News and Information
Our chapter needs volunteers to help with our many events and initiatives. Opportunities are available in education, publicity, fundraising, and patient support.
Become a Volunteer!
Kathy's volunteer work recently has involved collecting in-kind donations, recruiting volunteers for Walk day, locating supplies and helping with the set-up and take-down on Walk day.
"It is rewarding to meet more people with PKD and know that my efforts may help their children or grandchildren. Working on projects with my family and other volunteers was also fun, even when we were painting signs in 90 degree temperatures with high humidity."
Kathy encourages others to get involved, "Remember that you can volunteer at your comfort level, you can do a little or a lot. Even taking on one item from the to-do list is very helpful. Volunteering adds to your personal growth and gives you a great deal of satisfaction."
Kathy Frits started volunteering with the Iowa Chapter in March 2007. Her original motivation to get involved with the Iowa Chapter was her grandson Andrew, now 2, as well as to support her daughter, then Iowa Chapter Coordinator, Becky Decker.
Unsure of how you can help? Let us know what you love to do an we will find the perfect fit for you. Kathy found her fit and so can you.
Iowa Walk for PKD
The Iowa Chapter wants to thank you for joining us in our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Iowa Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, John, at firstname.lastname@example.org.
Check back for any upcoming meetings!
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.