New England ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newenglandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

PKD Foundation News and Announcements

Michael PsilakisFood Network's One-on-One Interview with Chopped All-Stars Part 3 Winner, Chef Michael Psilakis

May 13, 2015

Chef Michael Psilakis won part 3 of the Chopped All-StarsTournament and will be in the finale with the chance to win $75,000 for his charity of choice, the PKD Foundation. Food Network did an exclusive one-on-one interview with chef Michael after his big win about being on the show and why he's competing for the PKD Foundation.

Read the exclusive Food Network interview with Chef Michael Psilakis


A note from your Chapter Coordinator:

For the past three months, I have had the privilege of participating in the second clinical trial of the promising PKD drug, Tolvaptan. Starting this past October, I began to take the investigational drug/placebo which I will do for the 15 month duration of the study while the investigational team at Tufts Medical Center in Boston and the drug’s maker, Otsuka, evaluate its impact on kidney and liver function, and lifestyle. At this point, the visits are once a month and very quick; each time I go to Tufts, I feel so good to be able to actually be doing something that feels tangible to fight this disease. Tufts is still evaluating and accepting ADPKD patients for this study; I strongly encourage all of you to consider having this same opportunity. You can learn more at: clinicaltrials.gov/ct2/show/NCT02160145?term=tolvaptan+polycystic&rank=1


Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the New England Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators Judy or Dean at newenglandchapter@pkdcure.org.

Check back for updates!

View slides from previous New England Chapter Educational Seminars!


4th Annual Turpin Sisters Golf Tournament

Thursday, June 4

8:30 a.m. Registration

9:30 a.m Shotgun Scramble-Style Tournament

Wachusett Country Club 
187 Prospect Street
West Boylston, MA  01583
 

 

Join us for the 4th annual Turpin Sisters Golf Tournament! Click here to learn more about this annual event.


 Life's A Beach 5K 

Saturday, June 20

9 a.m. - noon

Nelson Park
Plymouth, MA 02360
 

Save the date for the Life's a Beach 5K (Formerly Mill Pond 5K). Online Registration for the 2015 race will be opening soon. 

Adult:  $25.00 online / $30.00 on site
Child 10 & Under:  $15.00 online / $20.00 on site
Online registration closes on Thursday, June 18th at 11:59 pm
 


Meeting Local PKD Support Group

Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting. If you have questions or concerns, please join us at these meetings. Friends and family are also encouraged to attend.

Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. Click here to view our Flyer.

Contact Information: Walter Michelsen  at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 848-1050 or email PKDSupport@gmail.com.

Support in Rhode Island - If you are looking to connect with others, have questions or concerns, and live in Rhode Island, please contact John Barattini at (401) 231-1337 or ripkd07@gmail.com


Boston and Rhode Island Walks for PKD

 

Walk for PKD                         Save the Date

             Boston                              Rhode Island

   September 20, 2015              September 12, 2015

   DCR Artesani Park                Bristol Town Beach

 

                        Registration Opens

                                                                 June 2015

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Resources Resources

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Latest Free Webinar

David BaronPKD Foundation's Chief Scientific Officer Webinar

Hear from our new Chief Scientific Officer David Baron, Ph.D., who is also a PKD patient. David shares what we have gained from our PKD research work to date and where we are headed with the Accelerating Treatments to Patients program.


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PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.