Welcome to the PKD Foundation’s New York City Chapter Website!
A message from your Chapter Coordinator:
Hello everyone and welcome to the NYC Chapter webpage. My name is Sarah Giller and I’m so excited to have this opportunity to be the new Chapter Coordinator.
I didn’t have a clue about PKD when I was diagnosed about 20 years ago. It was quite a shock to everyone in my family. The disease progressed rapidly until the only options were either dialysis or a transplant. I have an extraordinarily wonderful and generous sister and she donated a kidney to me in 2007. It was truly a gift of life.
I turned to the PKD Foundation soon after my diagnosis mostly for information and to understand exactly what PKD is and how it would affect both me and my family. Then it became my support system. I met people and learned about what having a chronic disease was like and how I could live a full life in spite of it.
That’s what I hope this Chapter will continue to be – a place of information and support, a place where we help each other and our families to cope with PKD and where we work together towards what we all want – a cure for PKD.
However you want to participate and whatever the level of your involvement we welcome you to join us towards this goal.
One Hundred Grand Award 2011
Presented to the Walk Coordinator whose event exceeded $100,000 in net proceeds
2011 Tri-State Walk for PKD
Learn More about PKD.
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
The New York City Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email us at email@example.com.
Thank you to everyone that made the New York City Walk for PKD a success. While the event is over, fundraising is still going strong with donations being accepted until December 31st. Let’s all continue to unite to fight PKD! Your involvement has made a difference for PKD patients and their families everywhere.
New York City Half Marathon – March 16, 2014
Stop traffic in Times Square – for PKD! Register today to secure your guaranteed spot in the 2014 New York City Half Marathon.
Please click here for more information and learn how to register.
The Empowered PKD Patient: Proactive Strategies to Secure Your Best Life Possible
October 23, 2013
Presented by Risa Simon, CMC
If you've been told to "Do Nothing" until you "Get Sicker" — or simply sense yourself floating in a sea of uncertainty, then join this enlightening session and learn from author, mentor and preemptive transplant recipient, Risa Simon, as she reveals life-changing insights doctors rarely share with their patients. If you (or a loved one) are looking to avoid the need for dialysis, or fear the long wait for a kidney might squelch transplant opportunities, look no further.