St. Louis ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at stlouischapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

PKD Foundation News and Announcements

 

What's New in PKD: A Day of LearningWhat's New in PKD 2015: A Day of Learning

On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.


 


A note from your Chapter Coordinator:


The St. Louis Chapter is gearing up for a wonderful 2015 and we want you to join us! We strive to provide helpful information as you manage living with PKD. Our Chapter is here for you so contact us anytime at stlouischapter@pkdcure.org and visit our website for details of our meetings, fundraisers and virtual conference.


Enjoy the Kidney Fight Trivia Night Fundraiser, May 16! Contact Kris Conant at 314-973-6597 to register. Entry fee is $140/table or $20 individually.

It isn’t too early to think about the 2015 Walk for PKD. Join us on Sunday, Sept.13 at Tower Grove Park. Registration opens in June. Watch your email for details and registration information.

 

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter Education Meeting:

Thank you to those who attended our event on Monday, April 13! A special thank you to our guest speaker, Nicole Harr, Chapter Education Manager from the PKD Foundation who presented  'I have PKD, Now What?' 

Save the date for our next meeting:

Monday, May 11
7 - 8:30 p.m.

Location:
Exegy Inc. - Owen Ridge Campus 
349 Marshall Ave
Webster Groves, MO 63119

We will discuss Trivia Night & Walk for PKD. We will also be introducing the book 'Conquering Life's Curves' by Ed Hearn with Gene Frenette.

Check back closer to the event for online registration!

If you have questions about the event please email our Volunteer Chapter Coordinator, Jean, at stlouischapter@pkdcure.org.

 

Directions:

Closest intersection is S Brentwood Blvd & Marshall Ave
There are two entrances into Owen Ridge Campus. Please use the lower entrance which is midway down the hill. Drive straight back to the 2nd building on your right. Their will be a small PKD sign on the door. The building is a secure building. Text or call Jean Sommer, Volunteer St. Louis Chapter Coordinator, at 618-210-1901 to be let inside. 
 
 

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2015 Bank of America Chicago Marathon

Sunday, October 11, 2015

The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease. Never before have we been closer to a treatment, and we need your help. Run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease.

For more information or to express your interest in the team, email us at runforpkd@pkdcure.org.  


Save the Date: Kidney Fight Trivia Night

Saturday, May 16, 2015

6:00pm

Machinists' District 9 Building
Bridgeton, MO 63044

 

Individual Ticket: $20

Table of 8: $140

For questions, please call Kris Conant 314-973-6597.

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St. Louis Walk for PKD

 

Walk for PKD    Save the Date

       September 13, 2015

        Tower Grove Park

 

       Registration Opens

           June 1, 2015

 

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Resources Resources

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Latest Free Webinar

What's New in PKD: A Day of LearningWhat's New in PKD 2015: A Day of Learning

On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.


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PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Phone: 800.443.9441 | Fax: 843.216.6100
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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.