News and Information
Walk Season is Here!
Join us for your local Walk for PKD and be the difference in 2015!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
The Tampa Chapter is finally hitting the calendar ahead of time to help make 2015 a success! Our PKD patients and their friends and families continue to be our top priority. We hope that you will continue to keep checking back at our Chapter webpage and local calendar. And be sure to follow our Facebook and Twitter pages so you too can stay-up to-date with new information, scientific studies, breaking news, and our national and local events. Managing PKD is tough, and having the PKD Foundation at your side, we hope will provide you a valuable resource to learn, as well as possibly find that much needed support. Our Chapter is here for you, with many folks that have been involved for years, so please contact us anytime at TampaChapter@pkdcure.org.
We have planned our first Support meetings at Panera Bread, which we call our “Quarterly Coffee Break” which occur quarterly on the third Wednesday of that particular month. These meetings are a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions!
It is not too early to be thinking about the 2015 Walk for PKD! Join us in early October at the beautiful Fort Desoto Park for this year’s Tampa Walk for PKD! Registration opens in June. Watch your email for details and a link to register. We are always looking for new volunteers, so if this sounds appealing to you please feel free to contact us! I am truly looking forward to seeing you this year!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although we don't have any meetings scheduled at this time, we would still like to hear from you. Please contact Celia, the Volunteer Chapter Coordinator, at firstname.lastname@example.org.
Tampa Walk for PKD
October 17, 2015
Fort De Soto State Park, Shelter 14
Registration is now open!
To learn more about the Tampa walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Oct. 21, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the new study looking at (pioglitazone) Actos as a potential drug therapy for PKD. Guest speaker Bonnie Blazer-Yost, Ph.D., principal investigator for the study, will join the discussion.
Next National Webinar
Wednesday, Oct. 14, 7 - 8 p.m. CDT
Presented by: Margot Troutt-Keys, LCSW
Join us for a discussion about the emotional toll PKD takes on a person and their family. Learn tips for coping and get advice for staying positive in the face of health adversity.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.