New York City ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newyorkcitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

PKD Foundation News and Announcements

Michael PsilakisFood Network's One-on-One Interview with Chopped All-Stars Part 3 Winner, Chef Michael Psilakis

May 13, 2015

Chef Michael Psilakis won part 3 of the Chopped All-StarsTournament and will be in the finale with the chance to win $75,000 for his charity of choice, the PKD Foundation. Food Network did an exclusive one-on-one interview with chef Michael after his big win about being on the show and why he's competing for the PKD Foundation.

Read the exclusive Food Network interview with Chef Michael Psilakis


A Message From Your Chapter Coordinator

Hello everyone and welcome to the NYC Chapter webpage. My name is Sarah Giller and I’m so excited to have this opportunity to be the new Chapter Coordinator.

I didn’t have a clue about PKD when I was diagnosed about 20 years ago. It was quite a shock to everyone in my family. The disease progressed rapidly until the only options were either dialysis or a transplant. I have an extraordinarily wonderful and generous sister and she donated a kidney to me in 2007. It was truly a gift of life.

I turned to the PKD Foundation soon after my diagnosis mostly for information and to understand exactly what PKD is and how it would affect both me and my family. Then it became my support system. I met people and learned about what having a chronic disease was like and how I could live a full life in spite of it.

That’s what I hope  this Chapter will continue to be – a place of information and support, a place where we help each other and our families to cope with PKD and where we work together towards what we all want – a cure for PKD.

However you want to participate and whatever the level of your involvement we welcome you to join us towards this goal. 

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Calendar Local Events and Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the New York Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator Sarah at newyorkcitychapter@pkdcure.org

Check back for updates!

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2015 TCS New York City Marathon

Sunday, November 1, 2015

Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease. 

For more information or to express your interest in the team, email us at runforpkd@pkdcure.org

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New York City Walk for PKD

 

Walk for PKD    Save the Date

       October 25, 2015

 Hudson River Park, Pier 84 - New location!

 

      Registration Opens

            June 2015 

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Resources Resources

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Latest Free Webinar

David BaronPKD Foundation's Chief Scientific Officer Webinar

Hear from our new Chief Scientific Officer David Baron, Ph.D., who is also a PKD patient. David shares what we have gained from our PKD research work to date and where we are headed with the Accelerating Treatments to Patients program.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.