News and Information
A Note from your coordintor
South Florida Chapter Shines ON!
The South Florida Chapter started 2016 welcoming our wonderful partnership with DaVita/Kidney Smart. A Kidney Smart meeting was held at the DaVita/ Hallandale Beach location on Saturday Jan. 23, Roxanna Carmenate-Pupo, MSW presented a clear and very informative power point session. Bagels, fruit and giveaways courtesy of Kidney Smart were appreciated.
*Our next meeting is being planned for April 9 in Coral Springs. A meeting will be planned in the future for the Lake Worth area. We are actively planning to make the meeting locations convenient to all those who wish to attend!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although we don't have any meetings scheduled at this time we would still like to hear from you. If you have any questions concerning the Chapter, contact our Volunteer Chapter Coordinator, Susan at email@example.com.
Sixth Annual Miami Kidney Casino
7 to 11 p.m.
Coral Gables Museum285 Aragon AvenueCoral Gables, FL 33134
Join 'All In' Presenting Sponsor, The Haggard Law Firm, for the 6th Annual Kidney Casino for a Cure. Enjoy an evening of gaming, live music, drinks and hors d'oeuvres for a cause at the Coral Gables Museum. Proceeds benefit the PKD Foundation. Tickets are $100 per person. Includes two drinks and 'fun money.'
For more information, click here for the event website.
South Florida Walk for PKD
Thank you to all who joined us for the 2015 South Florida Walk for PKD!
We had a great time! Check out some of our favorite memories from Walk day here.
Save the date!
Nov. 6, 2016
For more information contact Volunteer Walk Coordinator, Georgina Habermann at firstname.lastname@example.org.
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.