News and Information
Walk Season is Here!
Join us for your local Walk for PKD and be the difference in 2015!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
It is not too early to be thinking about the 2015 Walk for PKD! Join us on Saturday, Sept. 19. Watch your email for details and a link to register. I’d also like to welcome Debra Wheeland, our new Walk Coordinator.
Check out our Chapter webpage or Facebook page to see information on Chapter events and volunteer opportunities.
Local Events and Meetings
Northern Indiana Support Meeting
Wednesday, September 30
6:30 to 7:15 pm (cdt)
Topic: Living Donation - Paired Kidney Exchange
Conference Call: call-in information will be provided via email once you have registered.
Join us from the comfort of your own home for a Virtual Education & Support Meeting. We will be talking about living kidney donation, sharing tricks of the trade followed by an open exchange of information.
If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator Laura at firstname.lastname@example.org
Kidney Korner......"You've got someone in your corner"
While having family and friends to turn to can make a huge difference for people dealing with chronic kidney disease (CKD) or life on dialysis, sometimes it isn’t enough. Talking to others who are going through the same experiences as you can be a much-needed opportunity to vent, share information, get advice and receive and provide support.
Nowadays, support groups can be found in all sorts of places. One great place to connect with others is on a conference call. This discussion forum with your kidney friends through the PKD Foundation is a place where people with chronic kidney disease, those on dialysis (either at home or at a center), as well as family members and friends of those with kidney disease, can talk. Some topics include: Share Your Experiences, Lifestyle, Education and Caregiver Support. Also, it ok if you don't feel comfortable sharing but want to hear others and what their experiences are. There is no wrong or stupid question or comment. Just kidney buddies chatting.
There’s no cost to join us, although you will need to register here to get your personal connections to join us. Give me a shout out if you have some ideas for a subject you would like to discuss as well.
Come join us! At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awarenees program. Check back for updates and upcoming meetings and locations.
Northern Indiana Walk for PKD
September 19, 2015
Creek Ridge County Park
Registration is now open!
To learn more about the Norhtern Indiana walk or to donate, click here.
Plan your own Event!
All of the events that take place in the Northern Indiana PKD Foundation Chapter, large or small, happen because someone decided to organize them. We often receive checks from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. You can send your money earned to the PKD Foundation immediately (no need to hold it) and it will be deposited right away for you. Just let us know if you need help with any of this.
There are also people who have decided they have the time and energy to put on a major event or who are connected to a church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at email@example.com and we'll help you get the ball rolling.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Sept. 16, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the function of the kidney and why they're so important.
Latest National Webinar
Kidney stones can be painful and occur more often in PKD patients than in the general population. Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman will help you understand what kidney stones are, why they happen and what can be done to treat them.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.