News and Information
MESSAGE FROM YOUR COORDINATOR
The Nashville Chapter is planning for a great 2016! Our focus is always PKD patients and their friends and families. We hope the information provided here and on our www.pkdcure.org website is helpful to you as you manage living with PKD. Our Chapter is here for you so please contact us anytime at NashvilleChapter@pkdcure.org.
Chapter Meet and Greet! Come join us for a relaxed cup of coffee and meet friends in the PKD chapter. These informal meetings are planned bi-monthly and provide great opportunity to meet others in the PKD community and share experiences. The meetings will be at The Well Coffeehouse, 700 Old Hickory Blvd in Brentwood - about 1 mile off I-65 Exit 74-B (Old Hickory Blvd). Mark your calendar and plan to attend our first support meeting of the year at 3:30 pm on the following dates:
March is Kidney Disease Awareness Month. Don't miss our March PKD Education Meeting. Dr. Kerri Cavanaugh, Assistant Professor of Medicine specializing in nephrology and hypertension at Vanderbilt University Medical Center will be our guest speaker.
It is not too early to be thinking about the October 22, 2016 Walk for PKD! Meet our new Nashville Walk Coordinators, Julie and Tucker Hannah.
“Hello Nashville Chapter of the PKD Foundation! My husband, Tucker, and I are honored to be this year's coordinators for the Nashville Walk for PKD. We wanted to take a moment to introduce ourselves and explain our connection to this disease. We first heard about PKD in 2010 when our beloved chapter member Joanne Jackson received her kidney transplant. Bailey Jackson was my college roommate and I remember her talking about her mom's polycystic kidney disease, something I had never heard of before. In spring of 2014, Bailey announced that she had been diagnosed with PKD, and just two months later, I learned that my dad, too, had PKD. He is one of the rare spontaneous mutation types as we have no family history of this disease. He was on dialysis for a year and a half, and just last month he received a kidney transplant from my mom! My husband and I are passionate about working with the foundation to find a treatment! Though we are still waiting on the final confirmation, we are happy to say that it looks like this year's walk will be held October 22 at Bicentennial Mall State Park. We are excited about this beautiful downtown location and all of the visibility it will bring to our cause! We will post this information on the walk page firstname.lastname@example.org as soon as we hear the final confirmation from the park.”
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
If you have any questions about the Nashville Chapter, please contact Volunteer Chapter Coordinator Carol at email@example.com.
Nashville Walk for PKD
Thank you to all who joined us for the 2015 Nashville Walk for PKD!
We had a great time connecting with everyone. Check out some of our favorite memories from the Walk here.
Save the date!
Oct. 22, 2016
Bicentennial Mall State Park
Plan your own Event!
All of the events that take place in the Nashville PKD Foundation Chapter, large or small, only happen because someone decided to organize them. We are always receiving checks for $50 to $500 from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things.
There are also people who have decided they have the time and energy to put on a major event or who are connected to church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at firstname.lastname@example.org and we'll help you get the ball rolling.
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.