St. Louis ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at stlouischapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

News and Information News and Information

 

Walk for PKD Walk Season is Here!

Join us for your local Walk for PKD and be the difference in 2015!

 

Register Today!

 

 


PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

A note from your Chapter Coordinator:

The St. Louis Chapter strives to provide helpful information as you manage living with PKD. We meet the 2nd Monday of the month. Please join us! Our Chapter is here for you so contact us anytime at stlouischapter@pkdcure.org and visit our website for details of our education, support, or event planning meetings and fundraisers.

Our Chapter hosted education events and support/education meetings such as: "A Day of Learning" virtual conference, "I have PKD! Now What?", Clinical Trials, and "What is new with the PKD Foundation". 

We host several fundraisers (Kidney Fight Trivia Night in the spring, California Pizza Kitchen in June, and the Walk for PKD in September) throughout the year.

On July 13, we are having an Ice Cream Social Meeting. Three St. Louis Chapter Members have volunteered to share their kidney transplant experiences. Kris received her kidney from her brother 6 1/2 years ago. Mary received her kidney from her daughter 4 1/2 years ago. Roz received a kidney from a deceased donor 10 months ago. 

It isn’t too early to think about 2015 Walk for PKD. Join us on Sunday, Sept. 13 at Tower Grove Park. On-line registration opens June 10

 

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Calendar Local Events and Meetings

Meeting Chapter Meetings

 
St. Louis Education Meeting
 
Monday, October 12
7 to 8:30 p.m.
 
Exegy, Inc. - Owen Ridge Campus
349 Marshall Ave., Suite 100
Webster Groves, MO 63119
 
Topic: PKD Hypertension

Speakers: Dr. Paul Schmitz and Amy Mosman
                     Division/Hypertension Clinic
                     St. Louis University
 
Please join us for a presentation on PKD and hypertension. Dr. Paul Schmitz and Amy Mosman will be our guest speakers to help us better understand how hypertension affects our health and how to control it.
 
For more information, please contact our Volunteer Chapter Coordinator Jean at stlouischapter@pkdcure.org


Entrance Directions:

Please use the lower entrance at the bottom of the hill. Go to the second building on the right which is a secure building and look for a PKD sign on the door. Please call or text Jean at 618-210-1901 to be let inside. If she doesn't answer, please leave a voice message.

Hope to see you there!   

Register

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Save the date:

Monday, November 9
7 to 8:30 p.m.

Exegy, Inc. - Owen Ridge Campus
349 Marshall Ave., Suite 100
Webster Groves, MO 63119 
 
Topic: Dialysis

Speaker: Dr. Seth Goldberg, Barnes Jewish Hospital/Washington University
 
For more information, please contact our Volunteer Chapter Coordinator Jean at stlouischapter@pkdcure.org      
 

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St. Louis Walk for PKD

 

Walk for PKD   

         September 13, 2015

                         Tower Grove Park

                                     Registration is now open!

        To learn more about the St. Louis walk or to donate, click here

                                                Register Now!

 

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Resources Resources

Sign Up to Receive Information From Your Chapter


Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Basic function of the kidneys

Wednesday, Sept. 16, 12 - 1 p.m. CDT

PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the function of the kidney and why they're so important.

Register


Latest National Webinar

WebinarKidney Stones

Kidney stones can be painful and occur more often in PKD patients than in the general population. Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman will help you understand what kidney stones are, why they happen and what can be done to treat them.

Watch Now


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.