Seattle ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at seattlechapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

What can we do for you?

The Seattle Chapter wants to hear from YOU! Please take our SURVEY and let us know what programs interest you the most.

I look forward to hearing from you!
Lara Macklin
Seattle Chapter Coordinator
seattlechapter@pkdcure.org

Hello, my name is Lara Macklin and I am excited you stopped by! As your Seattle area Chapter Coordinator I would like to thank you for taking the time to visit our site as this is where your local connection to the PKD Foundation begins. We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. I can almost guarantee you will make some new friends as well! Meet patients and families in the Seattle area that have shared their voice with us. We are passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD, so that no one has to suffer the full effects of this disease. There is also an on-line support group site to allow for open conversations about PKD, ask questions and share thoughts with other Seattle locals. The site will be moderated and all posts should be relevant to PKD. If you would like to join this group please click on the link below and subscribe. We look forward to "meeting you" on-line!

 

Seattle Voices of PKD

 

PKDseattle-subscribe@yahoogroups.com 

Thanks to Northwest Kidney Centers! NKC is a major supporter fo the Seattle Chapter. They always have a team at the Walk for PKD and invite us to their many events. While we all hope to never need their dialysis service, it sure is nice to know they're there AND will take good care of us! Thanks NKC!

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PKD Foundation News and Announcements

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Seattle Chapter Meet & Greet Family Picnic

Saturday, Aug. 29
11 a.m. -2 p.m.

Golden Gardens Park
8498 Seaview Place NW
Seattle, WA 98117

Click here for park information or download the site map

I hope everyone is enjoying the start to summer and some of this beautiful weather we are having in the PNW!  The Seattle Chapter would like to invite you and your families to an end of summer picnic and meet and greet.  We have enjoyed getting to know a number of you through our monthly coffee chats and thought something even more casual with family members would be fun.

Please bring a picnic lunch for your family with a beverage and something to share if you like (optional), chairs / blankets and if bringing kiddos something to help entertain along the beach front if needed.  There is a play area but not directly near the tables.
We will have 3 tables reserved, and there are grills available, but you will need to bring all the grilling supplies if you wish to use them.
 
We are looking forward to seeing you!
 
Sincerely,
Lara Macklin – Seattle Chapter Coordinator
Bev Marcus – Seattle Walk Co-Chair
Ren Brown – Seattle Walk Co-Chair
 

The Seattle Chapter holds monthly casual gatherings in Seattle and we would love to hear from you!  Please email our Volunteer Chapter Coordinator Lara at seattlechapter@pkdcure.org for dates and times.

 

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 Seattle Walk for PKD

 

Walk for PKD 

              October 4, 2015

                            Green Lake Park 

                                        Registration is now open!

        To learn more about the Seattle walk or to donate, click here

                                                Register Now!

 

 

 

 

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Resources Resources

Sign Up to Receive Information From Your Chapter


Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.What are cilia and why do they matter?

PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.

Register


Latest National Webinar

WatchPain and PKD

Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.