PKD/CHF & Other Cystic Diseases: 
From Diagnosis to Daily Living

A Conference for Parents and Caregivers
April 5-7, 2013

Sponsored by the PKD Foundation and Mount Sinai Hospital

ARPKD/CHF & Other Cystic Diseases: From Diagnosis to Daily Living

This event is open to parents and caregivers of children dealing with ARPKD, advanced complications of ADPKD in young children, other cystic kidney diseases or congenital hepatic fibrosis. The conference will feature guest speakers including:

Click on a photo to view presenter's bio

Lisa Guay-Woodford
Lisa Guay-Woodford

Kathryn Kapoor
Kathryn Kapoor

Mandi Pek
Mandi Pek

Jeffrey M. Saland
Jeffrey Saland

Lisa M. Satlin
Lisa Satlin

Joanne Stone
Joanne Stone

Frederick Suchy
Frederick Suchy

Event Co-Coordinators:

Michele Karl & Julia Roberts
Co-Leaders of the PKD Foundation's ARPKD Chapter

Michele Karl
Michele Karl

Julia Roberts
Julia Roberts

Bio:

Lisa Guay-WoodfordLisa Guay-Woodford, MD, Pediatric Nephrologist and longtime advisor to the PKD Foundation
The George Washington University Children's National Medical Center, Washington, DC

Dr. Lisa M. Guay-Woodford is the Hudson Professor of Pediatrics at the Children's National Medical Center (CNMC), a pediatric nephrologist, and an internationally-recognized investigator whose research focuses on identifying clinical and genetic factors involved in the pathogenesis of inherited renal disorders, most notably autosomal recessive polycystic kidney disease (ARPKD). Her laboratory has identified the disease-causing genes in several mouse models of recessive polycystic kidney disease and her group participated in the identification of the human ARPKD gene as part of the ARPKD Consortium. In addition, her laboratory was the first to identify a candidate modifier gene for recessive polycystic kidney disease. Dr. Guay-Woodford has over 100 peer-reviewed publications based on research performed in her own laboratory or as a member of several national and international consortia. She has directed the NIDDK P30-funded Hepato-Renal Fibrocystic Disease Research and Translational Core Center, initially established at the University of Alabama at Birmingham in 2005, and continues to serve as co-Director since moving to CNMC in 2012. Her research program has been funded by the NIH, the Burroughs Wellcome Fund Clinical Scientist Award in Translational Research, and the Polycystic Kidney Disease Foundation. In 2009, Dr. Guay-Woodford was awarded the Lillian Jean Kaplan International Prize for Advancement in the Understanding of Polycystic Kidney Disease, given by the PKD Foundation and the International Society of Nephrology.

In addition to her investigative work, Dr. Guay-Woodford has established and serves as Director of the CNMC Inherited Renal Disorders Program. She is the Director of the Center for Translational Science, as well as Director of the Clinical and Translational Science Institute at Children's National Medical Center (CTSI-CN), which is funded by the NIH CTSA program. She has served on several editorial boards for journals in her field. She has been a permanent member and Chair of the NIH Cellular and Molecular Biology of the Kidney Study Section. She is the Past President of the Society for Pediatric Research and Councilor for the International Pediatric Nephrology Association.


 

Registration is open through March 31, 2013. Registration fees are $50 per person or $100 for a family now through March 21. March 22-31, registration fees increase to $75 per person or $125 for a family. Registration will close on March 31.

Room accomodations have been arranged at the Courtyard Marriott Manhattan, Upper East Side, 410 East 92nd Street, New York, NY 10128. Guests will pay a negotiated rate of $269 per night. Limited rooms are available at the negotiated rate (Please note, once our room block is full, we cannot guarantee the negotiated rate and attendees will need to call the hotel directly for room rates).  The PKD Foundation will reserve a room at the Courtyard Marriott as we receive your event registration for Friday, April 5 and Saturday, April 6. You will be asked to provide a credit card to cover the room rate and incidentals at check-in. If you do not plan to stay at the hotel or need room accomodations for additional nights, please email Nicole Harr at nicoleh@pkdcure.org.  If you are interested in sharing a room, we may be able to accomodate this request.  Please let Nicole know if you are interested in sharing your room with another conference attendee.

We are planning a social on Friday evening, dinner will be provided. 

The conference meetings will take place at Mount Sinai Medical Center located at 1468 Madison Avenue (at 100th Street), New York, NY 10029. Mount Sinai is within walking distance of the hotel. Breakfast and lunch on Saturday and Sunday will be provided for meeting attendees.

View agenda here.
Schedule is subject to change

A small fund has been set up to provide a limited number of subsidies for individuals or families who wish to attend this event but face financial challenges.  For more information please contact the PKD Foundation at education@pkdcure.org.

 

Registration for this event is now closed.


Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.