News and Information
What can we do for you?
We are interested in what ideas our Chapter members might have to further improve the Connecticut Chapter. Please help us by completing this brief survey. Thank you!
Take our survey!
PKD Foundation News and Announcements
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
Learn about our new CSO
Local Events and Meetings
Education Seminar - Managing Your Life with PKD
Thank you to the following speakers for joining us at the New York City Education Seminar!
Irina Barash, MD
Jennifer Egert, PhD
Dennis Finkielstein, MD
Kim Valenza, RE, CDE, CDN
Ariella Tomback, LMSW
Chapter support meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Connecticut Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Micaela, at email@example.com.
The Connecticut Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email us at firstname.lastname@example.org.
Connecticut Walk for PKD
The Connecticut Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.