News and Information
A Message From Your Chapter Coordinator
New Jersey Chapter Members:
My name is Alexandra "Alex" Coglianese, and I am honored, and most importantly, EXCITED, to have the opportunity to serve as the new Chapter Coordinator for the New Jersey Chapter of the PKD Foundation. Continue reading Alex's welcome letter
PKD Foundation News and Announcements
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!
Local Events and Meetings
Education Seminar - PKD: From Diagnosis to Post-Transplant
Tuesday, March 17
7 pm - 8:45 pm
South Brunswick Public Library
110 Kingston Lane
Monmouth Junction, NJ 08852
The New Jersey Chapter is excited to kick-off our first Educational Event of 2015 with a 2 hour event at the South Brunswick Public Library on Tuesday, March 17th from 7:00-8:45pm.
We are honored to have Robert Wood Johnson University Hospital physicians attending our event and speaking to our chapter regarding a variety issues effecting our chapter members from those who have been recently diagnosed with PKD, to those who are currently post-transplant and everything in between. Additionally, we will hold a Q&A session at the end of each of their respective lectures so that our chapter members can ask the all-important questions effecting them and their families. Light refreshments will be served! Looking forward to seeing you all.
If you have questions, please email Alex at email@example.com or visit pkdcure.org/newjerseychapter for more information.
Save the Date:
New Jersey Chapter's 2nd Annual Bar Hop
Saturday, June 20
12 p.m. - 6 p.m.
Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf
Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. For more information and to check out the participating bars and their specials, click here! For more information, email Alex Coglianese, New Jersey Chapter Coordinator at NewJerseyChapter@pkdcure.org.
New Jersey Walk for PKD
The New Jersey Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 New Jersey Walk for PKD!
Click here for some great memories from the 2014 New Jersey Walk for PKD!
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Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
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