News and Information
PKD Foundation News and Announcements
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
Learn about our new CSO
Local Events and Meetings
Chapter Support Meeting
Dealing With Kidney Disease
Monday, Jan. 26, 2015
7:00 p.m. - 7:45 p.m. CST
Conference Call Line:
Toll Number: (530) 881 -1212
Toll-Free Number: (530) 212 - 0212
Meeting ID Number: 597-292-587
Join us from the comfort of your own home for a Virtual Education meeting focusing on you and kidney disease, now what. We will share tricks of the trade followed by an open exchange of information. If you have any questions please email our Volunteer Chapter Coordinator, Laura at email@example.com.
Northern Indiana Walk for PKD
The Northern Indiana Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Northern Indiana Walk for PKD!
Click here for some great memories from the 2014 Northern Indiana Walk for PKD!
Plan your own Event!
All of the events that take place in the Northern Indiana PKD Foundation Chapter, large or small, happen because someone decided to organize them. We often receive checks from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. You can send your money earned to the PKD Foundation immediately (no need to hold it) and it will be deposited right away for you. Just let us know if you need help with any of this.
There are also people who have decided they have the time and energy to put on a major event or who are connected to a church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at firstname.lastname@example.org and we'll help you get the ball rolling.
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.