Long Island Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. There are jobs for everyone, big and small. Just contact us at longislandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

PKD FoundationLong Island Chapter

 

 

Chapter Info Chapter Info

Recent News Recent News

Meetings Meetings

Local Events Local Events

Media Media

 


Chapter Info Chapter Info

Welcome to the PKD Foundation’s Long Island Chapter Website!

 

Recent News Recent News

 

Better Together at the PKD National ConventionPKD National Convention: Better Together

 June 20–22, 2014

Kansas City, Mo.

This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.

 Visit pkdcure.org/convention to register and learn more.

 

Transplant Games of America

 

Transplant Games of America

Houston, Texas
July 11 - 15, 2014

The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries.  The games are more than an athletic event!  They highlight the importance of organ donation and celebrate the lives of organ donors and recipients.  For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.

The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families.  If you plan to participate, please take our brief survey! 

Take Our Survey

 


 

Meetings Meetings

 

We do not currently have any meetings scheduled however, we do want to hear from you.  Please email us at LongIslandChapter@pkdcure.org. Check back for updates!


 

At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awareness program.

In order to best meet the needs of our members who hail from Suffolk, Nassau and Queens, we alternate where our meetings are held between an eastern and western location.

Waldbaum's Dialysis Center
100 Community Drive
Great Neck, NY
631-369-6280

Meetings held in Nassau County are in the 2nd floor conference room of the Waldbaum's Dialysis Center. It is located just north of North Shore Hospital off Community Drive. (The address is 100 Community Drive, Great Neck, NY).

Take the Long Island Expressway to the Lakeville Road/Community Drive exit. Turn onto Community Drive, proceed north past the hospital to the Lake Success Business Park. It will be on your left about 1/4 mile past the hospital. Turn left into the Business Park and proceed up the hill. The Dialysis Center will be right in front of you - park where there is an open space. 

The Sachem Public Library
150 Holbrook Road
Holbrook, NY
631-369-6280

The Sachem Public Library is located at 150 Holbrook Road in Holbrook, New York. The library building is approximately half way between the Long Island Expressway and Portion Road on the west side of Holbrook Road across from the Nokomis Elementary School.

Getting to the library from the L.I.E. west of exit 61: Take Exit 61 off the Expresway and take a left (to go north) on Holbrook Road at the second traffic light on the Service Road. The library is appoximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Nokomis Elementary School.

Getting to the library from the L.I.E. east of exit 62: Take Exit 62 off the Expressway and stay on the service road until the first traffic light after you pass the Symbol Technologies building. Take a right on Holbrook Road (to go north) at the traffic light. The library is approximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Norkomis Elementary School.


Local Events Local Events

 

The Long Island Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.   

 


Media Media

Latest Webinar

Webinars

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WebinarStraight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation

March 27, 2014
Presented by PKD Patients

Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinar will help you be your best advocate as you enter the conversation about renal replacement with your health care team.

 

Featured Video

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Latest Photos

Flickr

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Latest Tweets

Twitter

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Gillian Kolodny
Volunteer Chapter Coordinator
longislandchapter@pkdcure.org

 

For General Information
Call 800.PKD.CURE (753.2873)

PKD Foundation Staff

Cindy LeBlanc
Chapter Relations Manager
ChapterRelationsManager@pkdcure.org
404-660-7915

Nicole Harr
Education Manager
EducationManager@pkdcure.org
816-268-8483

Sara Brown
Fundraising Events Manager
FundraisingEventsManager@pkdcure.org
816-268-8469

Sue Full
Walk for PKD Manager
WalkforPKDManager@pkdcure.org


Vehicle Donation

Donate Your Car In Support of the PKD Foundation

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end polycystic kidney disease. Save the time and hassle of selling your vehicle yourself and support the Foundation’s mission by calling 855.9PKD.CAR (855.9753.227). For more information, visit pkdcure.org/vehicle-donation.

You Shop, Amazon Gives 
Amazon.com just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company’s website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation’s mission to find treatments and a cure for PKD. Learn more at smile.amazon.com > 



Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.


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