News and Information
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!
Join Team PKD for the Denver Rock 'n' Roll Half Marathon
October 19, 2014
Celebrate good times at the 5th Annual Denver Rock 'n' Roll Half Marathon! Live music every mile makes the heart and soul of this event. Join Team PKD in bringing hope to those affected by polycystic kidney disease. You will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Chapter Support Meetings
Chapter Support Meetings are usually held at a Panera Bread location around the metro area. Check back for exact locations! These meetings are planned with YOU in mind. We welcome you to bring questions and concerns and we will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! Hope to see you next time!
The Kansas City Chapter does not have a support meeting planned at this time however, we do want to hear from you. If you have a topic that you would like to discuss, email us at KansasCityChapter@pkdcure.org.
Chapter Educational Meetings
Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 p.m. to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed. We hope you will join us.
Thursday, October 23, 2014
Please meet in the hospital lobby at 3:45!
University of Kansas Medical Center - Kidney Institute
3901 Rainbow Blvd.
Kansas City, KS 66160
Join the Kansas City Chapter for a tour of the University of Kansas Medical Center Kidney Institute and hear poster presentations from researchers that are conducting PKD research right here in Kansas City. Please meet in the hospital lobby at 3:45, we will walk to the Kidney Institute together.
Through the Research Grant Program, the PKD Foundation awarded research grants to 15 PKD researchers. Several of these researchers are from the University of Kansas Medical Center! Meet these researchers and hear directly from them about their research projects. Summaries of all of the projects grant recipients are available here
Please email our Chapter if you have any questions at KansasCityChapter@pkdcure.org.
Kansas City Walk for PKD
The Kansas City Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
The Kansas City Chapter is planning our annual fundraising events for 2014! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.
Cocktails for a Cure
Saturday, November 1, 2014
7 - 9 p.m.
1325 Odd Fellows Road
Liberty, MO 64068
Cocktails for a cure isn't just an exciting party. Your support will fund critical research to discover treatments and a cure for polycystic kidney disease. Join those committed to supporting this important cause for an evening of drinks, hors h'oeuvres, and music by June Bug and the Porch Lights.
Presented by Neera Dahl, M.D., Ph.D., Assistant Professor of Medicine (Nephrology) at the Yale School of Medicine
Join us for an interactive discussion about PKD including a general overview of both ADPKD and ARPKD, common symptoms and frequently asked questions. Great for newly diagnosed patients as well as those who want to support a friend or family member with PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.