Phoenix Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. There are jobs for everyone, big and small. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

PKD FoundationPhoenix Chapter



Chapter Info Chapter Info

Recent News Recent News

Meetings Meetings

Local Events Local Events

Media Media

Chapter Info Chapter Info


The Phoenix Chapter wants to hear from YOU! 

Please take our SURVEY and let us know what programs interest you the most. 


Risa SimonMy name is Risa Simon and I’m thrilled you stopped by! As your Phoenix Chapter Coordinator, I’d like to thank you for taking the time to visit our site, as this is where your local connection to the PKD Foundation begins.

Our vision is pure and simple: We exist to educate, inspire and support your efforts in managing your disease continuum. You don’t have to “go it alone.” When you become a part of your local Phoenix PKD Chapter, your presence will allow you to make friends with other PKD patients and families to learn more about their experiences and success stories. Our educational events also allow you to learn from PKD-centered nephrologists and other special speakers. These sessions will empower you to take charge of your life, rather than letting valuable time pass you by.

Our goal is to transform your fear into purposeful action.

Our mission: Is for all PKD patients and their families to become a part of the SOLUTION! We are passionately dedicated to helping the Foundation find treatments - and ultimately a cure for PKD, so no one has to suffer the full effects of this disease.

Our Local Presence & Purpose: is to empower your process, so you can live the best life possible.

So what are you waiting for? Take that first step (if you haven’t already), and join our team today by emailing me at:

Living the dream, in the spirit of a better tomorrow,
Risa Simon, Phoenix Chapter Coordinator

Recent News Recent News

PKD National Convention: Better Together

Better Together at the PKD National Convention

 June 20–22, 2014

Kansas City, Mo.

This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.

 Visit to register and learn more.

Transplant Games of America


Transplant Games of America

Houston, Texas
July 11 - 15, 2014

The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries.  The games are more than an athletic event!  They highlight the importance of organ donation and celebrate the lives of organ donors and recipients.  For more information about the 2014 Transplant Games of America and to register to participate, visit

The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families.  If you plan to participate, please take our brief survey! 

Take Our Survey


Risa Simon, Volunteer Chapter Coordinator, recently shared her journey with PKD and how she is her own advocate on the Renal Support Network radio talk show Kidney Talk! You can listen to it here. 


Learn More About PKD

Visit our Learning Center at your convenience and learn more about topics important to PKD patients!


Meetings Meetings


The Phoenix Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email us at  

Check back for updates!


Local Events Local Events 

The Phoenix Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.   


Media Media

Latest Webinar


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WebinarStraight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation

March 27, 2014
Presented by PKD Patients

Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinar will help you be your best advocate as you enter the conversation about renal replacement with your health care team.


Featured Video


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Latest Photos


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Latest Tweets


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Risa Simon and Amanda Cumberland
Volunteer Chapter Coordinators


For General Information
Call 800.PKD.CURE (753.2873)

PKD Foundation Staff

Cindy LeBlanc
Chapter Relations Manager

Nicole Harr
Education Manager

Sara Brown
Fundraising Events Manager

Sue Full
Walk for PKD Manager

Vehicle Donation

Donate Your Car In Support of the PKD Foundation

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end polycystic kidney disease. Save the time and hassle of selling your vehicle yourself and support the Foundation’s mission by calling 855.9PKD.CAR (855.9753.227). For more information, visit

You Shop, Amazon Gives just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company’s website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation’s mission to find treatments and a cure for PKD. Learn more at > 

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.

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