Twin Cities ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at twincitieschapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

A Message From Your Chapter Coordinator

Greetings from Minnesota!  I recently became the Chapter Coordinator for our state.  I have PKD and am currently one of the subjects in the Tolvaptan study.  PKD has had quite an impact on my family as my uncle died at 55 and my dad at 72 from complications of this disease.  I am interested in doing all I can to raise awareness of the struggle patients and families face with PKD.  Please join with me in our work to find a cure for PKD.  Contact me with any questions. I look forward to meeting as many of you as possible.

Thank you,
Pam Oster


Walk for PKD 2014Walk Season is Here!

Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.

Find Your Walk and Register Now!

 

 


Transplant Games of AmericaTransplant Games of America

 

We had an amazing time at the Transplant Games of America!  Thank you to everyone that stopped by our booth and shared your transplant story with us.  Congratulations to everyone that participated in the games!

 

 

 

View Slideshow!

 

 

 

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Calendar Local Events and Meetings

Meeting Chapter Meetings

 

Twin Cities Chapter Meet & Greet

Saturday, Sept. 6, 2014
10 am - noon

Panera Bread
1901 Madison Ave (Corner of Madison and Highway 22)
Mankato, MN 56001

Join us and find out information about the TEMPO study and participate in a discussion with a clinical trial participant.

RSVP

 If you have questions, or would like more information, please email Pam at twincitieschapter@pkdcure.org.

 


Twin Cities Walk for PKD

Saturday, September 27
Normandale Bandshell

For more information, click here!

Register Today

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Resources Resources

Latest Webinar

Dr. Howard WinokuerTalking to Your Children About PKD

May 19, 2014
Presented by Howard R. Winokuer, Ph.D.

Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.

Watch Now


Blogs

PKD Will Not Beat Me


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.