News and Information
A note from your Chapter Coordinator:
The Tampa Chapter is finally hitting the calendar ahead of time to help make 2016 a success! Our PKD patients and their friends and families continue to be our top priority. We hope that you will continue to keep checking back at our Chapter webpage and local calendar. And be sure to follow our Facebook and Twitter pages so you too can stay-up to-date with new information, scientific studies, breaking news, and our national and local events. Managing PKD is tough, and having the PKD Foundation at your side we hope will provide you a valuable resource to learn, as well as possibly find that much needed support. Our Chapter is here for you, with many folks that have been involved for years, so please contact us anytime at email@example.com.
Join us at Panera Bread for our “Quarterly Coffee Break” which occurs quarterly on the third Wednesday of that particular month. These meetings are a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions!
It is not too early to be thinking about the 2016 Walk for PKD! Join us at the beautiful Fort Desoto Park for this year’s Tampa Walk for PKD! Registration opens in May. Watch your email for details and a link to register. We are always looking for new volunteers, so if this sounds appealing to you, please feel free to contact us! I am truly looking forward to seeing you this year!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Tampa Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions about the Chapter, please contact Volunteer Chapter Coordinator Celia at firstname.lastname@example.org.
Tampa Walk for PKD
Save the date!
Sept. 24, 2016
Fort De Soto Park, Shelter 14
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.