News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
We’re pleased to announce Carol Soha, Ph.D., as the new Delaware Chapter Coordinator. Carol comes to this position with extensive experience in health education, nursing and non-profits. She retired from nursing after many years and was Executive Director of the Delaware Center of Wellness, which promoted wellness in worksites throughout the state.
Carol has firsthand understanding of PKD as it runs in her family. She was fortunate to have received a living donor kidney in 2013. Carol took on this volunteer challenge to help her daughters and all those affected by PKD and to show her appreciation for the selfless act by her donor.
Carol is anxious to network with individuals and institutions with a similar mission to promote PKD awareness, kidney health and to increase the number of living and deceased donors.
Delaware is the state of Endless Discoveries. Families affected by PKD will learn of “endless discoveries’ through their involvement with the PKD Foundation. She invites those in need of information or who want to help with the annual Walk for PKD,other fundraisers or education events to contact her at (302) 373 – 7179 or at email@example.com.
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Delaware Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator at firstname.lastname@example.org.
Check back for updates!
Delaware Walk for PKD
September 19, 2015
Glasgow Park, Pavilion 1
Registration is now open!
To learn more about the Delaware walk or to donate, click here.
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Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.