New England ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newenglandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

PKD Foundation News and Announcements

Michael Psilakis

 

Award-Winning Chef Michael Psilakis to Compete on Chopped All-Stars Tournament for PKD Foundation

April 22, 2015

Chef Michael Psilakis will be competing against fellow celebrity chefs on Food Network's fourth season of Chopped All-Stars. Michael's episode airs Tuesday, May 12 at 9 p.m. Central Time. If he advances and wins in the final competition round on May 26, Michael will donate $75,000 to the PKD Foundation, his charity of choice.

Read more about Chef Michael Psilakis

 


A note from your Chapter Coordinator:

For the past three months, I have had the privilege of participating in the second clinical trial of the promising PKD drug, Tolvaptan. Starting this past October, I began to take the investigational drug/placebo which I will do for the 15 month duration of the study while the investigational team at Tufts Medical Center in Boston and the drug’s maker, Otsuka, evaluate its impact on kidney and liver function, and lifestyle. At this point, the visits are once a month and very quick; each time I go to Tufts, I feel so good to be able to actually be doing something that feels tangible to fight this disease. Tufts is still evaluating and accepting ADPKD patients for this study; I strongly encourage all of you to consider having this same opportunity. You can learn more at: clinicaltrials.gov/ct2/show/NCT02160145?term=tolvaptan+polycystic&rank=1


Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the New England Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators Judy or Dean at newenglandchapter@pkdcure.org.

Check back for updates!

View slides from previous New England Chapter Educational Seminars!


4th Annual Turpin Sisters Golf Tournament

Thursday, June 4

8:30 a.m. Registration

9:30 a.m Shotgun Scramble-Style Tournament

Wachusett Country Club 
187 Prospect Street
West Boylston, MA  01583
 

Join us for the 4th annual Turpin Sisters Golf Tournament! Click here to learn more about this annual event.


 

Life's A Beach 5K 

Saturday, June 20

9 a.m. - noon

Nelson Park
Plymouth, MA 02360
 

Save the date for the Life's a Beach 5K (Formerly Mill Pond 5K). Online Registration for the 2015 race will be opening soon. 

Adult:  $25.00 online / $30.00 on site
Child 10 & Under:  $15.00 online / $20.00 on site
Online registration closes on Thursday, June 18th at 11:59 pm
 

 

 

 


Meeting Local PKD Support Group

Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting. If you have questions or concerns, please join us at these meetings. Friends and family are also encouraged to attend.

Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. Click here to view our Flyer.

Contact Information: Walter Michelsen  at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 848-1050 or email PKDSupport@gmail.com.

Support in Rhode Island - If you are looking to connect with others, have questions or concerns, and live in Rhode Island, please contact John Barattini at (401) 231-1337 or ripkd07@gmail.com

 


Boston and Rhode Island Walks for PKD

 

Walk for PKD                         Save the Date

             Boston                              Rhode Island

   September 20, 2015              September 12, 2015

   DCR Artesani Park                Bristol Town Beach

 

                        Registration Opens

                                                               June 1, 2015

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Latest Free Webinar

What's New in PKD: A Day of LearningWhat's New in PKD 2015: A Day of Learning

On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.


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Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.