News and Information
The Phoenix Chapter Wants to Hear From YOU!
My name is Risa Simon and I'm thrilled you stopped by! As your Phoenix Chapter Coordinator, I'd like to thank you for taking the time to visit our site, as this is where your local connection to the PKD Foundation begins.
Our vision is pure and simple: We exist to educate, inspire and support your efforts in managing your disease continuum. You don't have to "go it alone." When you become a part of your local Phoenix PKD Chapter, your presence will allow you to make friends with other PKD patients and families to learn more about their experiences and success stories. Our educational events also allow you to learn from PKD-centered nephrologists and other special speakers. These sessions will empower you to take charge of your life, rather than letting valuable time pass you by.
Our goal is to transform your fear into purposeful action.
Our mission: Is for all PKD patients and their families to become a part of the SOLUTION! We are passionately dedicated to helping the Foundation find treatments - and ultimately a cure for PKD, so no one has to suffer the full effects of this disease.
Our Local Presence & Purpose: is to empower your process, so you can live the best life possible.
So what are you waiting for? Take that first step (if you haven't already), and join our team today by emailing me at: email@example.com.
Living the dream, in the spirit of a better tomorrow,
Risa Simon, Phoenix Chapter Coordinator
Risa Simon, Volunteer Chapter Coordinator, recently shared her journey with PKD and how she is her own advocate on the Renal Support Network radio talk show Kidney Talk! You can listen to it here.
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Phoenix Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Risa, at firstname.lastname@example.org.
Check back for updates!
Phoenix Walk for PKD
The Phoenix Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.