Phoenix ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.



News and Information News and Information

The Phoenix Chapter Wants to Hear From YOU!

Please take our SURVEY and let us know what programs interest you the most.

Risa Simon

My name is Risa Simon and I'm thrilled you stopped by! As your Phoenix Chapter Coordinator, I'd like to thank you for taking the time to visit our site, as this is where your local connection to the PKD Foundation begins.

Our vision is pure and simple: We exist to educate, inspire and support your efforts in managing your disease continuum. You don't have to "go it alone." When you become a part of your local Phoenix PKD Chapter, your presence will allow you to make friends with other PKD patients and families to learn more about their experiences and success stories. Our educational events also allow you to learn from PKD-centered nephrologists and other special speakers. These sessions will empower you to take charge of your life, rather than letting valuable time pass you by.

Our goal is to transform your fear into purposeful action.

Our mission: Is for all PKD patients and their families to become a part of the SOLUTION! We are passionately dedicated to helping the Foundation find treatments - and ultimately a cure for PKD, so no one has to suffer the full effects of this disease.

Our Local Presence & Purpose: is to empower your process, so you can live the best life possible.

So what are you waiting for? Take that first step (if you haven't already), and join our team today by emailing me at:

Living the dream, in the spirit of a better tomorrow,
Risa Simon, Phoenix Chapter Coordinator 


Risa Simon, Volunteer Chapter Coordinator, recently shared her journey with PKD and how she is her own advocate on the Renal Support Network radio talk show Kidney Talk! You can listen to it here.


Amazon Smile

Amazon Smile


Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at


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Calendar Local Events and Meetings


Phoenix Walk for PKD


The Phoenix Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.


Donate Today

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Resources Resources

Latest Free Webinar

Jacob TaylorHoliday Eating

Presented by Jacob Taylor, Clinical Dietician at Children's Mercy Hospital

The holiday season is fast approaching, which means lots of family get-togethers, dinners and company parties. With food being a primary focus during these social gatherings, it can be a challenge for people with kidney disease to stick with their kidney-friendly diet. In this webinar you'll learn how to maintain your kidney diet, while still enjoying the most delicious time of the year. Jacob Taylor will also discuss his PKD Diet Study.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.