St. Louis ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at stlouischapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

News and Information News and Information 

A note from your Chapter Coordinator:

Greetings!

The St. Louis Chapter meets the 2nd Monday of the month in Webster Groves, Mo. starting March 14. I have lined up nephrologists from St. Louis University and from Washington University to speak at our meetings. Some of the topics include: chronic kidney disease, kidney transplantation, kidney stones, reading your labs, stages of kidney failure, and living donors. View the Chapter meeting schedule below.  

NEW: Guest speaker meetings will be available as conference calls for anyone who lives too far away, has health issues, or has schedule conflicts that prevents them from traveling to the meetings. Please let me know, ASAP, if you will be participating via conference call. I encourage everyone local, to attend the meetings to give the guest speaker a nice turn out. The registration and meeting schedule will be on our Chapter website.  

The 3rd Annual Kidney Fight Trivia Night Fundraiser is April 30 in Bridgeton, Mo. The cost is $20 per person or $160 per table of 8 people. Please contact Kris Conant if you are forming a table, want to donate a basket or items, or know a company who wants to purchase ad space in our ad booklet. See below for more details. 

NEW: We are busy planning Applebee's 15% of food bill fundraiser. More details to come.

Please mark your calendar for the 2016 St. Louis Walk for PKD is on October 16, 2016, at Tower Grove Park. 

Sincerely,

Jean Sommer 


PKD Patient Handbook

 

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

 

 

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn from local medical professionals in our community at our educational meetings? Would you like to see more events happening in your local county or community? 

The local volunteers of the St. Louis Chapter meet the second Monday of the month except during winter break (December, January, and February) and the Walk for PKD month (October 2016). We are available for support and to share our experiences about living with PKD. If you would like to speak with someone or attend a chapter get together or meeting, please email stlouischapter@pkdcure.org.

St. Louis Chapter Education Meeting

Monday, May 9
7 to 8:30 p.m.

Exegy, Inc - Owen Ridge Campus
349 Marshall Ave, Suite 100
Webster Groves, MO 63119

Topic
: Living Kidney Donation
Speaker: Seth Goldberg, M.D.

Join the St. Louis Chapter to hear more about living kidney donation. Dr. Goldberg, nephrologist from Washington University/Barnes Jewish Hospital, will present on the following:

  • benefits of and how to find a living donor
  • process of being a living donor
  • kidney paired donation

To read Dr. Goldberg's bio, click here.

There is an option to attend the meeting via conference call for those that live further away. Please email Jean at  stlouischapter@pkdcure.org no later than May 8 for this option.

DirectionsOwen Ridge Campus has two entrances. Please use the lower entrance (bottom of the hill). Go to the second building on the right. It is a secure building. Please text or call 618-210-1901 to be let inside. Leave a message if I don't answer.

Register

If you have any questions about this meeting, please contact Jean at stlouischapter@pkdcure.org.

2016 St. Louis Chapter Schedule

  • Saturday, April 30 - Kidney Fight Trivia Night fundraiser: Doors open 6:00 p.m. at District 9 Machinists’ Hall, 12365 St. Charles Rock Rd., Bridgeton, Mo. Cost $20 per person or $160 per table of 8 people.
  • Wednesday, May 11 - Glen Carbon, IL Applebee's fundraiser. From 4 to 9 p.m., present this flyer when dining in or carrying out and fifteen percent of your order will benefit the PKD Foundation.
  • Wednesday, June 8 -  Creve Coeur, MO Applebee's fundraiser. From 4 to 9 p.m., present this flyer when dining in or carrying out and fifteen percent of your order will benefit the PKD Foundation.
  • Monday, June 13Seth Goldberg, M.D., nephrologist from Washington University/Barnes Jewish Hospital, will present 'Reading and understanding your labs' and 'What happens to your body at the different stages of kidney failure.' Register
  • Monday, July 11 - Ice cream social - Breyer’s vanilla ice cream with topping choices of Oreo cookies, M&M’s, and/or Reece’s peanut butter cups. Gary and Jean Sommer will go over their notes and present highlights from the 2016 PKD National Convention. Register
  • Monday, Aug. 8 - Chocolate cake social - enjoy eating chocolate cake while listening to Gary and Jean Sommer go over their notes and present highlights from the 2016 PKD National Convention.
  • Monday, Sept. 12 - Walk planning meeting
  • Sunday, Oct. 16 - St. Louis Walk for PKD
  • Monday, Nov. 7 - guest speaker and topic to be announced.

If you missed our last Chapter meeting, take a moment to review the minutes. 

10.12.2015 Chapter Education Meeting Minutes - Hypertension

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St. Louis Kidney Fight Trivia Night

April 30

6 to 11 p.m.

 

Machinists’ District 9 Building

12365 St. Charles Rock Rd.

Bridgeton, MO 63044

 

Join us for our annual Kidney Fight Trivia Night to raise funds for the PKD Foundation! Entry fee is $20 per person or $160 per table of 8. To reserve a table, donate an item to the silent auction, or ask about sponsorships, contact Kris Conant at 314.973.6597 or KidneyFightTriviaNight@gmail.com

To view the flyer, click here.

For the Sponsorship Ad Space form, click here.


Applebee's Dining to Donate Fundraiser

May 11 and June 8

4 to 9 p.m.

 

Join the St. Louis Chapter at Applebee's for our Dining to Donate fundraiser to support the PKD Foundation. Fifteen percent of your dine in or carryout order will be donated to the PKD Foundation when you print and present this flyer. Fundraisers will take place on May 11 in Glenn Carbon, IL and on June 8 in Creve Coeur, MO. 

To print the Glen Carbon, IL flyer, click here.

To print the Creve Coeur, MO flyer, click here.


St. Louis Walk for PKD

          

Thank you to all who joined us for the 2015 St. Louis Walk for PKD!

We enjoyed connecting with all of you.                                          

   Save the date!
   Oct. 16, 2016
   Tower Grove Park, Sons of Rest Pavilion

 

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Would you like to get involved with planning events?

Would you like to see more events happening in your local county or community? Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD, restaurant percentage of food sales fundraiser, Kidney Fight Trivia Night events, or spreading PKD awareness. Email Jean Sommer, Chapter Coordinator at stlouischapter@pkdcure.org for more information.

 


Resources Resources

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Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Total kidney volume and PKD

Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


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PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.