PKD National Convention 2016


We can't wait to see you in Orlando!

If you or a loved one is affected by PKD, join us at the PKD National Convention 2016 – a special opportunity to:

  • Learn the latest research about the disease
  • Connect with others in the PKD community
  • Become an advocate for your own health
  • Meet the doctors and researchers dedicated to fighting PKD

Join us to discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.

Registration opens this January!

About Disney's Coronado Springs Resort

Set around man-made lake Lago Dorado, this Spanish colonial-themed convention resort offers:

  • Rooms available for $159 a night
  • All the special benefits of a Walt Disney World Resort®, including complimentary transportation to all Walt Disney World parks, to/from Orlando International Airport and flexible theme park ticket options to make the most of your time
  • Complimentary WiFi throughout the resort and convention center
  • Four swimming pools, white sand beach and children's playground

Learn more and book your room

Disney's Coronado Springs Resort

Hear from past attendees

Jean SommerI enjoyed all aspects of the Convention, especially meeting the researchers and hearing more about their work.

– Jean Sommer

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Chance to rub elbows with top PKD experts is reason Jean Sommer plans to go again

Jean SommerJean Sommer has Orlando in her sights. She's already made travel plans to attend the PKD Foundation's PKD National Convention, June 24 to 26, 2016. "I wouldn't miss it!" said the St. Louis, Mo., Chapter and Walk Coordinator.

She attended the Convention in Kansas City in 2014 and the knowledge she gained and friendships she formed there were invaluable.

"I enjoyed all aspects, especially meeting the researchers and hearing more about their work. My husband and I attended different seminars so we could learn as much as possible."

Jean first learned about her PKD and polycystic liver disease (PLD) in 2002. She made a conscious decision to have a positive outlook and enjoy life. "I am facing my fears and the unknowns by learning as much as I can so I am prepared for the day when my kidneys fail."

Attending the Convention is one way to do that. "I highly recommend attending the PKD national convention," Jean said. "All the top dedicated experts, researchers, physicians and PKD Foundation staff come together to provide PKD patients and their families the opportunity to learn more about their disease while providing the latest information on PKD research."

Brittnee & LenaIt was cool to hang out with people my age in the same boat. We learned so much about the latest research, and about understanding your numbers and taking responsibility for your own health. And it's fun. It's a great place to make new friends.

– Brittnee Boyd

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PKD Teen program at Convention helped Brittnee Boyd find her voice

Brittnee & Lena

Initially, Brittnee Boyd had reservations about attending the PKD National Convention 2014. She wasn't sure the Convention's PKD Teen program was her cup of tea. But any doubts Brittnee had quickly faded as she connected with teenagers she shared a unique bond with – living with PKD.

"It was cool to hang out with people my age in the same boat," said Brittnee. "We learned so much about the latest research, and understanding your numbers and taking responsibility for your own health. And it was fun. We hung out and went bowling and out for ice cream. It's a great place to make new friends."

Brittnee is the first known family member with PKD, which makes her situation especially isolating. Asymptomatic until she was 14, she's spent the last several years in and out of ERs and hospital rooms coping with kidney stones, infections and pain. Her mother is Amy Boyd, the Chapter Coordinator in Las Vegas. Amy was happy to see Brittnee flourish among other teens and young adults. "Brittnee's always been quiet about her PKD, but the Convention gave her a safe place to talk about it among peers who truly understand what it's like to be a young person living with PKD. She was able to find her voice, and now she shares her experience with others to raise awareness and be an advocate for people living with the disease."

Amy recommends attending the Convention as a parent. "The PKD Parent seminars were informative, and the chance to talk with other parents and share experiences and ideas was invaluable." They're excited about the Orlando Convention. "I would definitely tell other teenagers to go in 2016," said Brittnee. "There's so much to gain."