News and Information
Sunday, November 2, 2014
Are you a runner? Is someone you know a runner? Want a chance to run in a premier marathon?
We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race. Hurry, before they are gone!
Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
Run for PKD
Questions? Contact us at firstname.lastname@example.org or 816.268.8469.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
If you would like to connect with our Volunteer Chapter Coordinators, Judy and Dean, please email us at email@example.com.
Reading Nutrition Labels
Kelly Welsh, Renal Dietitian, will be presenting a webinar about reading nutrition labels! If you have ever been confused by the information provided on food labels and would like to learn how to use the information provided to help you manage your kidney friendly diet....this webinar is for you!
Tuesday, October 14, 2014
8 - 9:30 p.m. EDT
(5-6:30 p.m. Pacific / 6 - 7:30 p.m. Mountain / 7-8:30 Central / 8-9:30 Eastern)
If you would like to gather together with other New England Chapter members to watch this presentation, please email Judy at firstname.lastname@example.org.
Meet Kelly Welsh
Kelly Welsh is a Renal Dietitian as well as a PKD patient, wife and mother. Ms. Welsh has conducted numerous nutritional seminars and educational meetings for PKD patients across the country. She has also presented at the National Convention on PKD, and is the author of “Brilliant Eats – Simple and Delicious Recipes for Anyone Who Wants to Be KidneyWise.”
View slides from previous New England Chapter Educational Seminars!
Local PKD Support Group
Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting. If you have questions or concerns, please join us at these meetings. Friends and family are also encouraged to attend.
Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. Click here to view our Flyer.
Contact Information: Walter Michelsen at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 848-1050 or email PKDSupport@gmail.com.
Support in Rhode Island - If you are looking to connect with others, have questions or concerns, and live in Rhode Island, please contact John Barattini at (401) 231-1337 or email@example.com.
Boston Walk for PKD
Saturday, September 20
DCR's Artesani Park
For more information, click here!
Rhode Island Walk for PKD
The New England Chapter wants to thank you for joining us for the Boston Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Presented by Neera Dahl, M.D., Ph.D., Assistant Professor of Medicine (Nephrology) at the Yale School of Medicine
Join us for an interactive discussion about PKD including a general overview of both ADPKD and ARPKD, common symptoms and frequently asked questions. Great for newly diagnosed patients as well as those who want to support a friend or family member with PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.