News and Information
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Chapter members recently recorded an interview with radio DJ Sean McDowell to promote our walk and to help get the word out about PKD. Dr. Kumar of Allegheny General Hospital's transplant program discussed the medical aspects of the disease and chapter members had an opportunity to share their stories. The interview will be broadcast on Sunday August 31 at 7 am on local radio stations WDVE, 3WS, and 104.7. Pictured L-R, George Santel, Nancy Kaminski, Tom Kaminski, Dr.Kumar, Jean Bost and in front, Sean McDowell.
Pittsburgh Chapter Volunteer Coordinator, Kristee Adams, will present information about PKD and PKD Foundation at the CNSW Conference on Sept. 12. This presentation will provide CME credits for nephrology social workers attending the conference. The conference will be held at University of Pittsburgh Medical Center East.
Local Events and Meetings
Chapter Support Meetings
Join us for our quarterly meeting where you can meet others affected by PKD. At the end of our meeting, we would welcome you to stay where we will make some final preparations for the Walk for PKD. Volunteers are always appreciated!
The Pittsburgh Chapter does not have a meeting planned at this time. Check back at a later date for more information. If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email Kristee at firstname.lastname@example.org.
Pittsburgh Walk for PKD
The Pittsburgh Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Saturday, September 13
UNO Chicago Grill
Please join us after the Walk for lunch at UNO Chicago Grill, at the Waterfront. Bring one of these coupons and a portion of your total bill will be donated to the Pittsburgh Walk for PKD. The coupon is good all day and for dine in or take out.
Presented by Neera Dahl, M.D., Ph.D., Assistant Professor of Medicine (Nephrology) at the Yale School of Medicine
Join us for an interactive discussion about PKD including a general overview of both ADPKD and ARPKD, common symptoms and frequently asked questions. Great for newly diagnosed patients as well as those who want to support a friend or family member with PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.