News and Information
Our chapter needs volunteers to help with our many events and initiatives. Opportunities are available in education, publicity, fundraising, and patient support.
Become a Volunteer!
Kathy's volunteer work recently has involved collecting in-kind donations, recruiting volunteers for Walk day, locating supplies and helping with the set-up and take-down on Walk day.
"It is rewarding to meet more people with PKD and know that my efforts may help their children or grandchildren. Working on projects with my family and other volunteers was also fun, even when we were painting signs in 90 degree temperatures with high humidity."
Kathy encourages others to get involved, "Remember that you can volunteer at your comfort level, you can do a little or a lot. Even taking on one item from the to-do list is very helpful. Volunteering adds to your personal growth and gives you a great deal of satisfaction."
Kathy Frits started volunteering with the Iowa Chapter in March 2007. Her original motivation to get involved with the Iowa Chapter was her grandson Andrew, now 2, as well as to support her daughter, then Iowa Chapter Coordinator, Becky Decker.
Unsure of how you can help? Let us know what you love to do an we will find the perfect fit for you. Kathy found her fit and so can you.
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
Local Events and Meetings
The Iowa Chapter does not have any local meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email John at firstname.lastname@example.org.
Iowa Walk for PKD
Saturday, September 6
Noelridge Park - Lagoon Pavilion
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.