News and Information
We’re pleased to announce Carol Soha, Ph.D., as the new Delaware Chapter Coordinator. Carol comes to this position with extensive experience in health education, nursing and non-profits. She retired from nursing after many years and was Executive Director of the Delaware Center of Wellness, which promoted wellness in worksites throughout the state.
Carol has firsthand understanding of PKD as it runs in her family. She was fortunate to have received a living donor kidney in 2013. Carol took on this volunteer challenge to help her daughters and all those affected by PKD and to show her appreciation for the selfless act by her donor.
Carol is anxious to network with individuals and institutions with a similar mission to promote PKD awareness, kidney health and to increase the number of living and deceased donors.
Delaware is the state of Endless Discoveries. Families affected by PKD will learn of “endless discoveries’ through their involvement with the PKD Foundation. She invites those in need of information or who want to help with the annual Walk for PKD,other fundraisers or education events to contact her at (302) 373 – 7179 or at firstname.lastname@example.org.
PKD Foundation News and Announcements
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!
Local Events and Meetings
The Delaware Chapter does not have any meetings scheduled at this time however, we do want to hear from you. If you have any questions or would like to connect with our Volunteer Chapter Coordinator, please email Carol Soha, at email@example.com.
Check back for updates!
Delaware Walk for PKD
The Delaware Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Delaware Walk for PKD!
Dutch Country Farmer's Market Event
March 13, 2015
701 N. Broad StreetMiddletown, DE 19709
Volunteers will be distributing PKD information and collecting donations every Friday and Saturday starting on March 13, 2015 until March 28, 2015 from 9 a.m. - 3 p.m.
If you or someone you know is interested in volunteering for this event please contact Carol Soha at DelawareChapter@pkdcure.org.
Save the Date:
Women and Wine Dinner
Thursday, March 19
6:30 p.m - 9 p.m.
Lupo di Mare 247 Rehoboth Ave. Rehoboth Beach, DE 19971 [located in the Hotel Rehoboth]
Join us as we raise funds and awareness for the PKD Foundation. This fun event will feature a creative Italian four course meal paired with wines. The cost will be $39 plus gratuity. For each guest in attendance, Lupo Di Mare will make a $5 donation to the PKD Foundation. To make reservations, please contact Alexis Schreiber at Alexis@sodelconcepts.com or 302-226-2240. For more information please contact Carol Soha at DelawareChapter@pkdcure.org.
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Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.