News and Information
What can we do for you?
The Seattle Chapter wants to hear from YOU! Please take our SURVEY and let us know what programs interest you the most.
I look forward to hearing from you!
Seattle Chapter Coordinator
Hello, my name is Lara Macklin and I am excited you stopped by! As your Seattle area Chapter Coordinator I would like to thank you for taking the time to visit our site as this is where your local connection to the PKD Foundation begins. We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. I can almost guarantee you will make some new friends as well! Meet patients and families in the Seattle area that have shared their voice with us. We are passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD, so that no one has to suffer the full effects of this disease. There is also an on-line support group site to allow for open conversations about PKD, ask questions and share thoughts with other Seattle locals. The site will be moderated and all posts should be relevant to PKD. If you would like to join this group please click on the link below and subscribe. We look forward to "meeting you" on-line!
Seattle Voices of PKD
Thanks to Northwest Kidney Centers! NKC is a major supporter fo the Seattle Chapter. They always have a team at the Walk for PKD and invite us to their many events. While we all hope to never need their dialysis service, it sure is nice to know they're there AND will take good care of us! Thanks NKC!
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Seattle Chapter Meet & Greet Family Picnic
Saturday, Aug. 29
11 a.m. -2 p.m.
Golden Gardens Park
8498 Seaview Place NW
Seattle, WA 98117
Click here for park information or download the site map!
I hope everyone is enjoying the start to summer and some of this beautiful weather we are having in the PNW! The Seattle Chapter would like to invite you and your families to an end of summer picnic and meet and greet. We have enjoyed getting to know a number of you through our monthly coffee chats and thought something even more casual with family members would be fun.
Please bring a picnic lunch for your family with a beverage and something to share if you like (optional), chairs / blankets and if bringing kiddos something to help entertain along the beach front if needed. There is a play area but not directly near the tables.
We will have 3 tables reserved, and there are grills available, but you will need to bring all the grilling supplies if you wish to use them.
We are looking forward to seeing you!
Lara Macklin – Seattle Chapter Coordinator
Bev Marcus – Seattle Walk Co-Chair
Ren Brown – Seattle Walk Co-Chair
The Seattle Chapter holds monthly casual gatherings in Seattle and we would love to hear from you! Please email our Volunteer Chapter Coordinator Lara at email@example.com for dates and times.
Seattle Walk for PKD
October 4, 2015
Green Lake Park
Registration is now open!
To learn more about the Seattle walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.