News and Information
A note from your Chapter Coordinator:
We have teamed up with the PKD research team at UC Santa Barbara to put on a free Educational Seminar on Saturday morning, April 9 – Join us!
Make a long day or a weekend out of it – visit beautiful Santa Barbara and learn the latest about PKD research going on right here at UCSB. We will also have a nephrologist (Dr. John Elder) speaking about medications, lifestyle recommendations, and pain management.
The meeting is from 10am-Noon at Alumni Hall, which is on the 2nd floor of the Mosher House, on the UCSB campus. Parking is free and we’ll have light refreshments
Hope to see you there!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
We don't have any meetings scheduled at this time but we would still like to hear from you. If you have any questions concerning Chapter meetings, please email our Volunteer Chapter Coordinator, Dwight at firstname.lastname@example.org.
San Diego Rock N' Roll Half Marathon
Run through historic San Diego this June with Team PKD in the Rock 'n' Roll Half Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease. Visit www.runforpkd.org for more information.
Los Angeles Walk for PKD
Save the date!
Oct. 16, 2016
Beach Park 1, Santa Monica
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.