Welcome to the

Salt Lake City

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Get Involved

Are you interested in helping us grow the Salt Lake City Community?

We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved. 

If you have questions, please email us at volunteers@pkdcure.org

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Lynette Menke

PKD Connect Ambassador

Hello!  I am a blessed post preemptive living donor transplant recipient.  I followed my PKD journey since I was 19 and it shaped my career, starting as a Renal Dietitian. I was able to prolong my progression longer than my Dad, Aunt and Grandmother and received a kidney from my husband March 24, 2022 at the University of Utah.  Professionally, I am in healthcare technology sales and strategy.  In my free time, I enjoy horses and show competitively in a western discipline called reined cow horse.  I have been a passionate advocate for earlier diagnosis of CKD and am excited to be able to have this chance to be involved.  I look forward to meeting all of you!

Xandy Harker

Walk for PKD Ambassador

I’m the new Walk for PKD Ambassador. Ask me about the Salt Lake City Walk for PKD!

Page last updated July 2023