News and Information
A Message From Your Chapter Coordinator
Greetings from Minnesota! I recently became the Chapter Coordinator for our state. I have PKD and am currently one of the subjects in the Tolvaptan study. PKD has had quite an impact on my family as my uncle died at 55 and my dad at 72 from complications of this disease. I am interested in doing all I can to raise awareness of the struggle patients and families face with PKD. Please join with me in our work to find a cure for PKD. Contact me with any questions. I look forward to meeting as many of you as possible.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Twin Cities Chapter Meet & Greet
Saturday, Sept. 6, 2014
10 am - noon
1901 Madison Ave (Corner of Madison and Highway 22)
Mankato, MN 56001
Join us and find out information about the TEMPO study and participate in a discussion with a clinical trial participant.
If you have questions, or would like more information, please email Pam at email@example.com.
Twin Cities Walk for PKD
Saturday, September 27
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.