Welcome to the

Seattle

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Seattle Community Meeting

Join us for our next Community meeting via video conference! Share your PKD journey and hear from others within the community who understand what you are experiencing. 

Event Details

Saturday, March 30, 2024
10 am – 11 am

Video conference link will be emailed upon registration.

Save the Date!

Save the date and plan to join our upcoming meetings! Dates are subject to change so please check back.

April 27, 2024

May 25, 2024

June 29, 2024

July 27, 2024

August 24, 2024

September 28, 2024

 

 

 

 

 

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Lara Macklin

PKD Connect Ambassador

As your Seattle area PKD Connect Ambassador, I would like to thank you for taking the time to visit our site as this is where your local connection to the PKD Foundation begins.

Mike Garvey

Walk for PKD Ambassador

Page last updated July 2023