New York City Chapter
Welcome to the PKD Foundation’s New York City Chapter Website!
A message from your Chapter Coordinator:
Hello everyone and welcome to the NYC Chapter webpage. My name is Sarah Giller and I’m so excited to have this opportunity to be the new Chapter Coordinator.
I didn’t have a clue about PKD when I was diagnosed about 20 years ago. It was quite a shock to everyone in my family. The disease progressed rapidly until the only options were either dialysis or a transplant. I have an extraordinarily wonderful and generous sister and she donated a kidney to me in 2007. It was truly a gift of life.
I turned to the PKD Foundation soon after my diagnosis mostly for information and to understand exactly what PKD is and how it would affect both me and my family. Then it became my support system. I met people and learned about what having a chronic disease was like and how I could live a full life in spite of it.
That’s what I hope this Chapter will continue to be – a place of information and support, a place where we help each other and our families to cope with PKD and where we work together towards what we all want – a cure for PKD.
However you want to participate and whatever the level of your involvement we welcome you to join us towards this goal.
Better Together at the PKD National Convention
June 20–22, 2014
Kansas City, Mo.
This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.
Visit pkdcure.org/convention to register and learn more.
Transplant Games of America
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
Education Meeting - I Have PKD, Now What?
Saturday, May 3, 2014
9:30 a.m. - 1:30 p.m.
New York University
227 E. 30th Street
New York, NY 10029
Speaker: Judy Ehrlich, New England Chapter Volunteer Coordinator
Join members of the New York City Chapter to learn about the six most important steps you can take NOW to improve your physical and emotional health as you grapple with how to live the best life possible with a chronic disease.
If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email Sarah at firstname.lastname@example.org.
Casino Night hosted by Auxilium
Saturday, April 26, 2014
Asura - Asian Bistro & Bar235 West 35th Street, New York 10001
6 p.m. - 11 p.m.
Join us for this fun event and help in the fight against PKD. Click here for more information.
Save the Date!
Hudson Valley Cocktails for a Cure: Shining Stars of PKD! – May 8, 2014
Join us at the Cocktails for a Cure Friend-Raiser event on May 8 from 6-10pm, in White Plains, as we celebrate the 10th Anniversary of the PKD Foundation’s Hudson Valley Chapter, and remember those who have contributed to the Chapter’s successes over the years.
The Cocktails for a Cure event will be held at the Vintage Restaurant & Lounge in White Plains. Please click here for more information. Sponsorship and volunteer opportunities are currently available.
Questions? Contact Darien DaCosta at email@example.com.