The Phoenix Chapter wants to hear from YOU!
Please take our SURVEY and let us know what programs interest you the most.
My name is Risa Simon and I’m thrilled you stopped by! As your Phoenix Chapter Coordinator, I’d like to thank you for taking the time to visit our site, as this is where your local connection to the PKD Foundation begins.
Our vision is pure and simple: We exist to educate, inspire and support your efforts in managing your disease continuum. You don’t have to “go it alone.” When you become a part of your local Phoenix PKD Chapter, your presence will allow you to make friends with other PKD patients and families to learn more about their experiences and success stories. Our educational events also allow you to learn from PKD-centered nephrologists and other special speakers. These sessions will empower you to take charge of your life, rather than letting valuable time pass you by.
Our goal is to transform your fear into purposeful action.
Our mission: Is for all PKD patients and their families to become a part of the SOLUTION! We are passionately dedicated to helping the Foundation find treatments - and ultimately a cure for PKD, so no one has to suffer the full effects of this disease.
Our Local Presence & Purpose: is to empower your process, so you can live the best life possible.
So what are you waiting for? Take that first step (if you haven’t already), and join our team today by emailing me at: firstname.lastname@example.org.
Living the dream, in the spirit of a better tomorrow,
Risa Simon, Phoenix Chapter Coordinator
Better Together at the PKD National Convention
June 20–22, 2014
Kansas City, Mo.
This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.
Visit pkdcure.org/convention to register and learn more.
Transplant Games of America
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
Risa Simon, Volunteer Chapter Coordinator, recently shared her journey with PKD and how she is her own advocate on the Renal Support Network radio talk show Kidney Talk! You can listen to it here.
Learn More About PKD
Visit our Learning Center at your convenience and learn more about topics important to PKD patients!
The Phoenix Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email us at email@example.com.
Check back for updates!
The Phoenix Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.