News and Information
Save the date: PKD National Convention 2016
Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Upcoming Chapter Meetings:
Tuesday, October 13th 6:30 - 8:30
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
If you are interested in attending or have questions about the event please email our Volunteer Chapter Coordinator Kristee at firstname.lastname@example.org.
Check back for meeting updates!
Pittsburgh Walk for PKD
September 12, 2015
Registration is now open!
To learn more about the Pittsburgh walk or to donate, click here.
Biology for PKD
Brentwood High School biology teacher, Jackie Johnson, does a unit on diseases in her advanced biology class each year. This year, PKD was a one of the featured diseases, inspired by Pittsburgh Walk Coordinator and school nurse, Nancy Kaminski. Nancy shared her family history to illustrate the genetic component of the disease. At the end of the diseases unit, Jackie asks the students to choose a disease they've learned about and do a fundraiser for patients with that disease. Jackie's class picked PKD. The students raised $320! How can you support PKD and the Pittsburgh Walk in your community?
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Next Webinar Wednesday
Wednesday, Aug. 19, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will explain how cysts form and why they are so problematic. He will also take time at the end of his presentation to answer your questions.
Next National Webinar
Tuesday, Aug. 18, 7 - 8 p.m. CDT
Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman about what kidney stones are, why they happen and what can be done to treat them.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.