News and Information
A Note from the Coordinator:
Greetings from the Nebraska Chapter,
As we anxiously await spring we have already been discussing and planning Nebraska Chapter and Walk events. We are excited to have more volunteers wanting to get involved. We can do so much more together, UNITE TO FIGHT PKD. Please be watching for emails and Facebook messages of upcoming events.
We would love to have everyone involved in the Chapter and Walk. If you have an interest, please let me know and you will be welcomed. This year's PKD National Convention will be held in Orlando Florida at Disney. This is a great event where you get to hear and meet the experts of PKD, meet the PKD Foundation Staff and the many people like us who live with PKD either themselves or their family.
June 24-26- PKD National Convention Orlando Florida. National Convention
September 5 (Labor Day)- Omaha Storm Chasers baseball game at Noon. It will be PKD Awareness Day. If we have a group of 20 or more, we can get discounted tickets.
Nebraska Chapter Walk- October 8 at Walnut Creek, Recreation Area
I hope to get acquainted with more of you this year. I am always available by email or phone.
UNITE TO FIGHT PKD,
PKD Foundation Nebraska Chapter
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter Support Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
If you have any questions concerning the Nebraska Chapter, please email Volunteer Chapter Coordinator Kim at firstname.lastname@example.org.
Nebraska Walk for PKD
Oct. 8, 2016
Walnut Creek Recreation Area
Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.