News and Information
Thank you for joining us at the Long Island Walk for PKD!
The Walk may be over but fundraising will remain open until Dec. 31. Click the button below to make a donation to the Long Island Walk today!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awareness program.
In order to best meet the needs of our members who hail from Suffolk, Nassau and Queens, we alternate where our meetings are held between an eastern and western location.
Waldbaum's Dialysis Center
100 Community Drive
Great Neck, NY
Meetings held in Nassau County are in the 2nd floor conference room of the Waldbaum's Dialysis Center. It is located just north of North Shore Hospital off Community Drive. (The address is 100 Community Drive, Great Neck, NY).
Take the Long Island Expressway to the Lakeville Road/Community Drive exit. Turn onto Community Drive, proceed north past the hospital to the Lake Success Business Park. It will be on your left about 1/4 mile past the hospital. Turn left into the Business Park and proceed up the hill. The Dialysis Center will be right in front of you - park where there is an open space.
The Sachem Public Library
150 Holbrook Road
The Sachem Public Library is located at 150 Holbrook Road in Holbrook, New York. The library building is approximately half way between the Long Island Expressway and Portion Road on the west side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. west of exit 61: Take Exit 61 off the Expresway and take a left (to go north) on Holbrook Road at the second traffic light on the Service Road. The library is appoximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. east of exit 62: Take Exit 62 off the Expressway and stay on the service road until the first traffic light after you pass the Symbol Technologies building. Take a right on Holbrook Road (to go north) at the traffic light. The library is approximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Norkomis Elementary School.
If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Gillian, at firstname.lastname@example.org.
Sunday, November 1, 2015
Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease.
For more information or to express your interest in the team, email us at email@example.com.
Long Island Walk for PKD
Thank you to all who joined us for the Long Island Walk for PKD
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Oct. 21, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the new study looking at (pioglitazone) Actos as a potential drug therapy for PKD. Guest speaker Bonnie Blazer-Yost, Ph.D., principal investigator for the study, will join the discussion.
Next National Webinar
Wednesday, Oct. 14, 7 - 8 p.m. CDT
Presented by: Margot Troutt-Keys, LCSW
Join us for a discussion about the emotional toll PKD takes on a person and their family. Learn tips for coping and get advice for staying positive in the face of health adversity.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.