Los Angeles ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at losangeleschapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


 News and Information News and Information

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

FREE PKD Education Seminar

Saturday, April 9
10 a.m. to noon

University of California Santa Barbara
Alumni Hall (on 2nd floor)
Mosher Alumni House
Santa Barbara, CA 93106

Thomas Weimbs, Ph.D. and his UCSB research team will discuss their PKD projects.
John Elder, M.D. will discuss resources available to PKD patients, medications, lifestyle recommendations, dialysis and transplant options.
Mr. Dwight Odland - will present the typical PKD progression, as well as updates of world-wide research and clinical trials.

We have teamed up with the PKD research team at UC Santa Barbara to put on a free Education Seminar on Saturday morning, April 9 – Join us!

Make a long day or a weekend out of it – visit beautiful Santa Barbara and learn the latest about PKD research going on right here at UCSB. We will also have a nephrologist (Dr. John Elder) speaking about medications, lifestyle recommendations, and pain management.

The meeting is from 10am-Noon at Alumni Hall, which is on the 2nd floor of the Mosher House, on the UCSB campus. Parking is free and we’ll have light refreshments.

RSVP: call 805.893.4846 or email  ia-sersvp@ucsb.edu.

Parking: complimentary reserved parking is available in Lot 12.

View the flyer for more information.

If you have any questions concerning Chapter meetings, please email our Volunteer Chapter Coordinator, Dwight at losangeleschapter@pkdcure.org

Los Angeles Walk for PKD

Thank you to all who joined us for the 2015 Los Angeles Walk for PKD!

We had a great time connecting with everyone. Check out some of our favorite memories from the Walk here. 

Check back soon for information on the 2016 Los Angeles Walk for  PKD!                                                                                


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Resources Resources

Sign Up to Receive Information From Your Chapter

Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Journal article review on ARPKD research

Wednesday, Jan. 20, 12 - 1 p.m. CST

David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.