Orange County ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.



News and Information News and Information

Get to Know Your Coordinator

Why I volunteer- Yvonne DiCarlo Clemens
"So, while I'm waiting for my miracle pill, I want to do all I can to help those in need of transplants. I'm getting involved with the PKD Foundation to increase awareness, education, support, advocacy and fund raising so that dialysis will become a thing of the past. I do this for myself, my children, my grandchildren, and for you".

Click here to read all of Yvonne's story. 


Amazon Smile

Amazon Smile


Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at




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Calendar Local Events and Meetings

Meeting Chapter Meetings

SAVE THE DATE - Education Seminar

Healthy Lifestyles for Kidney Patients

Saturday, January 17, 2015
10:00 a.m. - noon

Victory Baptist Church - Fellowship Hall
227 N. Magnolia Ave.
Anaheim, CA 92801

The Orange County Chapter is excited to welcome Phil Tuso, MD, FACP to speak at an education seminar on January 17, 2015.  Please mark your calendar and plan to attend. 


Register Today



Meet our Speaker

The National Clinical Lead for Total Health with Kaiser Permanente’s Care Management Institute, Dr. Tuso is the Regional Physician Co-Lead for Complete Care and Regional Physician Lead for the Readmission Reduction Program for the Southern California Permanente Medical Group. Dr. Tuso is a practicing nephrologist and hospitalist physician on the staff at Antelope Valley Hospital and Palmdale Regional Medical Center. Additionally, he serves as the director of the Fresenius Medical Care Dialysis Unit in Lancaster, California. Dr. Tuso is on the Board of Directors of Antelope Valley Partners for Health, a community based organization for local public health planning and intervention in the Antelope Valley and serves on the Medical and Expert Advisory Board for the International Plant-based Nutrition Healthcare Conference. 

Dr. Tuso received his undergraduate degree from the University of California, Riverside and M.D. from St. Georges University School of Medicine. He completed his internal medicine residency at Griffin Hospital in Derby Connecticut, a teaching affiliate of Yale University School of Medicine, and nephrology fellowship at the University of California, Los Angeles. He then was awarded a National Institute of Health Training Grant and completed a research fellowship at Cedars Sinai Medical Center in Los Angeles. For his research work he was awarded a Young Investigator Award from the American Society of Transplant Surgeons. Dr. Tuso is board certified in internal medicine and nephrology. He has authored over fifty articles and books and is a Fellow of the American College of Physicians.

In 2004, Phil and his wife, parents to four beautiful children, formed the Foundation to Improve Renal Nutrition, a 501 C 3 non-profit foundation which provides free nutritional supplements to low income patients with kidney disease who are malnourished. For his volunteer work he was awarded the Kaiser Permanente David Lawrence Community Service Award and the National Kidney Foundation Spirit of Nephrology Award


If you would like to connect with our Volunteer Chapter Coordinator, please email us at


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Resources Resources

Latest Free Webinar

WatchThe HALT-PKD Study:
What Do the Results of this Study Mean for Me?

Presented by Ronald D. Perrone, M.D., HALT study principal investigator

This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.