New Jersey ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newjerseychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

A Message From Your Chapter Coordinator

New Jersey Chapter Members:

My name is Alexandra "Alex" Coglianese, and I am honored, and most importantly, EXCITED, to have the opportunity to serve as the new Chapter Coordinator for the New Jersey Chapter of the PKD Foundation. Continue reading Alex's welcome letter



 
Last week, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new Kidney Allocation System (KAS) for allocating deceased donor kidneys to those on the transplant waiting list. 

We understand that many in the PKD community have questions about the system and how it will affect PKD patients. We encourage you to join us on Wednesday, Dec. 17 for a special Q&A webinar. Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, will be joining us to answer your questions.

Have a specific question you'd like Dr. Miles to address? To submit a question, please sent it to education@pkdcure.org with the subject line "KAS Webinar." There will also be an opportunity to submit questions during the webinar.
  

Register Today


 


Amazon Smile

Amazon Smile

Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com

  

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Calendar Local Events and Meetings

 

Education Seminar - Managing Your Life with PKD

Thank you to the following speakers for joining us at the New York City Education Seminar!
Speakers
Irina Barash, MD
Jennifer Egert, PhD
Dennis Finkielstein, MD
Kim Valenza, RE, CDE, CDN
Ariella Tomback, LMSW

Chapter support meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the New Jersey Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Alex, at newjerseychapter@pkdcure.org

                      


Meeting Chapter Meetings

The New Jersey Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email us at newjerseychapter@pkdcure.org.


New Jersey Walk for PKD

 

The New Jersey Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.

Donate Today

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Resources Resources

Latest Free Webinar

WatchThe HALT-PKD Study:
What Do the Results of this Study Mean for Me?

Presented by Ronald D. Perrone, M.D., HALT study principal investigator

This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.