News and Information
PKD Foundation News and Announcements
March 17, 2015
Saintsation Kriste was a guest speaker at the Polycystic Kidney Disease (PKD) Foundation's Leadership Conference in Kansas City, Mo., from Feb. 20-22. There were more than 100 people in attendance; two representatives from each state and some representatives from Canada. Attendees were chapter coordinators and leaders across the country with goals of updating each other on ongoing kidney research and continuing to raise awareness of PKD.
Read more about Kriste
A note from your Chapter Coordinator:
We’re pleased to announce Carol Soha, Ph.D., as the new Delaware Chapter Coordinator. Carol comes to this position with extensive experience in health education, nursing and non-profits. She retired from nursing after many years and was Executive Director of the Delaware Center of Wellness, which promoted wellness in worksites throughout the state.
Carol has firsthand understanding of PKD as it runs in her family. She was fortunate to have received a living donor kidney in 2013. Carol took on this volunteer challenge to help her daughters and all those affected by PKD and to show her appreciation for the selfless act by her donor.
Carol is anxious to network with individuals and institutions with a similar mission to promote PKD awareness, kidney health and to increase the number of living and deceased donors.
Delaware is the state of Endless Discoveries. Families affected by PKD will learn of “endless discoveries’ through their involvement with the PKD Foundation. She invites those in need of information or who want to help with the annual Walk for PKD,other fundraisers or education events to contact her at (302) 373 – 7179 or at email@example.com.
Local Events and Meetings
What's New in PKD: A Day of Learning
Saturday, March 28, 2015
Thank you to all of those that came out to the exclusive, online educational conference! A special thank you to the PKD experts from across the United States who discuessed topics that are important to PKD patients. We enjoyed learning and connecting with those that came to the event!
If you have any questions or would like to connect with our Volunteer Chapter Coordinator at firstname.lastname@example.org.
Delaware Walk for PKD
The Delaware Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Delaware Walk for PKD!
Dutch Country Farmer's Market Event
March 13, 2015
701 N. Broad StreetMiddletown, DE 19709
Volunteers will be distributing PKD information and collecting donations every Friday and Saturday starting on March 13, 2015 until March 28, 2015 from 9 a.m. - 3 p.m.
If you or someone you know is interested in volunteering for this event please contact Carol Soha at DelawareChapter@pkdcure.org.
Women and Wine Dinner
Thursday, March 19
6:30 p.m - 9 p.m.
Lupo di Mare 247 Rehoboth Ave. Rehoboth Beach, DE 19971 [located in the Hotel Rehoboth]
Join us as we raise funds and awareness for the PKD Foundation. This fun event will feature a creative Italian four course meal paired with wines. The cost will be $39 plus gratuity. For each guest in attendance, Lupo Di Mare will make a $5 donation to the PKD Foundation. To make reservations, please contact Alexis Schreiber at Alexis@sodelconcepts.com or 302-226-2240. For more information please contact Carol Soha at DelawareChapter@pkdcure.org.
Sign Up to Receive Information From Your Chapter
Latest Free Webinar
Presented by Lawrence Grunfeld, M.D., clinical associate professor of Obstetrics and Gynecology at the Mount Sinai School of Medicine and co-director of Reproductive Medicine Associates of New York
Preimplantation genetic diagnosis, known as PGD, is a screening test used to determine if genetic or chromosomal disorders are present in embryos produced through in vitro fertilization (IVF).
In this webinar, Lawrence Grundfeld, M.D. speaks and answers questions about PGD as it relates to PKD. He is also joined by two families who have chosen to use PGD in family planning.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.