News and Information
A Message from your Chapter Coordinator
Welcome to the New Jersey Chapter:
Just a month and a half into 2016 and the enthusiasm of the New Jersey Chapter is in full swing! We are fortunate to have several of our volunteers, namely our Educational Coordinator, Mark Kaufman, Ellyne Dombro and T.J. Sullivan engaging and planning several DIY events to bring education, awareness and all-important fundraising to our Chapter for 2016! After hosing a successful DIY Event in the Summer of 2015, on March 11, 2016, T.J.'s family will be hosting another DIY event at their family deli in Northern New Jersey to raise awareness (while fundraising) for the New Jersey Chapter of the PKD Foundation. Mark your calendars for Friday, March 11, 2016, LuLu's Deli & Catering, 225 Main Street, Ridgefield Park, New Jersey. If you are in Northern New Jersey, please come out and support T.J.'s efforts next month. Ellyne Dombro will be representing the PKD Foundation at the Women's Health Conference presented by the Camden County Board of Freeholders on Saturday, April 9, 2016 from at the Eastern Regional High School, 1401 Laurel Oak Road, Voorhees Township, New Jersey. For all of our Central and Southern New Jersey Members, please go out and support Ellyne's efforts from 8 a.m. to 3 p.m.
Our Walk Coordinator, Stacey McClain, is in the process of securing our 2016 Walk date. We anticipate having a precise date within the next two weeks, so please check back often so you can mark your calendars and start your fundraising. The Walk will once again be held in the West Picnic Area of Mercer County Park.
Our Educational Coordinator, Mark Kaufman, is working on a variety of events for the Spring and Summer of 2016. Stay tuned for more info!
The 3rd annual Bar Hop to Stop PKD will once again be held in Hoboken, New Jersey in June! Dates, time and locations are in the process of being finalized, so check back soon for more details! We are looking for a doner, or a company that would wish to sponsor our T-Shirts for the Bar Hop. If you, or anyone you know might be able to offer such services, please contact me at the email address below.
Don't forget...if you are an online shopper, make sure you register and shop through AmazonSmile. AmazonSmile will donate 0.5% of the purchase price of your goods to the PKD Foundation. Simply select the PKD Foundation as your charityof choice and you can help support the mission to find a treatment, but most importantly, a cure, simply by shopping!
Finally, please take a moment to consider attending the PKD National Conference in sunny Orlando, Florida in June. Mark, Stacey, Ellyne and I will all be in attendance, and we welcome some of our fellow Garden-Staters to join us in the Sunshine State! The National Conference is an invaluable experience and a wonderful time to network with other PKD patients and families.
Looking forward to a successful 2016!
With much love and even more gratitude,
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings provide an opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
If you have questions about our Chapter meetings, please email our Volunteer Chapter Coordinator, Alex at firstname.lastname@example.org.
3rd Annual Bar Hop to Stop PKD
12 to 6 p.m.
Join the New Jersey Chapter at the 3rd Annual Bar Hop to Stop PKD to support the PKD Foundation. Enjoy drink specials at four walkable bars in Hoboken. Pre-registration is open now for $15.
For more information, view the flyer or contact Alex Coglianese at email@example.com.
New Jersey Walk for PKD
Sept. 25, 2016
Mercer County Park, West Picnic Area
If you are interested in helping with the New Jersey Walk for PKD, email Stacey at firstname.lastname@example.org
Latest Webinar Wednesday
Bradley Yoder, Ph.D., discusses the results of his recently completed PKD Foundation-funded project "In vivo analysis of cilia mechanosensation in the kidney."
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.