News and Information
A message from our Volunteer Chapter Coordinator:
I'm excited to join the team and truly looking forward to being the volunteer coordinator for our San Antonio Chapter. The Walk is always a fun event, and our 2015 Walk in September is going to be fantastic. The money and awareness that is raised through the Walk for PKD is very important to me personally. As a young man I saw the effects of PKD first hand. I saw my beautiful, talented, and intelligent mother in pain and agony. The effect on our family was a tremendous hardship, and we faced some very difficult years. Once diagnosed properly, and with the right treatment her spirit and health have improved. Now that I have the opportunity, I see the importance of being involved with the PKD community. I look forward to meeting all of you, and feel free to reach out to me anytime.
The San Antonio Chapter attended an advocacy workshop presented by the Texas Renal Coalition to prepare for Texas Kidney Day Tuesday, February 10. San Antonio Chapter volunteers Dene and Leon Kyrish and Patti Ruffin are pictured with Senator Leticia Van De Putte.
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter Support Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the San Antonio Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator at firstname.lastname@example.org.
Check back for meeting updates!
San Antonio Walk for PKD
September 12, 2015
O.P. Schnabel Park, Graff Pavilion
Registration is now open!
To learn more about the San Antonio walk or to donate, click here.
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Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.