News and Information
PKD Foundation News and Announcements
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
Chapter members recently recorded an interview with radio DJ Sean McDowell to promote our walk and to help get the word out about PKD. Dr. Kumar of Allegheny General Hospital's transplant program discussed the medical aspects of the disease and chapter members had an opportunity to share their stories. The interview will be broadcast on Sunday August 31 at 7 am on local radio stations WDVE, 3WS, and 104.7. Pictured L-R, George Santel, Nancy Kaminski, Tom Kaminski, Dr.Kumar, Jean Bost and in front, Sean McDowell.
Pittsburgh Chapter Volunteer Coordinator, Kristee Adams, will present information about PKD and PKD Foundation at the CNSW Conference on Sept. 12. This presentation will provide CME credits for nephrology social workers attending the conference. The conference will be held at University of Pittsburgh Medical Center East.
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Pittsburgh Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Kristee, at firstname.lastname@example.org.
Check back for meeting updates!
Pittsburgh Walk for PKD
The Pittsburgh Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Pittsburgh Walk for PKD!
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.