Kansas City ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at kansascitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

What can we do for you?

The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!

Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.

Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!


PKD Foundation News and Announcements

Dr. David Baron

We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.

 

Learn about our new CSO

 

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Calendar Local Events and Meetings

Meeting Chapter Support Meetings

 

Kansas City Chapter Support Meeting

Wednesday, January 28th
6 p.m. - 8 p.m.

Panera Bread
11022 Metcalf Ave.
Overland Park, KS 66210

Support meetings provide opportunity for patients to meet, share experiences and support each other. We welcome patients to bring questions and concerns.

RSVP

If you have any questions about the event please contact our Volunteer Chapter Coordinator, Nicole at kansascitychapter@pkdcure.org

 


Meeting Chapter Educational Meetings

Thank you to all of the researchers at the KU Kidney Institute for sharing such wonderful information with us at our last Chapter meeting! Below are pictures from our visit to the Kidney Institute on October 23!

  

Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 p.m. to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed.  

 The Kasnas City Chapter does not have an educational meeting planned at this time. Please email our Chapter Coordinator if you wish to connect for questions or comments at KansasCityChapter@pkdcure.org.

 

 

Kansas City Walk for PKD

Facebook Profile PictureThe Kansas City Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Kansas City Walk for PKD!

 Click here for some great memories from our 2014 Kansas City Walk for PKD!

 

 

 


 

The Kansas City Chapter is planning our annual fundraising events for 2014! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.

 

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Resources Resources

Latest Free Webinar

Dr. Clifford MilesKidney Allocation System Q&A

Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.