News and Information
Benefit for the PKD Foundation:
The Fourth Annual Broadway Sings for PKD will be THIS Friday, August 15th at 9:30pm at Joe's Pub. Tickets are $15 in advance and $20 at the door. There is a $12 food or two drink minimum. Tickets are available online at www.joespub.com by phone (212) 967-7555 or in person at The Public Theater Box Office (425 Lafayette St.)
The concert will feature new musical theatre songs by emerging writers, including Hali Alspach, Will Aronson, James K. Ballard, Christina Capatides, Ty Defoe, Benny Gammerman, and more.
Performers will include Ali Ewoldt, Andrew Boetcher, Same Heldt, Beth Kirkpatrick, Patty Nieman, Emily Skiggs, Jason Sweettooth Williams, Remy Zaken, and more. Joanna Parson hosts.
Proceeds will benefit the PKD Foundation.
Sunday, November 2, 2014
Are you a runner? Is someone you know a runner? Want a chance to run in a premier marathon?
We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race. Hurry, before they are gone!
Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
Questions? Contact us at email@example.com or 816.268.8469.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
We do not currently have any meetings scheduled however, we do want to hear from you. Please email us at LongIslandChapter@pkdcure.org. Check back for updates!
At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awareness program.
In order to best meet the needs of our members who hail from Suffolk, Nassau and Queens, we alternate where our meetings are held between an eastern and western location.
Waldbaum's Dialysis Center
100 Community Drive
Great Neck, NY
Meetings held in Nassau County are in the 2nd floor conference room of the Waldbaum's Dialysis Center. It is located just north of North Shore Hospital off Community Drive. (The address is 100 Community Drive, Great Neck, NY).
Take the Long Island Expressway to the Lakeville Road/Community Drive exit. Turn onto Community Drive, proceed north past the hospital to the Lake Success Business Park. It will be on your left about 1/4 mile past the hospital. Turn left into the Business Park and proceed up the hill. The Dialysis Center will be right in front of you - park where there is an open space.
The Sachem Public Library
150 Holbrook Road
The Sachem Public Library is located at 150 Holbrook Road in Holbrook, New York. The library building is approximately half way between the Long Island Expressway and Portion Road on the west side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. west of exit 61: Take Exit 61 off the Expresway and take a left (to go north) on Holbrook Road at the second traffic light on the Service Road. The library is appoximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. east of exit 62: Take Exit 62 off the Expressway and stay on the service road until the first traffic light after you pass the Symbol Technologies building. Take a right on Holbrook Road (to go north) at the traffic light. The library is approximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Norkomis Elementary School.
Long Island Walk for PKD
Saturday, September 13
Holtsville Ecology Center & Park Preserve
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.