St. Louis ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


News and Information News and Information

Save the date: PKD National Convention 2016

PKD National Convention 2016

Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.

Check out what to expect

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

A note from your Chapter Coordinator:

The St. Louis Chapter strives to provide helpful information as you manage living with PKD. We meet the 2nd Monday of the month. Please join us! Our Chapter is here for you so contact us anytime at and visit our website for details of our education, support, or event planning meetings and fundraisers.

Our Chapter hosted education events and support/education meetings such as: "A Day of Learning" virtual conference, "I have PKD! Now What?", Clinical Trials, and "What is new with the PKD Foundation". 

We host several fundraisers (Kidney Fight Trivia Night in the spring, California Pizza Kitchen in June, and the Walk for PKD in September) throughout the year.

On July 13, we are having an Ice Cream Social Meeting. Three St. Louis Chapter Members have volunteered to share their kidney transplant experiences. Kris received her kidney from her brother 6 1/2 years ago. Mary received her kidney from her daughter 4 1/2 years ago. Roz received a kidney from a deceased donor 10 months ago. 

It isn’t too early to think about 2015 Walk for PKD. Join us on Sunday, Sept. 13 at Tower Grove Park. On-line registration opens June 10


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Calendar Local Events and Meetings

Meeting Chapter Meetings


St. Louis Walk Planning Meeting

Monday, August 10
7 to 8:30 p.m.
Exegy, Inc. - Owen Ridge Campus
349 Marshall Ave., Suite 100
Webster Groves, MO 63119

Please join us as we finalize the details for the St. Louis Walk for PKD. We will discuss event set-up, activities, clean-up and where we're at with securing in-kind donations, etc. For more information, please contact our Volunteer Chapter Coordinator Jean at


Entrance Directions:

Please use the lower entrance at the bottom of the hill. Go to the second building on the right which is a secure building and look for a PKD sign on the door. Please call or text Jean at 618-210-1901 to be let inside. If she doesn't answer, please leave a voice message.

Hope to see you there! 

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St. Louis Walk for PKD


Walk for PKD   

         September 13, 2015

                         Tower Grove Park

                                     Registration is now open!

        To learn more about the St. Louis walk or to donate, click here

                                                Register Now!


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Resources Resources

Sign Up to Receive Information From Your Chapter

Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.How do cysts form?

Wednesday, Aug. 19, 12 - 1 p.m. CDT

PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will explain how cysts form and why they are so problematic. He will also take time at the end of his presentation to answer your questions.


Next National Webinar

Dr. Arlene ChapmanKidney Stones

Tuesday, Aug. 18, 7 - 8 p.m. CDT

Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman about what kidney stones are, why they happen and what can be done to treat them.



PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.