News and Information
What can we do for you?
The Portland Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Portland area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Portland Chapter Education Meeting
Monday, Feb. 8
6:30 to 8:30 pm
Topic: Bioartificial and Wearable Kidneys
William Bennett, M.D.
Northwest Renal Clinic
PKD researcher and nephrologist
Join us to learn the latest regarding clinical trials for the bioartificial kidney from the University of California San Francisco and the wearable kidney from the University of Washington.
Legacy Good Samaritan
1015 NW 22nd
Portland, OR 97210
Please note the meeting is located in the auditorium.
Street parking is relatively easy to find. If you prefer to park in the garage, parking can be very expensive but can be validated at the Emergency Room valet.
Registration has closed but you are still welcome to attend.
If you have any questions concerning Chapter meetings, please email our Volunteer Chapter Coordinator Alex at email@example.com.
Monday, April 4 - Paired Kidney Exchange and the 2016 Portland Walk for PKD - Register
Monday, Sept. 12 - Summary of the Kidney Patient Summit and review the 2016 Portland Walk for PKD - Register
Monday, Nov. 14 - Healthy Eating for PKD patients - Register
Portland Walk for PKD
Thank you to all who joined us for the 2015 Portland Walk for PKD!
We had a great time! Check out some of our favorite memories from the Walk here. Information on the 2016 Portland Walk for PKD coming soon!
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Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.