Chapter Info
Welcome to the PKD Foundation’s PKD Parents Chapter Website!
Support Coordinators
Julia Roberts - Cell 404-731-8931; julia@robertsresource.com
Atlanta, GA - Julia’s two children, Gage and Quinn have ARPKD and a vision disorder called Ocularmotor Apraxia. They were diagnosed when Quinn was born in 2001. Gage, born in 1999, was on dialysis for 6 months and received a kidney from a family friend in March 2007. Another family friend donated to Quinn on her 8th birthday in September 2009. Both kids are thriving despite their diagnosis. Their journal is being chronicled at http://www.kidneysandeyes.com.
Michele Karl - Cell 914-522-6193; home 914-948-4495; michelehopekarl@gmail.com
White Plains, NY - Michele has three sons: Max is 8, Nate is 5, and Gabriel is 2. Max and Gabe have ARPKD. They were diagnosed in 2006 when Gabe was born at 34 weeks gestation. Subsequently Max was diagnosed but did not have any symptoms at the time. Nate who is now 5 does not have ARPKD. Both boys currently are being treated for high blood pressure, but have good kidney function. Michele recently started a blog at http://threepeas.wordpress.com.
Recent News
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Gift of One Another Award 2011
This award is presented to the Chapter who provides outstanding support for their chapter members. This Chapter demonstrates a strong connection with its members and dedicates much time and effort into assisting one another and improving the lives of all affected by PKD.
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ARPKD Study Enrollees Needed
Please click here for more information on the study and how to enroll
Learn More about PKD.
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
Meetings
Local Events
Media
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 Understanding Your Lab Results
April 10, 2013
Presented by
Terry Watnick, M.D.
Find out what lab tests are important to kidney patients, what constitutes normal and when your health team needs to take action.
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