New York City Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. There are jobs for everyone, big and small. Just contact us at newyorkcitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

PKD FoundationNew York City Chapter

 

 

Chapter Info Chapter Info

Recent News Recent News

Meetings Meetings

Local Events Local Events

Media Media


Chapter Info Chapter Info

Welcome to the PKD Foundation’s New York City Chapter Website!  

 

A message from your Chapter Coordinator:

Hello everyone and welcome to the NYC Chapter webpage. My name is Sarah Giller and I’m so excited to have this opportunity to be the new Chapter Coordinator.

I didn’t have a clue about PKD when I was diagnosed about 20 years ago. It was quite a shock to everyone in my family. The disease progressed rapidly until the only options were either dialysis or a transplant. I have an extraordinarily wonderful and generous sister and she donated a kidney to me in 2007. It was truly a gift of life.

I turned to the PKD Foundation soon after my diagnosis mostly for information and to understand exactly what PKD is and how it would affect both me and my family. Then it became my support system. I met people and learned about what having a chronic disease was like and how I could live a full life in spite of it.

That’s what I hope  this Chapter will continue to be – a place of information and support, a place where we help each other and our families to cope with PKD and where we work together towards what we all want – a cure for PKD.

However you want to participate and whatever the level of your involvement we welcome you to join us towards this goal.


Recent News Recent News

 

Better Together at the PKD National ConventionPKD National Convention: Better Together

 June 20–22, 2014

Kansas City, Mo.

This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.

 Visit pkdcure.org/convention to register and learn more.

Transplant Games of America

 

Transplant Games of America

Houston, Texas
July 11 - 15, 2014

The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries.  The games are more than an athletic event!  They highlight the importance of organ donation and celebrate the lives of organ donors and recipients.  For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.

The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families.  If you plan to participate, please take our brief survey! 

Take Our Survey

 


Meetings Meetings

 

Education Meeting - I Have PKD, Now What?

Saturday, May 3, 2014
9:30 a.m. - 1:30 p.m.

New York University
227 E. 30th Street
New York, NY 10029

Speaker:  Judy Ehrlich, New England Chapter Volunteer Coordinator

Join members of the New York City Chapter to learn about the six most important steps you can take NOW to improve your physical and emotional health as you grapple with how to live the best life possible with a chronic disease.

 

 

 

If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email Sarah at newyorkcitychapter@pkdcure.org.

 

 


Local Events Local Events

 

Casino Night hosted by Auxilium

Saturday, April 26, 2014

Asura - Asian Bistro & Bar
235 West 35th Street, New York 10001

6 p.m. - 11 p.m.  

Join us for this fun event and help in the fight against PKD. Click here for more information.


 

Save the Date!

Hudson Valley Cocktails for a Cure: Shining Stars of PKD! – May 8, 2014

Join us at the Cocktails for a Cure Friend-Raiser event on May 8 from 6-10pm, in White Plains, as we celebrate the 10th Anniversary of the PKD Foundation’s Hudson Valley Chapter, and remember those who have contributed to the Chapter’s successes over the years.

The Cocktails for a Cure event will be held at the Vintage Restaurant & Lounge in White Plains. Please click here for more information. Sponsorship and volunteer opportunities are currently available. 

Questions? Contact Darien DaCosta at hudsonvalleychapter@pkdcure.org. 


 

Media Media

Latest Webinar

Webinars

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WebinarStraight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation

March 27, 2014
Presented by PKD Patients

Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinar will help you be your best advocate as you enter the conversation about renal replacement with your health care team.

 

Featured Video

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Latest Photos

Flickr

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Latest Tweets

Twitter

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Sarah Giller
Volunteer Chapter Coordinator
newyorkcitychapter@pkdcure.org

 

For General Information
Call 800.PKD.CURE (753.2873)

PKD Foundation Staff

Cindy LeBlanc
Chapter Relations Manager
ChapterRelationsManager@pkdcure.org
404-660-7915

Nicole Harr
Education Manager
EducationManager@pkdcure.org
816-268-8483

Sara Brown
Fundraising Events Manager
FundraisingEventsManager@pkdcure.org
816-268-8469

Sue Full
Walk for PKD Manager
WalkforPKDManager@pkdcure.org


Vehicle Donation

Donate Your Car In Support of the PKD Foundation

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end polycystic kidney disease. Save the time and hassle of selling your vehicle yourself and support the Foundation’s mission by calling 855.9PKD.CAR (855.9753.227). For more information, visit pkdcure.org/vehicle-donation.

You Shop, Amazon Gives 
Amazon.com just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company’s website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation’s mission to find treatments and a cure for PKD. Learn more at smile.amazon.com > 



Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.


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