Welcome to the

St. Louis

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

St. Louis Community Meeting

Complications and Progression of PKD

Join us for our next Community meeting via video conference. Dr. Bahar Bastani, from St. Louis University, will lead a discussion about complications and progression of PKD.

Share your PKD journey and hear from others within the community who understand what you are experiencing.

Event Details:

Monday, April 8, 2024
7 pm – 8:30 pm

Video conference link will be emailed upon registration.

Meet Our Speaker
Dr. Bahar Bastani

Faculty of Medicine and Nephrology (Clinician Scientist) at Saint Louis University School of Medicine, Saint Louis, Missouri since 1991.

He has published 219 medical manuscripts and book chapters. His book, “99 Pearls of Wisdom”, was published in March of 2010.

He was awarded the Osler Award, Best Teacher at Saint Louis University School of Medicine, in 1995, 1998 and 2009. He has been nominated among “the best doctors in America” each year since 2003.

Dr. Bahar Bastani was born in Abadan, Iran. He earned his M.D. in 1977 and specialty in internal medicine in 1980 from Shiraz University of Medical Sciences (formerly known as Pahlavi University). He was Head of the Health Department in Jahrom City for two years and Chief of Medicine at Mohammadi Hospital in Bandar Abbas for one year.

In 1984, Dr. Bastani immigrated to the United States. He completed two years of Fellowship in Nephrology at the University of Virginia, Charlottesville, two years of Senior Residency and Chief Residency in Internal Medicine at University of Wisconsin in Milwaukee, and three years of Research Fellowship at Washington University School of Medicine in Saint Louis, Missouri.

In 1991, Dr. Bastani joined the faculty of Saint Louis University Since 1999, he has been Co-director, Renal Stone Clinic at Saint Louis University School of Medicine. In 2000 he added Professor of Medicine – Nephrology at Saint Louis University to his credentials. At this time, he became a Nephrology consultant to the Department of OB/GYN at Saint Mary’s Hospital and Medical Director of Renal Transplantation at Saint Louis University Health Sciences Center.

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Jean Sommer

PKD Connect Ambassador & walk ambassador

I have been the volunteer St. Louis Walk Ambassador since 2014 and the St. Louis Connect Ambassador since 2015. I decided to volunteer because, as an ADPKD and PLD patient, I wanted to learn as much as I could about my conditions and I wanted to make a difference in the lives of others.

Learning about PKD and PLD from speakers at local events and national PKD Foundation events, like the PKDCON, also helped me face my fear of these diseases. I was very much at peace when I had my liver transplant in August 2016 and living donor kidney transplant in November 2023. 

As a PKD Connect Ambassador, I hope that I can help ease the fears of others by providing support and education meetings for my Community members. As the Walk Ambassador, I rally and gather together the St. Louis PKD Community for our annual Walk for PKD. I was also inspired to volunteer because PKD runs in my family—both my sister and my brother are affected by this disease. In addition, I have two children who each have a 50 percent chance of having PKD. I enjoy organizing the Walk for PKD because I want there to be treatments or a cure so that my children, and others, will not have to go through what I have gone through.

 

Amber Sommer

Amber Sommer

Walk for PKD Ambassador

 

 

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Page last updated July 2023