Welcome to the

South Florida

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

South Florida
Walk for PKD

Saturday, October 14

TY Park, Shelter 11

Registration/site opens: 9 a.m.

Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/southflorida.

If you have questions, email us at southfloridawalk@pkdcure.org.

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Stephanie Seaborg

PKD Connect Ambassador

After graduating college I worked in finance before having children. I was a stay at home mom raising a son and daughter and did volunteer work in the school and community. Since my husband retired we have been spending more than half of the year in Florida where I have been actively involved in a number of committees in the community where we live.

This past January I learned that my 10 year old grandson has PKD. He was asymptomatic but he had a bump on his back which turned out to be a hematoma but the ultrasound showed that he has PKD. Needless to say I was quite shocked as I had never heard of PKD. I told myself I would do whatever I could to help the cause. I have a good friend who has been a real inspiration to me. When he lost his six year old granddaughter to glioblastoma he worked tirelessly to centralize the database between patients and doctors and his work has made an enormous difference in the treatment of brain cancer. We all know that life isn’t without its challenges but I’d like to think that when they come our way we try to find something positive to help get us through.

Sofia Celis

Walk for PKD Ambassador

 I am your new Walk for PKD Ambassador. Ask me about the South Florida Walk!

Page last updated Aug. 2023