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Friday, June 20

Time

Topic

Speaker

Category

Noon

Registration Opens

 

         

3 p.m. - 4 p.m.

Get the Most Out of Your Doctor's Time

Terry Watnick, M.D.

   

3 p.m. - 4 p.m.

Nuts and Bolts of Dialysis

Benjamin Cowley, Jr., M.D.

 

3 p.m. - 4 p.m.

Keeping Your New Kidney Healthy

Michaela Abbott

 

3 p.m. - 4 p.m.

Learn the Facts: The Basics of ARPKD and ADPKD

Lisa Guay-Woodford, M.D.

 

3 p.m. - 4 p.m.

Positive Attitude, Positive Life

Melissa Cadnapaphornchai, M.D.

 

4:10 p.m. - 5:10 p.m.

Stages of Chronic Kidney Disease

Wendy Brown, M.D.

   

4:10 p.m. - 5:10 p.m.

United Network for Organ Sharing (UNOS) Update

Clifford Miles, M.D.

   

4:10 p.m. - 5:10 p.m.

Post-Transplant Diet and Nutrition

Molly Stirek, RD, LMNT

 

4:10 p.m. - 5:10 p.m.

How to Help Your Child Transition to Managing Their Care

Angela Degnan, LCSW, LSCSW

 

4:10 p.m. - 5:10 p.m.

Get Proactive for the Cause!

PKD Foundation Staff

 

5:10 p.m. - 7 p.m.

Exhibit Hall Open and Research Poster Presentations

 

         

7 p.m. - 9 p.m.

Celebration Dinner

Jared Grantham, M.D.
Gregory Germino, M.D.

         

Saturday, June 21

Time

Topic

Speaker

Category

7:30 a.m. - 9 a.m.

Advocacy Breakfast and Foundation Update

Jackie D. Hancock, Jr., CRFE
Frank Condella, Jr.
Paul Conway

         

9 a.m. - 9:30 a.m.

Exhibit Hall Open

 

         

9:30 a.m. - 10:30 a.m.

The Latest in PKD Clinical Studies

Marie Hogan, M.D., Ph.D.

   

9:30 a.m. - 10:30 a.m.

What to Know About Immunosuppressive Drugs

Franz Winklhofer, M.D.

 

9:30 a.m. - 10:30 a.m.

Dialysis and Transplantation in Youth

Bradley Warady, M.D.

 

9:30 a.m. - 10:30 a.m.

You Are Not Alone (Even if it Feels Like it)

Greg Mainolfi
MaryKatherine Michiels-Kibler

 

10:45 a.m. - 11:45 a.m.

Learn the Facts: Polycystic Liver Disease

Marie Hogan, M.D., Ph.D.

     

10:45 a.m. - 11:45 a.m.

Congenital Hepatic Fibrosis

Ryan Fischer, M.D.

 

10:45 a.m. - 11:45 a.m.

Clinical Trials and Youth

Melissa Cadnapaphornchai, M.D.
MaryKatherine Michiels-Kibler

 

11:45 a.m. - 12:15 p.m.

Exhibit Hall Open

 

         

Noon - 4 p.m.

PKD Teen Outing

 

 

12:15 p.m. - 1:20 p.m.

Building Your Financial House for PKD Families

Kari M. Lusby, CFP®, AIFA®

         

1:20 p.m. - 1:45 p.m.

Exhibit Hall Open

 

         

1:45 p.m. - 2:45 p.m.

ADPKD Science Update

Terry Watnick, M.D.

   

1:45 p.m. - 2:45 p.m.

Post Transplant: What You Need to Know

Franz Winklhofer, M.D.

 

1:45 p.m. - 2:45 p.m.

Q&A Session: Your ARPKD and ADPKD Questions Answered by the Experts

Melissa Cadnapaphornchai, M.D.
Lisa Guay-Woodford, M.D.

 

3 p.m. - 4 p.m.

Minimize Pain, Maximize Life

Theodore Steinman, M.D.

   

3 p.m. - 4 p.m.

The Connection Legacy: Be A Mentor. Find A Mentor. Stay Engaged!

Risa Simon
Jill Riester

   

3 p.m. - 4 p.m.

Day-to-Day Living with a PKD Child Panel Discussion

Lisa Guay-Woodford, M.D.
Michele Karl
Julia Roberts

 

3 p.m. - 4 p.m.

Self Care for the Caregiver

Wendy Brooks, RN
Sarah King, RN

Caregivers & Spouses

3 p.m. - 5 p.m.

Interactive Sessions

  • Eating Healthy on a Budget
  • Staying Healthy: Balance of Mind and Body
  • Breathe and Meditate: Finding Calm in the Midst of Illness
  • Yoga in Chairs

 

         

4:15 p.m. - 5:15 p.m.

Alternative Therapies for PKD

Benjamin Cowley, Jr., M.D.
Terry Watnick, M.D.

   

4:15 p.m. - 5:15 p.m.

Transplantation A-Z

Patrick Dean, M.D.

   

5:15 p.m. - 6:15 p.m.

Special Interest Group Discussion: Pick a topic and join the conversation!

 

         

6:15 p.m.

Dinner on your own. Be sure to visit the Kansas City Convention and Visitors Association Table for the inside scoop on where to eat dinner and what to do in Kansas City!

 

         

6:30 p.m. - 8 p.m.

Investors' Reception — Invitation Only

 

Foundation Partners

Sunday, June 22

Time

Topic

Speaker

Category

8 a.m. - 9 a.m.

Breakfast — come as you please and enjoy connecting with each other over kidney-friendly food.

 

         

8 a.m. - 9 a.m.

Investors' Breakfast — Invitation Only

 

Foundation Partners

9 a.m. - 10:30 a.m.

From Promise to Progress: Accelerating Treatments to Patients Update Panel Discussion

Benjamin Cowley, Jr., M.D.
Terry Watnick, M.D.
Arlene Chapman, M.D.
Lorrie Rome, MS

     

9 a.m. - 10 a.m.

Nutrition and PKD: Why Diet Matters and What Parents Can Do to Help Their Kids

Jacob M. Taylor, MS, RD, LD

 

9 a.m. - 10:30 a.m.

How to Become Your Own Advocate

Richard Capling, D.O.
Bradley Warady, M.D.

 

10 a.m. - 10:30 a.m.

Parent Roundtables

Michele Karl
Julia Roberts

 

10:30 a.m. - Noon

Getting Involved in the PKD Foundation — How to Fight for the Cause!