News and Information
A Message From Your Chapter Coordinator
My name is Amy Boyd and I am the new Las Vegas Chapter Coordinator. I have been married to the most amazing man for over 17 years and we have been blessed with four beautiful children. PKD became a part of our lives on October 19, 2009 when our daughter was diagnosed. I know how overwhelming it can be when first diagnosed. The internet can be a scary place when you are seeking information, especially medical information. When I came across the PKD Foundation I felt I truly had a place to turn. Not only as a source of information, but for support as well. I am excited to be a part of the foundation. I want to spread the word about PKD and the need for research and funding.
Please join me in spreading the message. I would love your help in this fight.
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
The Las Vegas Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email Amy at firstname.lastname@example.org.
Virtual Walk for PKD
Walk your way in your local community
For more information, click here!
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.