News and Information
PKD Foundation News and Announcements
April 22, 2015
Chef Michael Psilakis will be competing against fellow celebrity chefs on Food Network's fourth season of Chopped All-Stars. Michael's episode airs Tuesday, May 12 at 9 p.m. Central Time. If he advances and wins in the final competition round on May 26, Michael will donate $75,000 to the PKD Foundation, his charity of choice.
Read more about Chef Michael Psilakis
The REPRISE clincial research study will evaluate the safety and efficacy of tolvaptan in participants with late stage 2 to early stage 4 chronic kidney disease (CKD) caused by autosomal dominany polycystic kidney disease (ADPKD).
For more information go to: www.RepriseStudy.com or check out the Study Factsheet.
For questions regarding the study please contact the Research Manager, Steph Hanzl, R.N., CCRP at firstname.lastname@example.org or 610.433.4100 ext. 490.
A Message From Your Chapter Coordinator
New Jersey Chapter Members:
My name is Alexandra "Alex" Coglianese, and I am honored, and most importantly, EXCITED, to have the opportunity to serve as the new Chapter Coordinator for the New Jersey Chapter of the PKD Foundation. Continue reading Alex's welcome letter
Local Events and Meetings
Education Seminar - PKD: From Diagnosis to Post-Transplant
Thank you to everyone who came to our first education meeting of the year! We had a wonderful turnout and are excited about all of the new faces! A special thank you to
the Robert Wood Johnson University Hospital physicians who attended our event and spoke to our Chapter regarding a variety issues effecting our chapter members from those who have been recently diagnosed with PKD, to those who are currently post-transplant and everything in between.
If you have questions about our Chapter meetings please email our Volunteer Chapter Coordinator, Alex at email@example.com or visit pkdcure.org/newjerseychapter for more information.
2nd Annual Bar Hop to Stop PKD
Saturday, June 20
12 p.m. - 7:30 p.m.
Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf
Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. To view the flyer and to learn more about the participating bars and their specials, click here! For more information, email Alex Coglianese, New Jersey Chapter Coordinator at NewJerseyChapter@pkdcure.org.
Sunday, November 1, 2015
Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease.
For more information or to express your interest in the team, email us at firstname.lastname@example.org.
New Jersey Walk for PKD
Save the Date
October 4, 2015
Mercer County Park
June 1, 2015
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Latest Free Webinar
On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.