News and Information
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The Seattle Chapter wants to hear from YOU! Please take our SURVEY and let us know what programs interest you the most.
I look forward to hearing from you!
Seattle Chapter Coordinator
Hello, my name is Lara Macklin and I am excited you stopped by! As your Seattle area Chapter Coordinator I would like to thank you for taking the time to visit our site as this is where your local connection to the PKD Foundation begins. We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. I can almost guarantee you will make some new friends as well! We are passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD, so that no one has to suffer the full effects of this disease. There is also an on-line support group site to allow for open conversations about PKD, ask questions and share thoughts with other Seattle locals. The site will be moderated and all posts should be relevant to PKD. If you would like to join this group please click on the link below and subscribe. We look forward to "meeting you" on-line!
Thanks to Northwest Kidney Centers! NKC is a major supporter fo the Seattle Chapter. They always have a team at the Walk for PKD and invite us to their many events. While we all hope to never need their dialysis service, it sure is nice to know they're there AND will take good care of us! Thanks NKC!
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Education Meeting - Nutrition Class
Saturday, Sept. 13
10:00 am - noon
Northwest Kidney Center
Seattle, WA 98122
Please join the Seattle Chapter on September 13th for a Nutrition Class by renal dietitian Katy Wilkens from the Northwest Kidney Center. The focus will be on tips for eating with a Chronic Kidney Disease.
If you are currently on dialysis or have a specific nutrition concern, please email Lara at firstname.lastname@example.org so we can try and accommodate your request.
Space is limited due to the size of the demo kitchen so please RSVP below.
Free parking is available behind the building.
If you would like to connect with our Volunteer Chapter Coordinator, please email us at email@example.com.
Get to know our speaker, Katy Wilkens:
For Katy Wilkens, the primary role of the renal dietitian is to teach. Whether it is writing, speaking at events, educating peers and students, demonstrating healthy cooking techniques on television, developing patient education materials or sitting down with one of her hemodialysis patients, Katy finds it rewarding to offer information that can lead others to a healthier future.
The Nutrition and Fitness Services manager of Northwest Kidney Centers, Katy has worked in renal nutrition for over 35 years. In addition to helping her patients navigate their
dialysis diet, she mentors multiple dietetic students in rotations at Northwest Kidney Centers each year and educates fellow health care professionals such as physicians, renal fellows, nurses and social workers.
Katy founded the Washington State Council on Renal Nutrition and the Northwest Renal Dietitians Conference; helping renal dietitians across the Northwest region connect and network. She is heavily involved in community outreach, helping plan Northwest Kidney Centers’ Kidney Health Fest for African American Families each year, speaking at numerous community health events and nutrition and renal conferences, and discussing healthy nutrition on the radio and TV.
Katy is the author of the renal chapter in the internationally-recognized “Food, Nutrition and Diet Therapy” textbook and the original American Dietetic Associations Suggested Guidelines for the Care of Renal Patients, Ms. Wilkens is the long time editor and author of a nutrition workbook for patients, “Nutrition, the Art of Good Eating for People on Dialysis”. She writes regular nutrition columns for the Ballard News-Tribune, AgeWise King County, King County’s Senior Services newsletter and Renal Business Today.
Seattle Walk for PKD
Sunday, October 26
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.