Seattle ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at seattlechapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

What can we do for you?

The Seattle Chapter wants to hear from YOU! Please take our SURVEY and let us know what programs interest you the most.

  I look forward to hearing from you!
Lara Macklin
Seattle Chapter Coordinator
seattlechapter@pkdcure.org

Hello, my name is Lara Macklin and I am excited you stopped by! As your Seattle area Chapter Coordinator I would like to thank you for taking the time to visit our site as this is where your local connection to the PKD Foundation begins.

We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. I can almost guarantee you will make some new friends as well. Meet patients and families in the Seattle area that have shared their voice with us.

Below are the dates of our casual monthly meet-and-greets.  Feel free to come for a little or as long as you like and learn about the inspirational lives of others in the area living with PKD.  Our community here in Seattle is as diverse as the disease itself and passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD, so that no one has to suffer the full effects of this disease.


Local Research Study 

The Kidney Research Institutes Dr. Benjamin (Beno) Freedman has been awarded a 2016 PKD Foundation research grant for his "Modeling Human PKD Cystogenesis With Pluripotent Stem Cells" study.

For more information on this lab and how to become involved in the study, visit his web site: http://freedmanlab.com/.


PKD Patient Handbook

 

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Join the Seattle Chapter for casual conversation and fellowship with others in the local PKD community. Stay for a little or as long as you like. We will continue to meet the first weekend of each month (pending holidays), alternating between Saturday and Sunday from 10am-noon. We look forward to seeing you!

NOTE: Please check the web site for location updates. Please email our Volunteer Chapter Coordinator Lara at seattlechapter@pkdcure.org if you have any questions. 

Seattle Chapter Coffee Chat

Saturday, May 7
10 to noon

Espresso Vivace
227 Yale Ave. N.
Seattle, WA 98109

Register

Please email our Volunteer Chapter Coordinator Lara at seattlechapter@pkdcure.org if you have any questions. 


Upcoming meetings

Saturday, June 4
Sunday, July 10
Saturday, Aug. 6 (family picnic)

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Seattle Walk for PKD

         

Thank you to all who joined us for the 2015 Seattle Walk for PKD!

We had a great time! Check out some of our favorite memories from Walk day here.

 

   Save the date!
   Oct. 9, 2016
   Green Lake Park

                                    

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Resources Resources

Sign Up to Receive Information From Your Chapter


Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Total kidney volume and PKD

Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.