St. Louis ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


News and Information News and Information

PKD Foundation News and Announcements

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

A note from your Chapter Coordinator:

The St. Louis Chapter strives to provide helpful information as you manage living with PKD. We meet the 2nd Monday of the month. Please join us! Our Chapter is here for you so contact us anytime at and visit our website for details of our education, support, or event planning meetings and fundraisers.

Our Chapter hosted education events and support/education meetings such as: "A Day of Learning" virtual conference, "I have PKD! Now What?", Clinical Trials, and "What is new with the PKD Foundation". 

We host several fundraisers (Kidney Fight Trivia Night in the spring, California Pizza Kitchen in June, and the Walk for PKD in September) throughout the year.

On July 13, we are having an Ice Cream Social Meeting. Three St. Louis Chapter Members have volunteered to share their kidney transplant experiences. Kris received her kidney from her brother 6 1/2 years ago. Mary received her kidney from her daughter 4 1/2 years ago. Roz received a kidney from a deceased donor 10 months ago. 

It isn’t too early to think about 2015 Walk for PKD. Join us on Sunday, Sept. 13 at Tower Grove Park. On-line registration opens June 10


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Calendar Local Events and Meetings

Meeting Chapter Meetings

Ice Cream Social and Support Meeting
Monday, July 13
7 - 8:30 p.m.
Exegy, Inc. - Owen Ridge Campus
349 Marshall Ave.
Webster Groves, MO 63119

Join us for this month's ice cream social and support meeting! We will be discussing kidney transplant and two St. Louis Chapter members have volunteered to share their kidney transplant experiences. Kris received her kidney from her brother six and a half years ago. Roz received a kidney from a deceased donor ten months ago.

Entrance Directions:

Owen Ridge Campus has two entrances. Please use the lower entrance at the bottom of the hill. (Note: If you use the top entrance, it will be difficult to find the building). You will be pulling directly into a huge parking lot which will be mostly empty. It is the second building on the right and there will be a PKD sign on the door. It is a secure building so please call or text Jean at 618.210.1901 to be let inside. 

For more information, please contact our Volunteer Chapter Coordinator Jean at
Save the date for our next meeting:
Monday, August 10 - Walk Planning Meeting

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California Pizza Kitchen Event

Tuesday, Wednesday and Thursday

June 16, 17, 18, 2015

Dine in or carry out at one of four California Pizza Kitchens to raise funds for the 2015 St. Louis Walk for PKD. Bring this flyer and present it to your server and 20% of your bill will be donated to the PKD Foundation. For more information, please click here

Participating Locations:

West County Mall
109 W County Mall
Saint Louis Galleria
1493 St. Galleria
284 Chesterfield Mall
Creve Coeur
10590 Old Olive St.


St. Louis Walk for PKD


Walk for PKD   

         September 13, 2015

                         Tower Grove Park

                                     Registration is now open!

        To learn more about the St. Louis walk or to donate, click here

                                                Register Now!


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Resources Resources

Sign Up to Receive Information From Your Chapter

Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.What are cilia and why do they matter?

PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.


Latest National Webinar

WatchPain and PKD

Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.