Nashville ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at nashvillechapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

MESSAGE FROM YOUR COORDINATOR

The Nashville Chapter is planning for a great 2016!  Our focus is always PKD patients and their friends and families.  We hope the information provided here and on our www.pkdcure.org  website is helpful to you as you manage living with PKD.  Our Chapter is here for you so please contact us anytime at nashvillechapter@pkdcure.org.   

Chapter Meet and Greet!  Come join us for a relaxed cup of coffee and meet friends in the PKD chapter.  These informal meetings are planned bi-monthly and provide great opportunity to meet others in the PKD community and share experiences.  The meetings will be at The Well Coffeehouse, 700 Old Hickory Blvd in Brentwood - about 1 mile off I-65 Exit 74-B (Old Hickory Blvd).  Mark your calendar and plan to attend our first support meeting of the year at 3:30 pm on the following dates: 

August 27

It is not too early to be thinking about the October 22, 2016 Walk for PKD! Meet our new Nashville Walk Coordinators, Julie and Tucker Hannah. 

Julie & Tucker Hannah“Hello Nashville Chapter of the PKD Foundation! My husband, Tucker, and I are honored to be this year's coordinators for the Nashville Walk for PKD. We wanted to take a moment to introduce ourselves and explain our connection to this disease. We first heard about PKD in 2010 when our beloved chapter member Joanne Jackson received her kidney transplant. Bailey Jackson was my college roommate and I remember her talking about her mom's polycystic kidney disease, something I had never heard of before. In spring of 2014, Bailey announced that she had been diagnosed with PKD, and just two months later, I learned that my dad, too, had PKD. He is one of the rare spontaneous mutation types as we have no family history of this disease. He was on dialysis for a year and a half, and just last month he received a kidney transplant from my mom! My husband and I are passionate about working with the foundation to find a treatment! Though we are still waiting on the final confirmation, we are happy to say that it looks like this year's walk will be held October 22 at Bicentennial Mall State Park. We are excited about this beautiful downtown location and all of the visibility it will bring to our cause! We will post this information on the walk page walkforpkd.org/nashville as soon as we hear the final confirmation from the park.” 


PKD Patient Handbook

 

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!

Nashville Chapter Education Meeting

Tuesday, Sept. 20
7 to 8:30 p.m.

Brentwood Library
Meeting Room
8109 Concord Rd.
Brentwood, TN 37027 

Topic: Artificial Kidney
Speaker: William H. Fissell IV, M.D.

Dr. William Fissell IV, co-inventor of an implantable artificial kidney, will speak about his ground- breaking work at an upcoming Nashville Chapter meeting on Sept. 20. at 7 p.m. at the Brentwood Library. Dr. Fissell is a nephrologist at Vanderbilt University Medical Center and an Associate Professor of Medicine.  This event is FREE.

Registration coming soon!

If you have any questions about the Nashville Chapter, please contact Volunteer Chapter Coordinator Carol at nashvillechapter@pkdcure.org.   

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Nashville Walk for PKD

  

  
   Oct. 22, 2016
   Bicentennial Mall State Park

 Register Today!

                                         

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 Plan your own Event!

All of the events that take place in the Nashville PKD Foundation Chapter, large or small, only happen because someone decided to organize them. We are always receiving checks for $50 to $500 from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. 

There are also people who have decided they have the time and energy to put on a major event or who are connected to church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!

If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at nashvillechapter@pkdcure.org and we'll help you get the ball rolling.

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Resources Resources

Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Conversation with a researcher

Bradley Yoder, Ph.D., discusses the results of his recently completed PKD Foundation-funded project "In vivo analysis of cilia mechanosensation in the kidney."

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.