News and Information
A Message From Your Chapter Coordinator
Greetings from Minnesota! I recently became the Chapter Coordinator for our state. I have PKD and am currently one of the subjects in the Tolvaptan study. PKD has had quite an impact on my family as my uncle died at 55 and my dad at 72 from complications of this disease. I am interested in doing all I can to raise awareness of the struggle patients and families face with PKD. Please join with me in our work to find a cure for PKD. Contact me with any questions. I look forward to meeting as many of you as possible.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
The Twin Cities Chapter does not have any meetings planned at this time, but we would still love to hear from you. If you have questions, or would like more information, please email Pam at email@example.com.
Twin Cities Walk for PKD
The Twin Cities Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
2nd Annual Motor Run for PKD
Saturday, October 4th
Lake Front Bar and Grill35032 Clear Lake LaneLeCenter, MN 56057 Join us for the 2nd Annual Motor Run to benefit the PKD Foundation!
- $20 Driver/$10 Rider
- Freebies and Food Included
Registration: 11 a.m.
Turn Key: 12 p.m.
All proceeds will go to Team Clara's Crew for the 2014 Twin Cities Walk for PKD.
For more information, please contact Tony or Yvonne at Lake Front Bar and Grill at 507-357-4401.
Presented by Neera Dahl, M.D., Ph.D., Assistant Professor of Medicine (Nephrology) at the Yale School of Medicine
Join us for an interactive discussion about PKD including a general overview of both ADPKD and ARPKD, common symptoms and frequently asked questions. Great for newly diagnosed patients as well as those who want to support a friend or family member with PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.