Welcome to the PKD Foundation’s Syrcause Chapter Website!
Your local PKD Syracuse Chapter is currently seeking a volunteer Chapter Co-Coordinator and a volunteer Walk Co-Coordinator.
· The Chapter Co-Coordinator will work with the Chapter Coordinator to represent the PKD Foundation in the local community and act as a liaison between the Foundation and local constituents. This volunteer position focuses on education, fundraising and support and requires about one hour a week.
· The Walk Co-Coordinator will work with the Walk Coordinator to organize logistics for the Walk, recruit volunteers, secure sponsorships, and encourage team captains and participants. Responsibilities also include promoting the walk within the community, and raising awareness of PKD and the Foundation. This position requires about one hour a week with more time needed as you approach your Walk event date.
As a local Coordinator, you will be one of the first to hear about mission critical updates when you join a network of more than 100 coordinators across the nation. We have many online support tools and resources and offer in person leadership training in Kansas City in February. The Foundation covers your airfare and most meals for the weekend. It is a great time to meet and connect with other volunteer leaders across the county.
Please contact Cindy LeBlanc, Chapter Relations Manager at email@example.com for the Chapter Co- Coordinator position or Sue Full, Walk for PKD Manager at firstname.lastname@example.org for the Walk Co-Coordinator position.
Better Together at the PKD National Convention
June 20–22, 2014
Kansas City, Mo.
This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.
Visit pkdcure.org/convention to register and learn more.
Transplant Games of America
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
The Syracuse Chapter does not have any local meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email us at email@example.com.
Check back for meeting updates!
The Syracuse Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.