News and Information
Welcome to the Our Virtual Chapter!
Thank you for visiting our Web page! Part of the PKD Foundation's mission is to provide programs of support and education to patients as we work towards a treatment and a CURE for PKD. We currently have 60+ Chapters that support PKD patients and their friends and families in cities across the country yet, we understand that we cannot meet the needs of all patients with our volunteer led Chapters alone. That is why we are launching the Virtual Chapter! Beginning January 2014, patients from all cities across the United States can join together, virtually, in support of each other. That is really what the Virtual Chapter is all about!
As we work to ensure that all patients have a place to find the education and support they need, we do want to hear from you! Take our brief survey and tell us how the Virtual Chapter can better assist you.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
If there is not a Walk in your area, the Virtual Walk is for you. Pick a day, time and location that works for you and Walk for PKD. If you are unable to walk, you can use the Virtual Walk to raise money and awareness for PKD.
For more information on the Virtual Walk, email us at firstname.lastname@example.org or check out us out at the Virtual Walk page.
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
Virtual Chapter Meeting - Reading Nutrition Labels
Our thanks to Kelly Welsh for presenting a webinar about reading nutrition labels! If you were unable to watch the webinar on Oct. 14, we will be posting the recording here in the next few days. Visit the Virtual Chapter Library to view the archived recording.
View the presentation slides.
Reading Nutrition Labels Handout
Meet Kelly Welsh
Kelly Welsh is a Renal Dietitian as well as a PKD patient, wife and mother. Ms. Welsh has conducted numerous nutritional seminars and educational meetings for PKD patients across the country. She has also presented at the National Convention on PKD, and is the author of “Brilliant Eats – Simple and Delicious Recipes for Anyone Who Wants to Be KidneyWise.”
Virtual Chapter Meeting Library
Visit our library of Virtual Chapter Meetings to view recorded presentations!
If you have questions or suggestions for future topics, please contact us at VirtualChapter@pkdcure.org.
Learn More About PKD
Don’t miss out on our series of webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our learning center and to view our FREE educational webinars!
Virtual Walk for PKD
Walk your way in your local community
For more information, click here!
Unite to fight one of the most common genetic diseases worldwide. Polycystic kidney disease (PKD) affects millions of all ages and currently has no treatment or cure. You can help put a treatment within reach. Join the Run for PKD and raise funds and awareness to support the mission of the PKD Foundation. With your support, we can take steps toward a future without PKD.
Choose to participate in our Half Marathon Series, Marathon Series or participate in a local event while you fundraise for PKD! Learn more.
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.