Northern Indiana ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at northernindianachapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!


A note from your Chapter Coordinator:

It is not too early to be thinking about the 2015 Walk for PKD! Join us on Saturday, Sept. 19.  Watch your email for details and a link to register.  I’d also like to welcome Debra Wheeland, our new Walk Coordinator.

Check out our Chapter webpage or Facebook page to see information on Chapter events and volunteer opportunities.

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Calendar Local Events and Meetings

 Meeting Chapter Meetings

If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator Laura at northernindianachapter@pkdcure.org


Kidney Korner......"You've got someone in your corner"

While having family and friends to turn to can make a huge difference for people dealing with chronic kidney disease (CKD) or life on dialysis, sometimes it isn’t enough. Talking to others who are going through the same experiences as you can be a much-needed opportunity to vent, share information, get advice and receive and provide support.

Nowadays, support groups can be found in all sorts of places. One great place to connect with others is on a conference call. This discussion forum with your kidney friends through the PKD Foundation is a place where people with chronic kidney disease, those on dialysis (either at home or at a center), as well as family members and friends of those with kidney disease, can talk. Some topics include:  Share Your Experiences, Lifestyle, Education and Caregiver Support. Also, it ok if you don't feel comfortable sharing but want to hear others and what their experiences are.  There is no wrong or stupid question or comment.  Just kidney buddies chatting. 

There’s no cost to join us, although you will need to register here to get your personal connections to join us.  Give me a shout out if you have some ideas for a subject you would like to discuss as well. 

Come join us! At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awarenees program. Check back for updates and upcoming meetings and locations. Next date will be in spring April or May.


Northern Indiana Walk for PKD

 

Walk for PKD        

         September 19, 2015

                 Creek Ridge County Park 

                                     Registration is now open!

        To learn more about the Norhtern Indiana walk or to donate, click here

                                                Register Now!

 

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Plan your own Event!

All of the events that take place in the Northern Indiana PKD Foundation Chapter, large or small, happen because someone decided to organize them. We often receive checks from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. You can send your money earned to the PKD Foundation immediately (no need to hold it) and it will be deposited right away for you. Just let us know if you need help with any of this.

There are also people who have decided they have the time and energy to put on a major event or who are connected to a church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!

If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at northernindianachapter@pkdcure.org and we'll help you get the ball rolling.

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Resources Resources

Sign Up to Receive Information From Your Chapter


Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.What are cilia and why do they matter?

PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.

Register


Latest National Webinar

WatchPain and PKD

Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.