New England ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newenglandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

Walk for PKD Walk Season is Here!

Join us for your local Walk for PKD and be the difference in 2015!

Register for the Boston Walk

 

Register for the Rhode Island Walk


 

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

A note from your Chapter Coordinator:

For the past three months, I have had the privilege of participating in the second clinical trial of the promising PKD drug, Tolvaptan. Starting this past October, I began to take the investigational drug/placebo which I will do for the 15 month duration of the study while the investigational team at Tufts Medical Center in Boston and the drug’s maker, Otsuka, evaluate its impact on kidney and liver function, and lifestyle. At this point, the visits are once a month and very quick; each time I go to Tufts, I feel so good to be able to actually be doing something that feels tangible to fight this disease. Tufts is still evaluating and accepting ADPKD patients for this study; I strongly encourage all of you to consider having this same opportunity. You can learn more at: clinicaltrials.gov/ct2/show/NCT02160145?term=tolvaptan+polycystic&rank=1


Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the New England Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators Judy or Dean at newenglandchapter@pkdcure.org.

Check back for updates!

View slides from previous New England Chapter Educational Seminars!


Meeting Local PKD Support Group

Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting. If you have questions or concerns, please join us at these meetings. Friends and family are also encouraged to attend.

Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. Click here to view our Flyer.

Contact Information: Walter Michelsen  at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 848-1050 or email PKDSupport@gmail.com.

Support in Rhode Island - If you are looking to connect with others, have questions or concerns, and live in Rhode Island, please contact John Barattini at (401) 231-1337 or ripkd07@gmail.com


 

Celtic Marketing Golf Tournament

 

Thursday, September 10

11:30 a.m. Shotgun start

4 person scramble

$130 a person

$30 dinner only

Join us for this fun filled day as we raise funds for the PKD Foundation. For more information please visit http://celtic-marketing.com/celticcommunity/celticgolftournament.html

Please RSVP by September 1, 2015 to Celtic Marketing 
Phone 802-748-4574
Fax 802-748-6868


Boston and Rhode Island Walks for PKD

 

Walk for PKD                        

    Boston       Rhode Island

   September 20, 2015              September 12, 2015

   DCR Artesani Park                Bristol Town Beach

                                     Registration is now open!

                                                       To learn more about the Boston walk or to donate, click here

                                                     To learn more about the Rhode Island walk or to donate, click here

                                                                                             Register Now!

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Resources Resources

Sign Up to Receive Information From Your Chapter


Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Basic function of the kidneys

Wednesday, Sept. 16, 12 - 1 p.m. CDT

PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the function of the kidney and why they're so important.

Register


Latest National Webinar

WebinarKidney Stones

Kidney stones can be painful and occur more often in PKD patients than in the general population. Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman will help you understand what kidney stones are, why they happen and what can be done to treat them.

Watch Now


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Your Organization

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Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.