News and Information
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Chapter members recently recorded an interview with radio DJ Sean McDowell to promote our walk and to help get the word out about PKD. Dr. Kumar of Allegheny General Hospital's transplant program discussed the medical aspects of the disease and chapter members had an opportunity to share their stories. The interview will be broadcast on Sunday August 31 at 7 am on local radio stations WDVE, 3WS, and 104.7. Pictured L-R, George Santel, Nancy Kaminski, Tom Kaminski, Dr.Kumar, Jean Bost and in front, Sean McDowell.
Pittsburgh Chapter Volunteer Coordinator, Kristee Adams, will present information about PKD and PKD Foundation at the CNSW Conference on Sept. 12. This presentation will provide CME credits for nephrology social workers attending the conference. The conference will be held at University of Pittsburgh Medical Center East.
Local Events and Meetings
Chapter Support Meetings
Tuesday, July 8
6:30 p.m. - 8:30 p.m.
Hiland Presbyterian Church
Pittsurgh, PA 15229
Join us for our quarterly meeting where you can meet others affected by PKD. At the end of our meeting, we would welcome you to stay where we will make some final preparations for the Walk for PKD. Volunteers are always appreciated!
If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email Kristee at email@example.com.
50 Mile Bike Run for Walk Team LaRussa
Sunday, August 31, 2014
Registration: 10 a.m.
Bikes Leave: 11 a.m.
Kinloch VFD Lower Burrell #1915 New York AvenueNew Kensington, PA 15068
Join us for this fun family friendly event with a rally ride, music, clowns, prizes and much more! Single riders are $25 and doubles are $30. For more information and to pre-register, please contact Russell Waltz at PKDRally@comcast.net or 724-571-5014.
Pittsburgh Walk for PKD
Saturday, September 13
For more information, click here!
Saturday, September 13
UNO Chicago Grill
Please join us after the Walk for lunch at UNO Chicago Grill, at the Waterfront. Bring one of these coupons and a portion of your total bill will be donated to the Pittsburgh Walk for PKD. The coupon is good all day and for dine in or take out.
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.