News and Information
March 17, 2015
Saintsation Kriste was a guest speaker at the Polycystic Kidney Disease (PKD) Foundation's Leadership Conference in Kansas City, Mo., from Feb. 20-22. There were more than 100 people in attendance; two representatives from each state and some representatives from Canada. Attendees were chapter coordinators and leaders across the country with goals of updating each other on ongoing kidney research and continuing to raise awareness of PKD.
Read more about Kriste
A note from your Chapter Coordinator:
It’s a new year and a fresh start for the Phoenix Chapter! With a renewed vision and new leadership, we are planning to take this Chapter in fresh and exciting directions. As always, our focus is on PKD patients, their families and friends.
We are in the process of planning support group and educational meetings, so watch for details to follow! If you have ideas on speakers or subjects you want covered, please let us know.
It is not too early to be thinking about the 2015 Walk for PKD, to be held this fall to raise funds and awareness! Big changes here too! New location, new leadership team … we’re renewing and evolving! Stay tuned for the exact times and locations. Registration opens in June. Watch your email for details and a link to register.
We hope the information provided here is helpful to you as you manage living with PKD. Be sure to visit our Website too: www.pkdcure.org/phoenixchapter. Our Chapter is here for you so please contact us anytime at PhoenixChapter@pkdcure.org.
Phoenix Walk for PKD
Date: Fall 2015
Exact date, location and time to be determined
Local Events and Meetings
What's New in PKD: A Day of Learning
Saturday, March 28
8 a.m. - 12:30 p.m.
Thank you to all of those that came out to the exclusive, online educational conference! A special thank you to the PKD experts from across the United States who discuessed topics that are important to PKD patients. We enjoyed learning and connecting with those that came to the event!
If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Terri & Monica, at email@example.com.
Chapter Awareness Event:
Cobre Valley Regional Hospital Health Fair!
Saturday, April 11
9 a.m. to 1 p.m.
Cobre Valley Regional Hospital
5880 South Hospital Drive
Globe, AZ 85501
Feel free to stop by the health fair and see our Coordinators along with many other information booths!
National Kidney Foundation of Arizona Kidney Walk
Sunday, April 19
8 a.m. to 11 a.m.
401 East Jefferson Street
Phoenix, AZ 85004
The Phoenix Chapter will be participating in the NKF Walk along with hosting an information table at the Walk!
Phoenix Walk for PKD
Save the Date
October 18, 2015
June 1, 2015
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Latest Free Webinar
Presented by Lawrence Grunfeld, M.D., clinical associate professor of Obstetrics and Gynecology at the Mount Sinai School of Medicine and co-director of Reproductive Medicine Associates of New York
Preimplantation genetic diagnosis, known as PGD, is a screening test used to determine if genetic or chromosomal disorders are present in embryos produced through in vitro fertilization (IVF).
In this webinar, Lawrence Grundfeld, M.D. speaks and answers questions about PGD as it relates to PKD. He is also joined by two families who have chosen to use PGD in family planning.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.