News and Information
Welcome to the Our Virtual Chapter!
Thank you for visiting our Web page! Part of the PKD Foundation's mission is to provide programs of support and education to patients as we work towards a treatment and a CURE for PKD. We currently have 60+ Chapters that support PKD patients and their friends and families in cities across the country yet, we understand that we cannot meet the needs of all patients with our volunteer led Chapters alone. That is why we are launching the Virtual Chapter! Beginning January 2014, patients from all cities across the United States can join together, virtually, in support of each other. That is really what the Virtual Chapter is all about!
As we work to ensure that all patients have a place to find the education and support they need, we do want to hear from you! Take our brief survey and tell us how the Virtual Chapter can better assist you.
Registration for spring Walks is now open.
If there is not a Walk in your area, the Virtual Walk is for you. Pick a day, time and location that works for you and Walk for PKD. If you are unable to walk, you can use the Virtual Walk to raise money and awareness for PKD.
For more information on the Virtual Walk, email us at firstname.lastname@example.org or check out us out at the Virtual Walk page.
PKD Foundation News and Announcements
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
Local Events and Meetings
Virtual Chapter Meeting - Reading Nutrition Labels
Our thanks to Kelly Welsh for presenting a webinar about reading nutrition labels! If you were unable to watch the webinar on Oct. 14, we will be posting the recording here in the next few days. Visit the Virtual Chapter Library to view the archived recording.
View the presentation slides.
Reading Nutrition Labels Handout
Meet Kelly Welsh
Kelly Welsh is a Renal Dietitian as well as a PKD patient, wife and mother. Ms. Welsh has conducted numerous nutritional seminars and educational meetings for PKD patients across the country. She has also presented at the National Convention on PKD, and is the author of “Brilliant Eats – Simple and Delicious Recipes for Anyone Who Wants to Be KidneyWise.”
Virtual Chapter Meeting Library
Visit our library of Virtual Chapter Meetings to view recorded presentations!
If you have questions or suggestions for future topics, please contact us at VirtualChapter@pkdcure.org.
Learn More About PKD
Don’t miss out on our series of webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our learning center and to view our FREE educational webinars!
Virtual Walk for PKD
Walk your way in your local community
For more information, click here!
Unite to fight one of the most common genetic diseases worldwide. Polycystic kidney disease (PKD) affects millions of all ages and currently has no treatment or cure. You can help put a treatment within reach. Join the Run for PKD and raise funds and awareness to support the mission of the PKD Foundation. With your support, we can take steps toward a future without PKD.
Choose to participate in our Half Marathon Series, Marathon Series or participate in a local event while you fundraise for PKD! Learn more.
Sign Up to Receive Information From Your Chapter
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.