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Chapter members recently recorded an interview with radio DJ Sean McDowell to promote our walk and to help get the word out about PKD. Dr. Kumar of Allegheny General Hospital's transplant program discussed the medical aspects of the disease and chapter members had an opportunity to share their stories. The interview will be broadcast on Sunday August 31 at 7 am on local radio stations WDVE, 3WS, and 104.7. Pictured L-R, George Santel, Nancy Kaminski, Tom Kaminski, Dr.Kumar, Jean Bost and in front, Sean McDowell.
Pittsburgh Chapter Volunteer Coordinator, Kristee Adams, will present information about PKD and PKD Foundation at the CNSW Conference on Sept. 12. This presentation will provide CME credits for nephrology social workers attending the conference. The conference will be held at University of Pittsburgh Medical Center East.
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Pittsburgh Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Kristee, at firstname.lastname@example.org.
Check back for meeting updates!
Pittsburgh Walk for PKD
The Pittsburgh Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.