Thanks For Joining Us as We Unite to Fight PKD…

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About the National Convention

We all share a common goal: to end polycystic kidney disease (PKD). We can only reach this goal if we unite to fight … because we're better together.

If you or a loved one is affected by PKD, join us for the PKD National Convention 2014 – a special opportunity to learn the latest research about the disease, connect with others in the PKD community and become an advocate for your own health care.


Learn the latest developments in PKD from leading national clinicians, researchers and nephrology experts. These medical professionals and researchers will share their expertise in an easy-to-understand and approachable manner, covering everything from PKD research and clinical trials to pain management, transplantation, dialysis and more.


Connect with others affected by PKD. The Convention creates a safe, positive environment for patients, families, caregivers and medical professionals to meet face-to-face and share practical information and advice on living with PKD. You'll have the opportunity to share, provide support, learn from others and develop a better connection to the PKD community.

Be Empowered

Walk away with practical tips for managing your health or supporting a loved one. The Convention will provide you with the confidence and tools to become your own advocate.

Whether you are a PKD patient, caregiver or family member, PKD National Convention 2014 offers resources to support your needs. You'll learn how to:

  • Navigate PKD for those recently diagnosed
  • Live with PKD and be proactive with your health
  • Prepare for advanced stages of PKD, including end-stage renal disease, dialysis and transplantation
  • Live your best life post-transplant
  • Manage PKD as a teen or young adult
  • Care for a child with ARPKD or ADPKD
  • Support a spouse or parent

About Kansas City

In addition to the priceless opportunity to learn from the very best in PKD research and medicine, the PKD National Convention 2014 provides attendees a chance to explore Kansas City, also the home of the PKD Foundation headquarters.

A vibrant tourist destination in the heart of the country, Kansas City offers many entertainment options including museums, dining hot spots, theme parks, professional sporting events and much more! Kansas City offers a wide variety of fun, family-friendly activities, without breaking the bank. Learn more at

Thank You

Special thanks to the Volunteer Advisory Group who continues to help plan and shape the convention. Their input and feedback has been invaluable in identifying important topics for sessions and in forming the agenda. Thank you!

  • Geoffrey Clark
  • Michele Karl
  • Kari Lusby
  • Matt Mainolfi
  • MaryKatherine Michiels-Kibler
  • Dwight Odland
  • Jill Riester
  • Julia Roberts
  • Risa Simon
  • Margot Troutt-Keys
  • Sally Wilson

Convention Registration Refund Policy

The PKD National Convention registration fee is non-refundable but can be transferred to another person if necessary. Exceptions to the no refund policy are made in the event a registered attendee has a serious health incident to prevents attendance. Please contact Alexis Denny at or 816.931.2600 if you have questions or need to request a refund.

About PKD

Polycystic kidney disease (PKD) is one of the most common, life-threatening genetic diseases. The PKD Foundation is the only organization in the United States solely dedicated to finding treatments and a cure for PKD to improve the lives of those it affects. We do this through promoting programs of research, education, advocacy, support and awareness on a national level, along with direct services in local communities across the country. Our vision is that one day, no one will suffer the full effects of PKD. Learn more about PKD and the PKD Foundation at

PKD Foundation

©, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.