News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at email@example.com!
Local Events and Meetings
Chapter Education Meetings
Chapter meetings provide an opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Check back for our next scheduled education meeting time and location. You can contact the Kansas City Volunteer Chapter Coordinator at firstname.lastname@example.org.
Chapter Support Meetings
Support meetings are planned quarterly and provide a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions!
Kansas City Chapter Support Meeting
Wednesday, May 18
6:30 to 8 p.m.
Legends at Village West
1811 Village W. Pkwy.
Kansas City, KS 66111
If you have any questions about the Kansas City Chapter, please email our Volunteer Chapter Coordinator Nicole at email@example.com.
University of Kansas Hospital Transplant Clinic Support Group
A support group meets at KUMED in the transplant clinic on the 1st Thursday each month from 6:30 - 8 p.m. Pre and post transplant patients are welcome to attend. Topics will be posted as they are available. For more information, please email Jill Riester at firstname.lastname@example.org.
Kansas City Cocktails and Golf
3 to 6 p.m.
Top Golf10611 Nall AvenueOverland Park, KS 66207
Join the Kansas City Chapter at our Cocktails and Golf event this May. Enjoy a night of refreshing drinks, silent auction and golf (optional), while raising funds for the PKD Foundation.
For more information, please visit the event website or contact Peggy Robinson at email@example.com.
Kansas City Walk for PKD
Thank you for joining us for the 2015 Kansas City Walk for PKD!
We had a great time connecting with everyone at the Walk! Check out some of our favorite memories from the Walk here.
Save the date!
Sept. 10, 2016
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.