What Past Attendees Are Saying About the National Convention on PKD
The PKD convention was an experience like no other. Being in a room with others who are going through the same things is something I would not have gotten the opportunity to experience. The most amazing thing is all the hope that exuded through everyone I met who had or knew someone who had PKD. It made me feel I wasn’t alone in my battle. I feel renewed and even stronger in my fight to have a long and healthy life. If there is one thing I can take from this conference, it is that only you can take control of how PKD affects your life. Be proactive!
– Josephine DaCosta
The Convention was very informative -- and moving. If someone has not been to a Convention, they should go. They also should get involved. Make a difference. You are your own advocate for you and your family.
– Renee Reilly
It’s always energizing to see old friends at the Convention and make new ones. Foundation staffers works so hard to make everything flow, but you’d never know it from their relaxed, warm smiles. Staffers and speakers create an atmosphere that enables new visitors to feel welcome right away, and enables veterans to feel like we’re coming home – if ‘home’ was a pleasant hotel full of warm chocolate-chip cookies and people who cared about curing PKD. In addition to the camaraderie, people come looking for information, and at the convention they get it: All questions are taken seriously, and are answered, as clearly as scientific evidence allows, by the world’s leading experts on PKD. A wonderful experience. Highly recommended.
– Bill Brazell
The interaction with fellow ‘PKDers’ was wonderful. During the Convention, we were able to share the story and to meet and hear others -- and know that we are not alone. The information shared is valuable and always appreciated. Really, we are a silent community with no outward signs of the disease, so it’s the camaraderie of sharing with other people with PKD that is priceless.
– Colette Kiszka
I think the Convention was extremely well organized and the staff people were always ready and eager to assist. People who attended the Convention were able to focus on what they wanted to learn. The speakers shared detailed information and it was well received. It’s important for people with PKD to learn what they need to do to take care of their bodies. I also was impressed that the volunteer chapters were so well represented.
– Bob Blanchard