Welcome to the PKD Foundation’s Minnesota Chapter Website!
A Message from your Chapter Coordinator
Greetings from Minnesota! I recently became the Chapter Coordinator for our state. I have PKD and am currently one of the subjects in the Tolvaptan study. PKD has had quite an impact on my family as my uncle died at 55 and my dad at 72 from complications of this disease. I am interested in doing all I can to raise awareness of the struggle patients and families face with PKD. Please join with me in our work to find a cure for PKD. Contact me with any questions. I look forward to meeting as many of you as possible.
Better Together at the PKD National Convention
June 20–22, 2014
Kansas City, Mo.
This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.
Visit pkdcure.org/convention to register and learn more.
Transplant Games of America
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
We do not have any local meetings scheduled at this time but do want to hear from you. If you have questions, or would like to connect with us, please email Pam at MinnesotaChapter@pkdcure.org.
Check back for updates!
The Minnesota Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.