San Antonio ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at sanantoniochapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

My name is Mark Ruffin and I have gladly accepted the position of Chapter Coordinator for the San Antonio Chapter for the PKD Foundation. I have worked closely with my wife, Patti, over the last 13 years while she continues to be the San Antonio Walk for PKD Coordinator in the overall effort to END PKD. In assisting her during this time, I’ve gotten to know many people in the San Antonio area and across the nation who worked tirelessly to lead the fight to find a cure for PKD. They have always been inspirational and dedicated. I am privileged to join them in their efforts in a new role. 

Some background information on me: I grew up in North Carolina, graduated from college in Raleigh (North Carolina State University) in 1971, and then went work for AT&T. I worked for AT&T (then called Western Electric) in North Carolina. In 1974, I was transferred to Houston, Texas, then moved to Dallas, and finally ended up in San Antonio, retiring in 2012. Most of my early volunteer efforts while employed at AT&T involved supporting engineering studies for minorities and being a science fair judge on a couple of occasions (humbling!). As I mentioned earlier, I’ve provided volunteer support for the San Antonio Chapter for the PKD Foundation for about 13 years. 

As the new Chapter Coordinator (and with your continued guidance and support), I will work with the PKD Foundation in the local community and acts as a liaison between the Foundation and local constituents (e.g. patients, families, health professionals, sponsors, volunteers, etc.) to embrace the Foundation mission. 

I want to thank the PKD Foundation for their past and continued support.  I look forward to building a better relationship with them and with my “volunteer partners” in other parts of the country whom I’ve gotten to know over the past few years.   Any guidance or inputs to help me in this endeavor will be appreciated.  You can contact me via email at sanantoniochapter@gmail.com or call me at 210 414-6679. 

Remember: Without you, nothing happens.

Mark Ruffin

San Antonio_RepLarson Dene & Leon Kyrish, Senator Leticia Van de Putte, Patti Ruffin

 

The San Antonio Chapter attended an advocacy workshop presented by the Texas Renal Coalition to prepare for Texas Kidney Day Tuesday, February 10. San Antonio Chapter volunteers Dene and Leon Kyrish and Patti Ruffin are pictured with Senator Leticia Van De Putte.


San Antonio Chapter Awareness Event

Wednesday, April 20
10 a.m. to 1 p.m.

Baptist Health System 18th Annual Block Party
Baptist Healthlink Fitness & Wellness Center
288 W. Bitters
San Antonio, TX 78216

Network with other groups and organizations from the healthcare community. We will have a table to facilitate awareness of PKD and promote the upcoming San Antonio Walk for PKD happening on Sept. 10. 

Volunteers are welcome! Contact Mark, Chapter Coordinator, at sanantoniochapter@pkdcure.org if you are interested.


San Antonio Chapter Awareness Event

Leap into Wellness

Thursday, April 21
11 a.m. to 2 p.m.

University of Texas Health Science Center at San Antonio
7703 Floyd Curl Drive
San Antonio, TX 78229

Annual Wellness Day at the University of Texas Health Science Center San Antonio campus. The San Antonio Chapter will have a table at the event and answer questions about PKD and the PKD Foundation.

Volunteers are needed!  Contact Mark, Chapter Coordinator, at sanantoniochapter@pkdcure.org if you are interested.


PKD Patient Handbook

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today! 

 

 

 

 

 

 

 

Kroger Neighbor to Neighbor Donation Program 

Did you know that every time you shop for groceries, you could be raising money to support PKD Research? YES you can! Every time you shop at a Kroger, you can help the PKD Foundation earn a piece of $1,000,000.00. Setting this up is easy. You'll need your Kroger Plus Card and go to krogercommunityrewards.com. Find the PKD Foundation & sign up. It's that easy!

Community Rewards

     

    http://www.krogercommunityrewards.com/

     

     

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    Calendar Local Events and Meetings

    Meeting Chapter Support Meetings

    Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

    If you have any questions concerning our Chapter meetings, please email Volunteer Chapter Coordinator Mark at sanantoniochapter@pkdcure.org.  


    San Antonio Walk for PKD

         

    Thank you for joining us for the 2015 San Antonio Walk for PKD!

    We had a great time connecting with all of you. Here are some of our favorite memories from Walk day.                   

       Save the date!
       Sept. 10, 2016
       O.P. Schnabel Park, Graff Pavilion

     

     

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    Resources Resources

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    Latest Webinar Wednesday

    Webinar Wednesdays with CSO David Baron, Ph.D.Total kidney volume and PKD

    Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.

    Watch now

    Learn more about Webinar Wednesdays or watch previous webinars here.


    Latest National Webinar

    Dr. David BaronThe sequence of drug development

    Presented by: David Baron, Ph.D., PKD Foundation CSO

    Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

    Watch now

    Watch previous webinars here.


    Blog

    PKD Connection


    Discussion Forums

    PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

    Join the Conversation


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    ©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

    ©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.