New England ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newenglandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

 

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

A note from your Chapter Coordinator:

For the past three months, I have had the privilege of participating in the second clinical trial of the promising PKD drug, Tolvaptan. Starting this past October, I began to take the investigational drug/placebo which I will do for the 15 month duration of the study while the investigational team at Tufts Medical Center in Boston and the drug’s maker, Otsuka, evaluate its impact on kidney and liver function, and lifestyle. At this point, the visits are once a month and very quick; each time I go to Tufts, I feel so good to be able to actually be doing something that feels tangible to fight this disease. Tufts is still evaluating and accepting ADPKD patients for this study; I strongly encourage all of you to consider having this same opportunity. You can learn more at: clinicaltrials.gov/ct2/show/NCT02160145?term=tolvaptan+polycystic&rank=1


Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

New England Chapter Meet & Greet

Thursday, March 3
6:30 to 8:30 p.m.

Sweet
72 Shrewsbury St.
Worchester, MA 01604

We hope you'll join the New England Chapter for a time to connect with others in the PKD community.

RSVP

If you have any questions concerning the Chapter, please email our Volunteer Chapter Coordinators Judy or Dean at newenglandchapter@pkdcure.org.

View slides from previous New England Chapter Educational Seminars!


Meeting Local PKD Support Group

Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting.  Friends and family are also encouraged to attend.

Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. 

Contact Information: Walter Michelsen  at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 369-8791 or email PKDSupport@gmail.com.

Support in Rhode Island - If you are looking to connect with others and live in Rhode Island, please contact John Barattini at (401) 231-1337 or ripkd07@gmail.com


Save the Date!

2016 Sprint Into Spring 5K

April 30, 2016

South Elementary School, Plymouth

Save the date for the 2016 Sprint Into Spring 5K! Check back soon for more information.


 

Boston and Rhode Island Walks for PKD

                        

 Thank you to all who joined us for the Boston and Rhode Island Walks!

We had a great time at both Walks! More info on the 2016 Walk season comin soon!
Check out our favorite memories from the Boston Walk! Our talented Walk coordinator made a video!
Check out our favorite memories from the Rhode Island Walk!         
                                                                  

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Resources Resources

Sign Up to Receive Information From Your Chapter


Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Journal article review on ARPKD research

Wednesday, Jan. 20, 12 - 1 p.m. CST

David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.

Register


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.