News and Information
Save the date: PKD National Convention 2016
Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
The St. Louis Chapter strives to provide helpful information as you manage living with PKD. We meet the 2nd Monday of the month. Please join us! Our Chapter is here for you so contact us anytime at email@example.com and visit our website for details of our education, support, or event planning meetings and fundraisers.
Our Chapter hosted education events and support/education meetings such as: "A Day of Learning" virtual conference, "I have PKD! Now What?", Clinical Trials, and "What is new with the PKD Foundation".
We host several fundraisers (Kidney Fight Trivia Night in the spring, California Pizza Kitchen in June, and the Walk for PKD in September) throughout the year.
On July 13, we are having an Ice Cream Social Meeting. Three St. Louis Chapter Members have volunteered to share their kidney transplant experiences. Kris received her kidney from her brother 6 1/2 years ago. Mary received her kidney from her daughter 4 1/2 years ago. Roz received a kidney from a deceased donor 10 months ago.
It isn’t too early to think about 2015 Walk for PKD. Join us on Sunday, Sept. 13 at Tower Grove Park. On-line registration opens June 10.
Local Events and Meetings
St. Louis Walk Planning Meeting
Monday, August 10
7 to 8:30 p.m.
Exegy, Inc. - Owen Ridge Campus
349 Marshall Ave., Suite 100
Webster Groves, MO 63119
Please join us as we finalize the details for the St. Louis Walk for PKD. We will discuss event set-up, activities, clean-up and where we're at with securing in-kind donations, etc. For more information, please contact our Volunteer Chapter Coordinator Jean at firstname.lastname@example.org.
Please use the lower entrance at the bottom of the hill. Go to the second building on the right which is a secure building and look for a PKD sign on the door. Please call or text Jean at 618-210-1901 to be let inside. If she doesn't answer, please leave a voice message.
Hope to see you there!
St. Louis Walk for PKD
September 13, 2015
Tower Grove Park
Registration is now open!
To learn more about the St. Louis walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Aug. 19, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will explain how cysts form and why they are so problematic. He will also take time at the end of his presentation to answer your questions.
Next National Webinar
Tuesday, Aug. 18, 7 - 8 p.m. CDT
Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman about what kidney stones are, why they happen and what can be done to treat them.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.