Long Island ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at longislandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

 

 

 

Sunday, November 2, 2014

 

Are you a runner? Is someone you know a runner? Want a chance to run in a premier marathon?

We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race. Hurry, before they are gone!

Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.

Run for PKD

 

 

Questions? Contact us at runforpkd@pkdcure.org or 816.268.8469.

 


Transplant Games of AmericaTransplant Games of America

 

We had an amazing time at the Transplant Games of America!  Thank you to everyone that stopped by our booth and shared your transplant story with us.  Congratulations to everyone that participated in the games!

View Slideshow!

 

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Calendar Local Events and Meetings

Meeting Chapter Meetings

We do not currently have any meetings scheduled however, we do want to hear from you. Please email us at LongIslandChapter@pkdcure.org. Check back for updates!

At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awareness program.

In order to best meet the needs of our members who hail from Suffolk, Nassau and Queens, we alternate where our meetings are held between an eastern and western location.

Waldbaum's Dialysis Center
100 Community Drive
Great Neck, NY
631-369-6280

Meetings held in Nassau County are in the 2nd floor conference room of the Waldbaum's Dialysis Center. It is located just north of North Shore Hospital off Community Drive. (The address is 100 Community Drive, Great Neck, NY).

Take the Long Island Expressway to the Lakeville Road/Community Drive exit. Turn onto Community Drive, proceed north past the hospital to the Lake Success Business Park. It will be on your left about 1/4 mile past the hospital. Turn left into the Business Park and proceed up the hill. The Dialysis Center will be right in front of you - park where there is an open space. 

The Sachem Public Library
150 Holbrook Road
Holbrook, NY
631-369-6280

The Sachem Public Library is located at 150 Holbrook Road in Holbrook, New York. The library building is approximately half way between the Long Island Expressway and Portion Road on the west side of Holbrook Road across from the Nokomis Elementary School.

Getting to the library from the L.I.E. west of exit 61: Take Exit 61 off the Expresway and take a left (to go north) on Holbrook Road at the second traffic light on the Service Road. The library is appoximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Nokomis Elementary School.

Getting to the library from the L.I.E. east of exit 62: Take Exit 62 off the Expressway and stay on the service road until the first traffic light after you pass the Symbol Technologies building. Take a right on Holbrook Road (to go north) at the traffic light. The library is approximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Norkomis Elementary School.


Long Island Walk for PKD

 

The Long Island Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.

Donate

 

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Resources Resources

Latest Webinar

Dr. Neera DahlThe Basics of PKD

Presented by Neera Dahl, M.D., Ph.D., Assistant Professor of Medicine (Nephrology) at the Yale School of Medicine

Join us for an interactive discussion about PKD including a general overview of both ADPKD and ARPKD, common symptoms and frequently asked questions. Great for newly diagnosed patients as well as those who want to support a friend or family member with PKD.

Watch Now


Blogs

PKD Will Not Beat Me


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.