New England Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. There are jobs for everyone, big and small. Just contact us at newenglandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

PKD FoundationNew England Chapter

 

 

Chapter Info Chapter Info

Recent News Recent News

Meetings Meetings

Local Events Local Events

Media Media


Chapter Info Chapter Info

Welcome to the PKD Foundation’s New England Chapter Website!

 

Outstanding Chapter Award

New England

Presented to the Chapter that has
consistently met objectives related to
the Chapter mission areas of Education,
Fundraising and Support.

2013-chapter

 

 


 

Recent News Recent News

 

Better Together at the PKD National ConventionPKD National Convention: Better Together

 June 20–22, 2014

Kansas City, Mo.

This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.

 Visit pkdcure.org/convention to register and learn more.

 

Transplant Games of America

 

Transplant Games of America

Houston, Texas
July 11 - 15, 2014

The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries.  The games are more than an athletic event!  They highlight the importance of organ donation and celebrate the lives of organ donors and recipients.  For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.

The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families.  If you plan to participate, please take our brief survey! 

Take Our Survey

 

 


 

Meetings Meetings

 

Education Seminar - PKD: On the Horizon

Saturday, May 10, 2014
9:30 AM - 2:00 PM

New England Organ Bank
60 First Avenue
Waltham, MA 02451

Speakers Include: 
Jackie Hancock, Jr., PKD Foundation Chief Executive Officer
Dr. Ron Perrone, Tufts Medical Center
Dr. Martha Pavlakis, Beth Israel Deaconess Medical Center
Ms. Poonhar L. Poon, RD, Tufts Medical Center

 
Registration fees are $10 per person / $18 per family.  Registration will be available at the door, $12 per person.

 Register Today

 

If you would like to connect with our Volunteer Chapter Coordinators, Judy and Dean, please email us at newenglandchapter@pkdcure.org.

View slides from previous New England Chapter Educational Seminars!

 

Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting. 
If you have questions or concerns, please join us at these meetings.  Friends and family are also encouraged to attend.

Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. Click here to view our Flyer.

Contact Information: Walter Michelsen  at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 848-1050 or email PKDSupport@gmail.com.

Support in Rhode Island - If you are looking to connect with others, have questions or concerns, and live in Rhode Island, please contact John Barattini at (401) 231-1337 or ripkd07@gmail.com.

 


Local Events Local Events

 

Save the Date!

3rd Annual Turpin Sisters Golf Tournament

Thursday, June 5, 2014

Wachusett Country Club
187 Prospect Street
West Boylston, MA 01853 
 
Click here for more information. 
  

 

Register Today

 


 

 Media Media

Latest Webinar

Webinars

View All

WebinarStraight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation

March 27, 2014
Presented by PKD Patients

Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinar will help you be your best advocate as you enter the conversation about renal replacement with your health care team.

 

Featured Video

YouTube

View All

   

Latest Photos

Flickr

View All

 

Latest Tweets

Twitter

View All

 

Judy Ehrlich & Dean Lotito
Volunteer Chapter Co-Coordinators
newenglandchapter@pkdcure.org

 

For General Information
Call 800.PKD.CURE (753.2873)

PKD Foundation Staff

Cindy LeBlanc
Chapter Relations Manager
ChapterRelationsManager@pkdcure.org
404-660-7915

Nicole Harr
Education Manager
EducationManager@pkdcure.org
816-268-8483

Sara Brown
Fundraising Events Manager
FundraisingEventsManager@pkdcure.org
816-268-8469

Sue Full
Walk for PKD Manager
WalkforPKDManager@pkdcure.org


Vehicle Donation

Donate Your Car In Support of the PKD Foundation

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end polycystic kidney disease. Save the time and hassle of selling your vehicle yourself and support the Foundation’s mission by calling 855.9PKD.CAR (855.9753.227). For more information, visit pkdcure.org/vehicle-donation.

You Shop, Amazon Gives 
Amazon.com just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company’s website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation’s mission to find treatments and a cure for PKD. Learn more at smile.amazon.com > 



Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.


International: Canada Canada  France France  Germany Germany  Italy Italy  Japan Japan  United Kingdom United Kingdom