Kansas City ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at kansascitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


 News and Information News and Information

Mark your calendar

 Transplantation Seminar & Tour of Transplant Center  Tues., Oct. 20 @ University of Kansas Hospital


Thank you for joining us at the Kansas City Walk for PKD!

The Walk may be over but fundraising will remain open until Dec. 31. Click the button below to make a donation to the Kansas City Walk today!

 Donate today! 

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

  What can we do for you?

The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!

Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.

Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org! 

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Calendar Local Events and Meetings

Meeting Chapter Education Meetings

Chapter meetings provide opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Kansas City Education Meeting

Tuesday, Oct. 20
4 to 6 p.m.

University of Kansas Hospital
3901 Rainbow Blvd.
Kansas City, KS 66160


Dr. Amna Ilahe, Assistant Professor of Medicine
Kidney Institute - Faculty
Department of Internal Medicine, Division of Nephrology & Hypertension

Dr. Ilahe will talk about transplantation and we will tour the facility including the exam rooms of pre- and post-op patients, consult room, and education rooms.

Please note - we will meet at the University of Kansas Hospital main lobby at 3:45 and walk to the transplant center together. If you need directions, please email Nicole at KansasCityChapter@pkdcure.org.

Register Today

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Meeting Chapter Support Meetings

Check back for upcoming support meeting dates!

Support meetings are planned quarterly and provide a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions! Bring your questions and concerns and we will do our best to provide answers. 

Check back for our next scheduled support meeting time and location. You can contact the Kansas City Volunteer Chapter Coordinator at kansascitychapter@pkdcure.org.

University of Kansas Hospital Transplant Clinic Support Group

A support group meets at KUMED in the transplant clinic on the 1st Thursday each month from 6:30 - 8 p.m. Pre and post transplant patients are welcome to attend. Topics will be posted as they are available. For more information, please email Jill Riester at KansasCityEducation@pkdcure.org.

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Zumbathon Fundraiser

Saturday, Nov., 2015

10 to 11:30 a.m.

Stonegate Elementary
900 South Foxridge Dr.
Raymore, MO 64083 

Join us for a Zumbathon fundraiser to benefit the Kansas City Walk for PKD! The proceeds from this event will be credited to the team with the most participants in attendance. Online registration will be available through Friday, November 6 for $10, or register at the event for $12. 

For more information, please email Nicole at KansasCityChapter@pkdcure.org.



Kansas City Walk for PKD


Walk for PKD 



  Thank you for joining us for the Kansas City Walk for PKD!




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Resources Resources

Sign Up to Receive Information From Your Chapter

Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.A discussion about (pioglitazone) Actos as a potential therapy for PKD

Wednesday, Oct. 21, 12 - 1 p.m. CDT

PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the new study looking at (pioglitazone) Actos as a potential drug therapy for PKD. Guest speaker Bonnie Blazer-Yost, Ph.D., principal investigator for the study, will join the discussion.


Next National Webinar

Emotional toll of PKDThe emotional toll of PKD

Wednesday, Oct. 14, 7 - 8 p.m. CDT

Presented by: Margot Troutt-Keys, LCSW

Join us for a discussion about the emotional toll PKD takes on a person and their family. Learn tips for coping and get advice for staying positive in the face of health adversity.


Watch previous webinars here.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.