News and Information
A note from your Chapter Coordinator:
The Kansas City Chapter is gearing up for a great 2015! Our focus is always PKD patients and their friends and families. We hope the information provided here and on
our website is helpful to you as you manage living with PKD. Our Chapter is here for you so please contact us anytime at KansasCityChapter@pkdcure.org. .
Support meetings are planned quarterly and provide great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions! Mark your calendar and plan to attend our first support meeting of the year on Wednesday, January 28. Don't miss What's New in PKD: A Live Broadcast Day of Learning Virtual Conference on March 28. Dr. Franz Winklhofer from University of Kansas Medical Center will be our guest speaker. Visit our website for details.
It is not too early to be thinking about the 2015 Walk for PKD! Join us on Saturday, September 12 at Avila University. Registration opens in June. Watch your email for details and a link to register.
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!
PKD Foundation News and Announcements
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!
Local Events and Meetings
Chapter Educational Meetings
What's New in PKD: A Day of Learning
Saturday, March 28, 2015
10 a.m. - 2:30 p.m. Central Time
8330 Ward Parkway
Kansas City, MO 64114
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss topics that are important to PKD patients.
If you have questions about the event please contact our Volunteer Chapter Coordinator, Nicole at firstname.lastname@example.org
Chapter Support Meetings
Thank you to all of the researchers at the KU Kidney Institute for sharing such wonderful information with us at our last Chapter meeting! Below are pictures from our visit to the Kidney Institute on October 23!
Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 p.m. to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed.
The Kasnas City Chapter does not have an educational meeting planned at this time. Please email our Chapter Coordinator if you wish to connect for questions or comments at KansasCityChapter@pkdcure.org
Kansas City Walk for PKD
The Kansas City Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Kansas City Walk for PKD!
Click here for some great memories from our 2014 Kansas City Walk for PKD!
The Kansas City Chapter is planning our annual fundraising events for 2014! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.
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Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.