News and Information
What can we do for you?
The Seattle Chapter wants to hear from YOU! Please take our SURVEY and let us know what programs interest you the most.
Hello, my name is Lara Macklin and I am excited you stopped by! As your Seattle area Chapter Coordinator I would like to thank you for taking the time to visit our site as this is where your local connection to the PKD Foundation begins.
We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. I can almost guarantee you will make some new friends as well. Meet patients and families in the Seattle area that have shared their voice with us.
Below are the dates of our casual monthly meet-and-greets. Feel free to come for a little or as long as you like and learn about the inspirational lives of others in the area living with PKD. Our community here in Seattle is as diverse as the disease itself and passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD, so that no one has to suffer the full effects of this disease.
Local Research Study
The Kidney Research Institutes Dr. Benjamin (Beno) Freedman has been awarded a 2016 PKD Foundation research grant for his "Modeling Human PKD Cystogenesis With Pluripotent Stem Cells" study.
For more information on this lab and how to become involved in the study, visit his web site: http://freedmanlab.com/.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Join the Seattle Chapter for casual conversation and fellowship with others in the local PKD community. Stay for a little or as long as you like. We will continue to meet the first weekend of each month (pending holidays), alternating between Saturday and Sunday from 10am-noon. We look forward to seeing you!
NOTE: Please check the web site for location updates. Please email our Volunteer Chapter Coordinator Lara at firstname.lastname@example.org if you have any questions.
Seattle Chapter Coffee Chat
Saturday, May 7
10 to noon
227 Yale Ave. N.
Seattle, WA 98109
Please email our Volunteer Chapter Coordinator Lara at email@example.com if you have any questions.
Saturday, June 4
Sunday, July 10
Saturday, Aug. 6 (family picnic)
Seattle Walk for PKD
Thank you to all who joined us for the 2015 Seattle Walk for PKD!
We had a great time! Check out some of our favorite memories from Walk day here.
Save the date!
Oct. 9, 2016
Green Lake Park
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.