Polycystic kidney disease (PKD) is one of the most common, life-threatening genetic diseases affecting thousands in America and millions worldwide. PKD causes fluid-filled cysts to grow in the kidneys, eventually leading to kidney failure. PKD can devastate families, as parents have a 50 percent chance of passing the disease to each of their children. PKD often affects many people – and many generations – in one family.
Approximately 10 percent of the people diagnosed with PKD have no family history of the disease, with PKD developing as a spontaneous (new) mutation. Once they have it, they have a 50 percent chance of passing it on to each of their children. A relatively rare form of PKD, autosomal recessive polycystic kidney disease (ARPKD), affects approximately 1 in 20,000 children, and often causes death in the first month of life.
Today, there is no treatment or cure for PKD.
About the PKD Foundation
The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD, while improving the lives of those affected. We do this through promoting research, education, advocacy, support and awareness. Since 1982, the PKD Foundation has invested more than $32 million in research, clinical and scientific grants, as well as fellowships and scientific meetings, making the Foundation the largest private funder of PKD research.
Genetic Engineering and Biotechnology News recently ranked the PKD Foundation #17 in the nation for percent of total revenue spent by a nonprofit disease foundation on research grants and awards. As the largest private funder of PKD research and more than 30 years of leading the fight against this disease, we are proud to support the work being done to find treatments and a cure.
Our vision is that one day, no one will suffer the full effects of PKD. Your support of the Gratitude Benefit makes a difference for PKD patients and families in realizing that vision.
For more information about PKD and the PKD Foundation, visit pkdcure.org or call 1.800.PKD.CURE (753.2873).