Tampa ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at tampachapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


 News and Information News and Information

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

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A note from your Chapter Coordinator:

The Tampa Chapter is finally hitting the calendar ahead of time to help make 2015 a success! Our PKD patients and their friends and families continue to be our top priority. We hope that you will continue to keep checking back at our Chapter webpage and local calendar. And be sure to follow our Facebook and Twitter pages so you too can stay-up to-date with new information, scientific studies, breaking news, and our national and local events. Managing PKD is tough, and having the PKD Foundation at your side, we hope will provide you a valuable resource to learn, as well as possibly find that much needed support. Our Chapter is here for you, with many folks that have been involved for years, so please contact us anytime at TampaChapter@pkdcure.org

We have planned our first Support meetings at Panera Bread, which we call our “Quarterly Coffee Break” which occur quarterly on the third Wednesday of that particular month.  These meetings are a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions! 

It is not too early to be thinking about the 2015 Walk for PKD!  Join us in early October at the beautiful Fort Desoto Park for this year’s Tampa Walk for PKD! Registration opens in June. Watch your email for details and a link to register. We are always looking for new volunteers, so if this sounds appealing to you please feel free to contact us! I am truly looking forward to seeing you this year!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Quarterly Coffee Break 
Wednesday, July 15
6:30 to 7:30 p.m.

Panera Bread
112 South Westshore Blvd.
Tampa, FL 33609

Register Today!

Please join us in a relaxing atmosphere as we share with and support one another this quarter in navigating the "Who - What - Where and When for current scientific drug trials for PKD patients"

If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator at tampachapter@pkdcure.org.

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 Tampa Walk for PKD


Walk for PKD         

             October 17, 2015

             Fort De Soto State Park, Shelter 14

                                       Registration is now open!

        To learn more about the Tampa walk or to donate, click here

                                                Register Now!



Resources Resources

Sign Up to Receive Information From Your Chapter

Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.What are cilia and why do they matter?

PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.


Latest National Webinar

WatchPain and PKD

Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.