Orange County ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at orangecountychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 


 

News and Information News and Information

Get to Know Your Coordinator

Why I volunteer- Yvonne DiCarlo Clemens
"So, while I'm waiting for my miracle pill, I want to do all I can to help those in need of transplants. I'm getting involved with the PKD Foundation to increase awareness, education, support, advocacy and fund raising so that dialysis will become a thing of the past. I do this for myself, my children, my grandchildren, and for you".

Click here to read all of Yvonne's story. 


 

PKD Foundation News and Announcements

Dr. David Baron

We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.

 

Learn about our new CSO

  


San Francisco Rock ‘n’ Roll Half Marathon

Sunday, March 29, 2015

 

Take a VIP running tour of the Golden Gate City at this year’s San Francisco Rock ‘n’ Roll Half Marathon to bring hope to those affected by PKD. Click here for more information.

Questions? Contact us at runforpkd@pkdcure.org or 816.268.8469.

↑ Top


Calendar Local Events and Meetings

Meeting Chapter Meetings

 

Healthy Lifestyles for Kidney Patients

Saturday, January 17, 2015
10:00 a.m. - noon

Location:
Victory Baptist Church - Fellowship Hall
227 N. Magnolia Ave.
Anaheim, CA 92801

Thank you to everyone who came to our event on Saturday! A special thank you to both of our speakers, Dr. Tuso and Kelli Roberts, for taking the time to join us and presenting!

If you have any questions about the event or any upcoming events please contact our Volunteer Chapter Coordinator at orangecountychapter@pkdcure.org.

 

Meet our Speaker

Dr. Tuso

Dr. Tuso is the Southern California Permanente Medical Group Regional Physician Co-Lead for Complete Care and a practicing nephrologist and hospitalist physician on the staff at Antelope Valley Hospital and Palmdale Regional Medical Center. Additionally, he serves as the Director of the Fresenius Medical Care Dialysis Unit in Lancaster, California. Dr. Tuso is on the Board of Directors of the Plantrician Project, a non-profit whose vision is to educate, equip and empower our physicians and healthcare practitioners with knowledge about the indisputable benefits of plant-based nutrition. He is also on the Board of Directors of Antelope Valley Partners for Health, a community based organization for local public health planning and intervention in the Antelope Valley.

Dr. Tuso received his undergraduate degree from the University of California, Riverside and M.D. from St. Georges University School of Medicine. He completed his internal medicine residency at Griffin Hospital in Derby Connecticut, a teaching affiliate of Yale University School of Medicine, and nephrology fellowship at the University of California, Los Angeles. He then was awarded a National Institute of Health Training Grant and completed a research fellowship at Cedars Sinai Medical Center in Los Angeles. For his research work he was awarded a Young Investigator Award from the American Society of Transplant Surgeons. Dr. Tuso is board certified in internal medicine and nephrology. He has authored over fifty articles and books and is a Fellow of the American College of Physicians.

In 2004, Phil and his wife, parents to four beautiful children, formed the Foundation to Improve Renal Nutrition, a 501 C 3 non-profit foundation which provides free nutritional supplements to low income patients with kidney disease who are malnourished. For his volunteer work he was awarded the Kaiser Permanente David Lawrence Community Service Award and the National Kidney Foundation Spirit of Nephrology Award

 




Kelli Roberts is a skilled Vegan Chef with a certificate in plant-based diet from Cornell University, she is also a certified health and nutrition counselor from the Institute for Integrative Nutrition. She has been a vegetarian for nearly 20 years and a vegan for 11. Kelli has spent hundreds of hours learning about the benefits of a vegan diet and healthy cooking techniques. Kelli teaches vegan cooking classes and programs to transition to a plant-base diet (online and in person). She also offers individualized nutrition and lifestyle counseling. Kelli is also a Level 3-certified TriYoga teacher. With this training, she leads vegan yoga retreats that offer a complete package of wellness, including yoga classes, group meal preparation, health and nutrition information and techniques to bring this knowledge actively into our daily lives.

 

 

↑ Top


Resources Resources

Latest Free Webinar

Dr. Clifford MilesKidney Allocation System Q&A

Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


↑ Top

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.